Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Not Trying Enough New Foods...scared Of Allergies..
0

65 posts in this topic

Since august I have had a very limited diet. I'm getting fed up now and I know i have to add WAY more stuff than i'm trying but i'm scared. Most of which involve nuts. I want the protein...and I want the calcium in almond milk and i'm scared to try. I've heard celiacs can end up having way more problems than just their celiac and i dunno what to do. I'm scared to try stuff. I definitely need more calcium and i'm going to eat greens but it's not enough for me personally. I'm scared to have dairy right now. Is there a way to tell if you have an allergy to nuts..like anaphalactic etc without having to ingest it? I want to have almond milk...eat peanut butter etc. But i'm nervous to re-introduce this stuff...I know I'm being foolish here and overly worried but...*sigh*

0

Share this post


Link to post
Share on other sites


Ads by Google:

You can do the skin prick allergy testing for things you feel you might be allergic to. Mostly, though, we are just extremely sensitive to foods initially until we can get some healing going. But if you think you might have allergies to specific foods you should consult an allergist and get some testing done.

0

Share this post


Link to post
Share on other sites

I had allergy testing done in 2006 but I dunno if I had celiac back then. I THINK I've had it since i was a child and was misdiagnosed with irritable bowel but i'm not sure. Right now I'm all lean ground beef, salmon, cod, black beans, chickpeas, carrots, cabbage, garlic, onion, broccoli, ore ida fries, minute rice,Kettle brand sea salt chips, sometimes Rice Chex (plain), kidney beans sometimes and i just tried SOME parsnip the other night.

Do I have to watch the wheat skin prick? I don't want to be glutened or anything.....

My husband eats peanut butter and all kinds of stuff and i've never reacted from kissing him.....good sign?

0

Share this post


Link to post
Share on other sites

In general I just find i'm antsy everytime i try a new food. I just tried sweet potato again...just a couple tablespoons and my anxiety is sky high i'm nervous right now. But i felt like this when i tried broccoli and i can have a cup of green giant broccoli florets no problem now. I'm just sick of being scared to try foods because i'm scared i'll have some kind of reaction :(

0

Share this post


Link to post
Share on other sites

I live with this on a daily basis... even with foods i know are safe for me. A couple of tidbits that i use: I always keep benadryl on hand and in a place where i can easily get to it (i have relatives who have major allergies to things so i know the drill on this one) and i always have some in my backpack and purse.

Skin tests can be helpful.

Another way to test is to take something (such as peanutbutter for an example) and put a bit on your wrist and let it sit there for a while. If there is an issue you will probably hive up in that spot. I've heard this is what mothers do to test their young children for peanut allergies.

Any major allergic reaction will happen within 30 minutes of consumption or so. Anything after that will probably be mild and easy to deal with.

I generally don't retry anything when i'm by myself, for just because reasons.

Edit: you won't be glutened by a skin test (shouldn't anyway).

0

Share this post


Link to post
Share on other sites




What kinds of reactions have you had in the past the makes you so anxious when you test something new?

0

Share this post


Link to post
Share on other sites

Early august my husband made a pizza at home..gluten free on schar crust with tomato paste with mccormicks spices (not blends...just pure spice), cheese....next day i had mucus and diarrhea...wasn't feeling great the night before either. I know it could have just been the dairy but...i've been paranoid about salicylic acid even though i was having a TON of bruschetta for about a month before that happened....and i've heard so much about sooooo many people on these boards having reactions to other things that i've become terrified. I'm terrified of being sick because of stuff that happened to me years ago...it's a major phobia. So you can only guess how great i took it when i found out i had celiac.

0

Share this post


Link to post
Share on other sites

Okay, sorry, didn't mean to pry into personal things. There are things we all have experienced in the past that affect our current reactions to things.

One thing to keep in mind that there are "reactions" and there are 'reactions'. We all react, and have interpretations of our reactions in different ways. For some it is a big drama, for others, well it was a reaction but hey, I'll get over it, it's not going to kill me. So don't listen too closely to other people's reactions, just concentrate on your own. If you get a reaction to a food, does it put you out of action for a long time, or is it something you can manage with a little help. If it's diarrhea and bloating, well it's maybe worth a bit of that to find out if that food is a problem. Just do it on a day when it won't be too much of a problem.

