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Wolff


Tigercat17

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Tigercat17 Enthusiast

Hi everyone!

I've been gluten free for three years now and doing great except for the occasional accidental glutening. I know I just got glutened again and I really suspect the Wolff


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dilettantesteph Collaborator

I've been recommending this to my daughter, who is less sensitive than I am. I thought it was fairly safe. I think that I have reacted to it periodically, but that it was mainly good. I hope that you find out that it was something else. Can you please let me know? I generally stick to the groats because then I can see if there is something in there that doesn't belong. I think that they buy buckwheat from a lot of farmers so there could be a lot of variables.

Takala Enthusiast

I would be getting after your Whole Foods store to resume carrying the Pocono brand. I mean, they have these clerks all the time saying "did you find everything you need?" and not carrying the safe brand of gluten free buckwheat in a supposed "health food store" doesn't do anyone any good. It's bad enough that I can't use so many of their house brand packaged goods of plain ingredients, such as nuts, that would be the usual ingredients in gluten free cooking, because they are processed in a facility with wheat. :angry:

I like buckwheat, but it was only Rice Guy's suggestion to try the Pocono brand that kept me from giving up on it, some of these other brands had oat or "other" cross contamination. I try to find the groats, as d-steph says, so I can eyeball them for alien visitors :P before grinding them in a coffee grinder for flour. (a little of the flour goes a long way in recipes). With crop cycles coming and going, my spouse does not quite get why I keep more than one little box around.... it's only a 50 to 70 mile round trip finding the stuff.

  • 2 months later...
glutenturnsmen2mrshyde Newbie

MMM I love Pocono cream of Buckwheat!!! I had it the first time the other day and I made it like I use to make cream of wheat halof water half milk with some butter. I ate it like grits and than I ate the left overs the next day and put sugar in them. I was ecstatic it almost tasted like cream of wheat (which I havent had in three years),

You can also order it on line through some of these health companies order your other staples at the same time so the shipping costs will be worth it.

  • 10 months later...
moosemalibu Collaborator

I just tried the Pocono cream of buckwheat! So good. I made it with almond milk, added vanilla bean pure maple syrup and sliced bananas. So good! Paired it with 2 scrambled eggs for a complete breakfast.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
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    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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