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Burgers And Fajitas
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I was diagnosed this week with celiac by a routine blood test and am trying to wrap my head around going gluten free. I've seen a lot of posts about cross contamination that make me believe some of my doctors advice about eating out might be a bit lacking in accuracy. I was told "just take the bun off the burger" or "order the fajitas and just eat the meat and veggies out of the tortilla." From what I've been reading, it seems as if the meats have touched the buns so to speak, they are no longer safe? I don't (extremely thankful) have much, if any "noticeable" reaction to gluten (although I now know whats going on inside my body) so I don't know if I would have any idea if I was glutened. Sorry if this is an obvious question. I'll be learning quickly I'm sure! Thanks in advance for your responses.

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Sounds like your doctors don't know much about Celiac. Look up " celiac centers" and see what the experts say. They will all tell you that no gluten, even the small amount that sticks to a burger or is in the soy sauce the chicken is marinated in, is safe. Here's one to get you started.

http://www.cureceliacdisease.org/living-with-celiac/guide/treatment

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Hopefully, soon your body will be warning you when you make mistakes. Mine took about 4 days of a gluten free diet before it really started bellyaching when I goofed. Other than that you can learn alot here, and in time you will know how to handle it.

Diana

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Yikes! No, no. You can never do this. Once I got a burger patty to go for my daughter. I told them that I wanted just the patty but they put it on a bun. This was not long after she had been diagnosed. Thinking I could be smart, I took the bun off, rinsed the patty in the sink and reheated it. She got sick as a dog.

You also have to ask about fajita meat in a restaurant. I know it sounds silly but some places use a marinade that contains soy sauce and soy sauce usually contains wheat. You can get gluten-free soy sauce but most restaurants won't have it.

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Hi RedRaider,

I am in the same boat. About a week ago I started on the gluten free diet because of those symptoms.

I've learned so far that you need to be *SURGICALLY* clean about avoiding gluten. Even a crumb of bread will have a reaction.

It makes for dining at a burger place difficult. I guess you could ask them to change their gloves before making your burger, but cross-contamination in that environment seems likely.

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(1) please find a doctor who has more knowledge about celiac. They are out there.

(2) you should not "just take the bread off," as it will still be contaminated by gluten. Even if it does not seem to make you sick, it could be damaging your intestines.

(3) There are places to eat out, but you have to do your research. As far as chain restaurants, "Five Guys" burgers is great because they cook the burgers and buns separately and have a dedicated fryer for the fries. Plus their kitchen is open so you can watch and make sure everything is done properly. They automatically change gloves when I request "no bun," and I bring my own gluten-free bun to use. I know people also like Red Robin for good gluten-free practices, but we do not have that in my area. I am fortunate that there are two local burger joints that offer gluten-free buns and have a separate prep area, so I feel safe eating there, too.

(4) Fajitas are tricky, because a lot of them are marinated in soy sauce--again, you'll have to do a bit of research. I learned when going to a work function that the "Uncle Julio's" chain marinates all their grilled meats in (wheat) soy sauce, so I ate at Chipotle beforehand for my mexican fix. I also learned the hard way that some restaurants make their margaritas with beer! Good luck, and you will feel better, I promise.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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