If you had been eating a lot of tomato you might have really overdone the tomato and that could be what caused the problem. That's what kept happening to me, the more I cut out the more I would focus in on one particular food, and then I would eat so much of that food that I became sensitized to it. So, to the best of your ability, it is best to rotate your foods as much as possible.

It also sounds like you still have a leaky gut and you could probably utilize a good probiotic, some pancreatic enzymes to aid digestion, and some L-glutamine to help you heal. But if you do try these, try one at a time to make sure you do not have a reaction to any of them. Healing the gut and helping out your poorly functioning digestive system with enzymes is the best way to get back on track that I have found.

Be aware, too, that there is more bio-available calcium in greens than there is in milk. You might try hemp milk from Trader Joe's (one place I know that carries it) instead of the almond. It is also deliciious.

0

Share this post


Link to post
Share on other sites

I've heard too many stories of trader joe's products having cross contamination that i pretty much won't try them. But, my big fear is nausea...stomach ach...throwing up. It's a major fear. I can deal with loose bowels but i also felt sick to my tummy. Having anxiety about that it really has messed me up to this day. Only now have i calmed down a little from earlier after trying the sweet potato. After giving up foods that started bothering you did you find you could re-introduce again after a few months or anything? I really want to be able to eat tomato and peppers again.

0

Share this post


Link to post
Share on other sites

So I'm going to be the crazy one who suggests talking to a psychologist about this phobia.

If you do not have a family (or personal) history or allergies (and the reaction to the pizza you describe is NOT an allergic reaction), then this is not a rational phobia (<-- haha, I wasn't intending to sound quite like that), and it's negatively impacting your life.

Quite frankly, food allergies are NOT common. And 90% of food allergies come from the top 8 allergens. Broccoli is not on that list, nor is sweet potato. (The top 8 are: wheat, dairy, tree nuts, peanuts, fish, shell fish, soy, and egg.) The vast majority of allergies to food are NOT anaphylactic. And you do not cite any personal history with food allergies. There is also no scientific evidence (that I'm aware of) that celiacs have a higher incidence of food allergies.

You do hear a lot about folks on this board deal with having to eliminate other foods. But the vast, vast majority of those are not food allergies, but other intolerances, and intolerances do not lead to anaphylactic shock.

And, finally, this board is NOT representative of the average state of health of celiacs. Those who are the most motivated to make changes and get additional information are not the people who are the healthiest and have the least problems to resolve. So we get here a collection of people (though absolutely wonderful and helpful!) that far over-represent the more difficult, complicated, complex cases, including things that have nothing to do with celiac. Those of us on the board who are fairly simple - just celiac or just celiac and one other common food avoidance - heck, even we don't post all that often; we're boring. :P

But I'm guessing you know these facts, and that doesn't make you feel any better. Nor does knowing all these facts make you more inclined to try new foods. Nor does knowing all these facts make you feel less anxious when you do try something new. And so, I would suggest that you talk to a psychologist who is trained in helping people with phobias.

0

Share this post


Link to post
Share on other sites

As for still having leaky gut..i only cut out gluten in may so i really wasn't far into this. I was just baffled because i was eating everything i wanted to eat..amy's food's and everything without issue for those months between may and august.

0

Share this post


Link to post
Share on other sites

Tarnalberry..my fear comes from hearing people say that you are more likely to develop other food allergies if you are celiac. Actual allergies. But I am also scared of other intolerances but allergies are obviously very scary.

0

Share this post


Link to post
Share on other sites

Tarnalberry..my fear comes from hearing people say that you are more likely to develop other food allergies if you are celiac. Actual allergies. But I am also scared of other intolerances but allergies are obviously very scary.

But there is no evidence you are more likely to develop actual allergies.

Heck, I haven't even heard that on here. (Intolerances, yes, not allergies.)

