Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Perfumes...

shadowicewolf

Recommended Posts

shadowicewolf Proficient
shadowicewolf
Posted

Alright, so i've had somewhat of a bad day today. Went to class, got to my third one of today, walk in and it smelt like someone had dumped an entire bottle of perfume there. I could feel the start of a major headache/throat ache coming on. Fine, told the professor that i might have to leave because of it (as the classroom has NO ventilation whatsoever). Had to stick it out because the attendence sheet went around whilst i was out of the classroom (i had to go outside for a bit, but left my digital recorder in place). Fine and dandy.

Came back to my apartment after missing the shuttle (ugh) and ate lunch (pb and honey on corn tortillas + some honey on a rice cake (yes i know, carb overload, leave me be)). Went back out to my next class, where i was for about 3 hours. On my walk over to my final course, I felt something strange.

My left side of my face felt as if i had been laying on a heating pad for a while (including the ear). I had also just passed a group of people that smelt like they had drenched themselves in perfume... again.

Its just now starting to go away (after a long shower which helps). I used to get this type of reaction (though more of a burn with it but it would start out like this) when i would eat tomatos. It is NOT a fun feeling (or memory for that matter). I say this because benadryl (should this keep up for another hour or so) is the only thing after an exposure to something. I kid not.

Taking into account that it had been about 4 and a half hours after i ate, I do not believe that is the cause. Every single time i've had an reaction, it was always within the first 30 or so minutes after exposure.

I should also note, such allergies to chemical like things run majorly within my family. For example, my grandmother cannot step into home depot without breaking out in hives. The same goes for being around perfumes and whatnot.

Just thought i'd come on for some ideas.

/end somewhat paranoid rant

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

I understand the sensation you are describing. Happens to me in department stores or if I walk by one of those perfumey stores like Bath &Body or VS.

I can get an immediate, growing crushing headache very quickly. Fresh cool air, and avoiding "migraine" triggers is all I can do. A shower helps. Washing my face in the bathroom helps. Washing my sinuses with a Neti pot helps, too. So does an antihistimine.

It is MUCH LESS SEVERE now gluten-free;however, during allergy season it's much easier to trigger a scent reaction.

shadowicewolf Proficient
shadowicewolf
Posted
  • Author

glad i'm not alone. This is the first time with the face thing though, so i got spooked :unsure:

Its, i'd say, completely gone now. So strange though <_<

T.H. Community Regular
T.H.
Posted

Can you have wine at all, or does it make you sick?

I react to the same thing - perfume, big-time, plus store-bought tomatoes, too.

My own reaction has been due to sulfites. They are used as a preservative in the majority of perfumes, which is why I react to those, and they are in a commonly used spray to ripen tomatoes, too.

If wine makes you sick, too, you might want to check out sulfites. If it doesn't, then there is no way it's sulfites, as wine is high in sulfites. However, maybe it would be worth your while to check out common ingredients in perfumes and ingredients in any common sprays or ripening agents used on tomatoes and see if there are any ingredients used in both. Might be able to find out what you react to, you know?

Oh, another possibility? There are a few genetic enzyme deficiencies that can be checked by a geneticist. I do not know the names, but was just talking to someone about this the other day who had a deficiency that wouldn't let her body process certain toxins - some in perfumes - properly. Since so many in your family have this, that might be worth a look, too, if you save up for the tests, you know?

shadowicewolf Proficient
shadowicewolf
Posted
  • Author

i've never drank wine, but i've had it in food stuff (its been a while though) with no issues.

I'll definently look into it.

pricklypear1971 Community Regular
pricklypear1971
Posted

I can drink wine...though after my wine tasting experience last fall I have a hard time drinking more than one glass of red.

Wine can give me a headache, other times I'm fine. But alcohol in general can make me headachey -especially if its allergy season.

Essential oil scents don't make me sick, and some perfumes are fine...but a "store full" bugs me, as well as spending too much time in the cleaning products line at the grocery store.

