Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleep Patterns When Glutened


Guest BERNESES

What happens to your sleep when glutened?  

23 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

Guest BERNESES

Thanks Everyone- when I get glutened I fall asleep fine but wake up at 4 or 5 a.m. (I play the kitchen fairy and do stuff around the house when I can't sleep) but then at like 11:30 I'm exhausted and have to nap. I'm wondering what other people experience. Thanks, Beverly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

When glutened I usually have a lot of trouble getting to sleep and then wake up alot throughout the night. I am also sleepy no matter how much sleep I get when I am glutened.

Carriefaith Enthusiast

Gluten makes me very sleepy, but I have a hard time going to sleep and I wake up a lot during the night. I think it's becasue gluten makes me very anxious for no reason... and no matter how tired I am, my body just has a hard time shutting itself down at night.

Eliza13 Contributor

I have always had trouble sleeping. I can never seem to fall asleep, but boy can I sleep for hours on end when I am on gluten. When I lay off gluten, I sleep less, am less tired and fall asleep easily.

LRgirl Explorer

when I get glutened, I get overtired. I feel like I haven't slept for ages. This also happens when I accidently eat other foods I am allergic to. It actually happened with chick fill-a fries. I was so happy they were gluten-free. I didn't clue into the fact that they were cooked in peanut oil. After 2 hours, I was in the bed, with terrible fatigue. I could barely lift my head.

jerseyangel Proficient

I've been gluten-free 4 mo. now--the 1st. couple of months gluten-free, it seemes like I couldn"t get enough sleep. I would fall asleep around 10PM and sleep dead till 7AM or so. I would want to lie down in the afternoon as well. At the moment, the pattern seems to be: fall asleep pretty easily, but wake early (5AM or so). I accidently used a soap which I think must have contained gluten a few days ago and during this time I have been waking up every couple of hours all night and still waking at 5. This AM the cramps seem to be gone :) had Cream of Rice for breakfast (so far, so good) hopefully I'll sleep through the night tonight. Also, I dream much more vividly now since gluten-free). Maybe for some reason, I remember them more?...

Guest BERNESES

I wake up early when my symptoms are flaring up and sleep later after they calm down a bit. It's like when I need the rest most i can't get it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest gfinnebraska

I don't notice a difference at night when I am glutened, but during the day I can't keep my eyes open! That is one way I know I have been glutened... I will be sitting in a chair one minute and sound asleep the next!! Can NOT keep my eyes open!! It is like I have been drugged. NOT fun!

Judyin Philly Enthusiast
Gluten makes me very sleepy, but I have a hard time going to sleep and I wake up a lot during the night. I think it's becasue gluten makes me very anxious for no reason... and no matter how tired I am, my body just has a hard time shutting itself down at night.

<{POST_SNAPBACK}>

Carriefaith,

I'm so new to this site so don't know if I can get a responce from you even if you post one..I too get so hyper...I feel like my insides are stuck in neutral and running 1.000 miles per hr. Can't seem to calm down. I thought being 'gluten' made you tired, sluggish, and foggy. I've got so much to learn. Have been gluten free for 11 weeks then antibiotics, allergic reacton, trip to ER for breathing difficulty and HIVES the treatment was predizone and antihistimine...the predizone made me more hyper and couldn't sleep but 2-4 hrs a nite for 10days. feel like that again after eating a soup I made from BBQ'd chicken with soy sause marinade I thought was gluten-free and now know it had wheat...been on sites tonight to find the tamari...solution. So glad you posted about the hyper issue haven't seen that before or in my readings.