And if it's a fear that is making that big of an impact in your life, it's important to confront it and learn how to manage it. Heavens knows I would need help with that too! (As I have about other things.)

0

Share this post


Link to post
Share on other sites

Some people describe celiac as an allergy too. A lot of folks when they talk about foods they react to call them allergies when they are actually intolerances. Diarrhea and bloating does not come from an allergy. An allergy will cause hives and rashes and anaphylaxis and you will definitely know if you are allergic.

ETA: Tarnalberry and I were posting together. I agree with her that it might be useful for you to get some help with your food anxieties. Sorry you are going through this {{{{hugs}}}}

0

Share this post


Link to post
Share on other sites

My husbands aunt also talked about allergies to asperin (she has celiac too) and said that allergy testing will often not show everything and be masked by the asperin/salicylic acid allergy. So I'm confused what I should do. Say screw it all and just....drink some almond milk? lol

0

Share this post


Link to post
Share on other sites

But since starting to read different topics on this forum i most certainly have seen the allergy thing pop up. But perhaps they were misusing the phrase I dunno.

0

Share this post


Link to post
Share on other sites

Quite a few posters see an allergist for skin testing to find out what foods they are sensitive to. It doesn't mean they are allergic to them all - depends on how strong the reaction is. Twenty years ago I tested sensitive to soy and corn. Didn't take much notice at the time, but I definitely am, but not allergic.

0

Share this post


Link to post
Share on other sites

Actually, allergic reactions can be more than just hives/swelling/throat issues. Another sign is full on body burning. That is what i go through with tomatos, though when it happens its mainly isolated to my head/face/neck/sholders (which i later got a hive reaction to doing a skin test). I spoke with the head of the allergy department at the hospital i go to and he stated that that was indeed one. Yet another is numb tongue and lips. It varies from person to person, but they are indeed rare.

0

Share this post


Link to post
Share on other sites

I guess a better way of describing what happened is this....

I had my reaction....and after that I was getting a lot of upper tummy pain and just generally not much appetite for about week. I tried having ketchup with fries after that and got really heartburny. So I figured tomato would probably be a no no at the moment. But I ended up going so long not eating certain things...i'm scared i'll go back to them now and have a reaction to things i didn't even have reactions to before you know?

0

Share this post


Link to post
Share on other sites

I was on a limited diet so long i'm scared i'm suddenly sensitive OR allergic...pick one. lol

0

Share this post


Link to post
Share on other sites

For instance..i really want to try making tahini to get more calcium along with greens. I don't think i can eat like 3 cups of greens a day realistically. I know sesame seeds are high in it...but...i hear so many people have problems with them...i don't THINK i ever had issue with them? But....who knows. I just really want to be able to eat healthy again.

0

Share this post


Link to post
Share on other sites

To be perfectly honest here, food scared the heck out of me (like panic over trying a new food) and I am beyond terrified of being nauseous or throwing up, this went on for over a year until one day I looked at my kids and decided I didn't want to teach them to be afraid of food. For me, I just had to bite the bullet and try it, at first I would make sure my oldest was at her grandmas and the bathroom was freed up (youngest is still in diapers) and after eating the food I would panic. After multiple times of not having a reaction to every new I tried I am getting a bit braver. I still have some issues I'm working through when it comes to food panic, but there is definite progress.

I guess I was hoping this may encourage you some and when you decide you are ready to not let food panic have the control just make sure you have a plan, that way it won't feel so daunting at first. Also remember that after being scared of food, it will take time to not be afraid of it anymore.

0

Share this post


Link to post
Share on other sites

Yes, once you have started reacting to a food like tomato you had best leave it alone for about six months. I haven't actually tried any in a couple of years but this summer, from my own garden, I am having a BLT :) This is why (from experience) I recommend that you rotate your foods and don't eat the same thing every day (if you have enough safe foods to do that :) ) Which is why you need to deal in some way with your fears, IMHO, so you can add some additional foods into your diet. If it is not something you have ever had an issue with, give it a try - don't worry about what others have issues with.