And don't get me started in the old guy that wears a bottle of cologne TO THE GYM....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,322
    • Most Online (within 30 mins)
      7,748
    Sandra Lowe
    Newest Member
    Sandra Lowe
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NoGlutenCooties
      gluten-free in Wilmington, DE

      By NoGlutenCooties · Posted

      For anyone looking for a great place to eat near Wilmington, DE, I did not find anyplace in Wilmington that looked like they could do safe gluten free. I was also there on a Sunday and most places are closed on the weekends. However, I found a really great place in Newark, DE - just 20min away.  It's Ted's Montana Bar and Grill and it was absolutely amazing! They have a great gluten free menu and they really understand about keeping things from being cross contaminated. They had the best Bison burgers and hand-cut fries.  Yes, in a separate frier, of course. My friend got the gluten free bun and she said it was really good. Ted's Montana Bar and Grill is also a chain, with several locations across the country.  If you happen to be near one, I highly recommend them.
    • Mari
      Ocd making gluten fears unmanageable. Need advice

      By Mari · Posted

      I havesome of the replies to your post(which by the way is a gread piece of writing) and think that it will take lots of time and reading to decide what you are going to do. I would like to give you some practical suggestions. Your anxieties and OCD are a perfectly natural response when your body is sending signals that you have physical problems. The body does not use words it uses biochemistry and electric interactions. Celiac disease is not a killer disease so you are not going to die in the near future if you get glutened.  It can be a disabling problem unless you stay gluten free. For OCD attacks I have used spearmint or peppermint teas to relax. I also sitorlay down , relax as much as possible and review what I have been eating for the last few days and can usually identify that I have been eating too much of something and not enough of other foods that would balance my body. My body may have become too acid when it needs to be slightly alkaline. For me this means eating more vegetables and less starches and proteins. There are some websites that will list acid forming foods and alkaline forming food and many foods that are in between. Just admit that you are anxious about gluten being present in foods and anything that is used to prepare foods or even in your environment. When you eat anything that makes you anxious take a capsule of an anti-gliadin enzyme. I use a brand called GliadinX. It works in the stomach and will break down small amounts of gluten. Look up online the amount of plain water your body height and weight needs every day. Two years ago I was 5' 4" and weighed 100 lbs and needed 48 oz. every day.  Even if you can't drink the full amount if you just drink more water you will notice some improvement in your digestive system.  That's enough for tonight and it's way past my bedtime. Don't hesitate to ask more question or ask for more information.       
    • Scott Adams
      Canker sores

      By Scott Adams · Posted

      Canker sores can definitely be frustrating, especially when you're already managing a strict gluten-free lifestyle and have been diagnosed with celiac disease for so long. While these painful mouth ulcers aren’t exclusive to celiac disease, they can be linked to nutritional deficiencies—particularly of iron, folate, or vitamin B12 (as @trents mentioned )—which are common in people with celiac, even those who are very careful with their diet. Ongoing fatigue and aches might also suggest that your body isn’t fully absorbing nutrients or that there’s some underlying inflammation. It could be helpful to get bloodwork done to check for these deficiencies, and possibly even a full nutritional panel. Sometimes, new sensitivities or hidden sources of gluten or additives like sodium lauryl sulfate (common in toothpaste) can trigger symptoms like canker sores too. Since your reactions are so severe and you're highly vigilant, it might also be worth considering whether any other autoimmune conditions could be involved, as they can develop over time and overlap with celiac. Consulting with your doctor or a celiac-informed dietitian may help pinpoint the cause and bring relief.
    • knitty kitty
      Ocd making gluten fears unmanageable. Need advice

      By knitty kitty · Posted

      @Dora77, You shouldn't worry about getting glutened through your skin.  You would have to touch a gluten infested doorknob and then put your hand in your mouth.   I'd be more concerned with your mom's heating up gluten bread in the oven and boiling gluten noodles.  These methods cause particles of gluten to become airborne which would then enter your nose and be swallowed, going into your digestive tract.  I have to avoid the bakery aisle at the grocery store for this reason.  An M95 mask helps. If you get nutritional deficiencies corrected, your immune system will calm down and be less reactive to gluten expose.  Vitamin D helps regulate the immune system.  Thiamine and Niacin help make digestive enzymes which would help digest any accidental gluten exposure.  Thiamine helps Mast cells not to release histamine, an inflammatory agent released as part of the reaction to gluten, and also a neurotransmitter that causes alertness and anxiety, and the flight or fight response.  Pyridoxine will help improve the OCD.  Remember your brain is part of the body.  Vitamin deficiencies affect your brain and mental health as well as the rest of your body.  
    • Jacki Espo
      Canker sores

      By Jacki Espo · Posted

      I do not have evidence other than anecdotal but I am certain when I have gotten these it's the result of eating gluten (back when I did).  I don't get them now that I don't eat gluten. 
×
×
  • Create New...