Thanks so much. You can always email me cause i might not find you again.

judyin philly

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Anne G's topic in Related Issues & Disorders
      2

      celiac disease and braces

    2. - Aretaeus Cappadocia replied to Ginger38's topic in Related Issues & Disorders
      26

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Lotte18 replied to Lotte18's topic in Publications & Publicity
      2

      Prospective CRISPR research

    4. - Aretaeus Cappadocia replied to Lotte18's topic in Publications & Publicity
      2

      Prospective CRISPR research

    5. - trents replied to Healthierbody2026's topic in Related Issues & Disorders
      15

      New at gluten sensitivity

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,704
    • Most Online (within 30 mins)
      7,748

    Gordon French
    Newest Member
    Gordon French
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Your concerns are reasonable about the celiac risk aspect, and getting additional medical input is a good idea. Obviously I don't know the extent of your child's misalignment, but please don't think of it as just a cosmetic issue. Braces improve bite alignment and typically provide long term health benefits.
    • Aretaeus Cappadocia
      I watched my spouse go through shingles before the vaccine was available for "younger" people, so I got the vaccine as soon as I could. It really knocked me down too, especially the second dose. Even with that, if necessary I would take that vaccine every year to avoid getting shingles. Luckily it's a lifetime benefit though.
    • Lotte18
      Hi Aretaeus, Thanks for posting these articles.  The second of the two relates to my query.  Last week there was a podcast by the Washington Post with the director of the NIH and CDC.  Both institutions are now headed by one guy, Dr. Bhattacharya.  He claims that research funding for rare diseases has NOT been cut.  The question still remains, how do we get Celiac on their radar when of course we are competing for dollars with all kinds of other diseases?  Are people in our community interested in a CRISPR cure?   It seems to me CRISPR works at odds with big pharma because it actually IS a cure.  You wouldn't have to take a drug to suppress T cell inflammation for the rest of your life.  CRISPR is supposed to permanently rewrite your DNA.  I assume we would really need the NIH to fund that research, not rely drug companies.  Dr. Dounda, the brilliant microbiologist, who won the Nobel for her research, making CRISPR possible, thinks that the hefty price will diminish as treatment migrates from bone marrow transplant to infusion therapy.   Because Stanford University started studying celiac and CD8 cells a few years ago, I was curious to see if any progress had been reported.  What I found was a proposal to create a CRISPR platform for celiac by Theresa Flores.  I haven't found anything that states whether or not she got funding.  If anyone at Celiac.com has seen something, please let me know before I start composing a letter to Dr. Bhattacharya.  Not that one little voice in the wilderness is going to move the needle.  If others would also like to write to him, or help compose a joint letter, that would be great.  
    • Aretaeus Cappadocia
      I saw your post and it made me curious so I did a little online research. While I could not find "Theresa Flores" or any human celiac CRISPR studies, I found 2 articles that are perhaps relevant to your questions: 1. "T cell receptor precision editing of regulatory T cells for celiac disease" Mar 2025  (https://www.science.org/doi/10.1126/scitranslmed.adr8941). "Cell Therapy for Celiac Disease. The cover image shows CD4+ T cells (green) engineered to express a gluten-specific T cell receptor (TCR) in the duodenal mucosa and Peyer’s Patch of a mouse that received an oral administration of gluten. B cells are shown in red, dendritic cells in white, and nuclei in blue. Currently, the only approach to manage celiac disease is a strict and costly gluten-free diet, highlighting the unmet need for therapeutics. Porret et al. opted for a cell therapy approach by engineering regulatory T cells (Tregs) to express a gluten-specific TCR. They found that these engineered Tregs could suppress conventional gluten-reactive CD4+ T cells in vitro and in vivo after exposure to gluten. These data suggest that engineered Tregs already in the clinic for other disease indications may offer a cell therapy for celiac disease." In other words, in a mouse model of celiac, researchers were able to demonstrate creation of genetically modified cells that block a key step in the celiac pathway. This shows some promise for making it into human trials. 2. "CRISPR Clinical Trials: A 2025 Update" Jul 2025 (https://innovativegenomics.org/news/crispr-clinical-trials-2025/) This review did not mention any human CRISPR studies related to celiac disease. 
    • trents
      @Healthierbody2026, so you say here that you were diagnosed a few years back but in your first post you say you were recently diagnosed. I am totally confused!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.