1

Share this post


Link to post
Share on other sites

Welcome to my life :)

Chocolate is on my no-go list at the moment due to a weird reaction to ice cream with it (dry mouth/throat for 4+hours with no relief). I thought about trying it when i was at home last week, but was too sick, so sweet potatos took that place.

As of right now i'm not eating:

spinage (gave me massive "D", i think it was mainly because my system was taxed after a stomach bug)

green beans (adored these as a child, made my tongue numb twice, so yeah no more for me)

My doctors know of my issue with food and just tell me to try. Baby steps, baby steps.

0

Share this post


Link to post
Share on other sites

So I'm eating beans for protein each day....sometimes i have meat but don't wanna overdo it especially with beef....should i not be doing this then?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,344
    • Total Posts
      917,398
  • Topics

  • Posts

    • Weird Reaction
      Hi Richard Glad you are feeling better!   Sorry - DX is an abbreviation for diagnosis.   Thanks so much  for the info about MSG, broccoli and IBS.  Like you say, there is v. little bad press about broccoli. My aunt, who is a farmer's wife, put forward another theory that it might not have been the broccoli itself but rather some insecticide a farmer sprayed on it.   I just can't bring myself to try organic broccoli however...  Thankfully cauliflower is fine.  I just can't figure it out as I thought they were the in the same vegetable family?  So maybe it is MSG. Regarding anemia, there can be a link with iron anemia and anxiety. http://www.livestrong.com/article/471225-iron-anxiety/ And I was definitely breathless before my diagnosis; I remember finding myself  walking up a hill behind a  huge crowd of friends on a church walk, and many of them were at least 20 years older than me, and wondering why I was in last place! My B12 levels were very low at DX and I found B12 supplements helped enormously with anxiety.   I remember drinking Berroca and feeling so much better within hours of drinking it, on more than one occasion, before even understanding the link. I have just been told however that I can't take any more iron because my hemoglobin is on the high side.  It is a good thing my doctor was monitoring my supplementation as I gather too much iron can be dangerous.  Have you been told to supplement by your doctor?  If you are supplementing make sure you get your levels monitored. All the very best - and welcome to the forum!    
    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
      Okay, I get that you are not going to follow the advice from some stranger on the internet, but please read the links that I gave you.  Your doctor is not following the standard level of care.  I am dead serious.  I have Kaiser.  My own GP doesn't have a clue about celiac disease, but my Kaiser GI does.  Please, I urge you to get properly diagnosed.  All celiac testing requires you to be on a gluten diet.  If you go gluten free even for two weeks (it will take time to get the referral and appointment), it will mess up the tests.  Your GI will put you back on a gluten diet (called a gluten challenge) for 8 to 12 weeks.    Chances are (almost 100%) you will feel more miserable!  That will just delay your diagnosis.   Symptoms not bad you say?  I had pretty severe anemia, but no tummy issues.  Two months after my diagnosis, I fractured my back DOING NOTHING!  Yep, I have osteoporosis from undiagnosed celiac disease and I am an athlete!   Please take this seriously!    
    • Silent Celiac or Non-digestive symptoms
      Oh, you might learn how to tell if you had been glutened.  I just had anemia as my main symptom.  I did not have any tummy issues at all.  I was in shock when my doctor even suggested testing me for celiac disease!   Glutenings can vary as we are all different.  For some it is just a few days, others a few weeks and others months (that would be me).  My last official glutening as supported by follow-up antibody testing lasted for three months.  Guess what?  I had vomiting, abdominal pain, the works!  Funny how celiac disease can change and evolve over time.   Welcome to the forum!  Have some patience and learn all that you can.  The good news is that you can feel better and no medications are required!  
    • Confused
      Thank you for the information. I've been not sure if I should eat gluten or not right now. Dr. said I should watch what I eat when I emailed him the question. My symptoms aren't very bad (I understand that doesn't matter for celiac disease), so I can definitley tolerate the food. But I have been starving myself the last few days due to not knowing what the heck is going on. Thanks again.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,478
    • Most Online
      1,763

    Newest Member
    Andrew Miller
    Joined