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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Burgers And Fajitas
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7 posts in this topic

I was diagnosed this week with celiac by a routine blood test and am trying to wrap my head around going gluten free. I've seen a lot of posts about cross contamination that make me believe some of my doctors advice about eating out might be a bit lacking in accuracy. I was told "just take the bun off the burger" or "order the fajitas and just eat the meat and veggies out of the tortilla." From what I've been reading, it seems as if the meats have touched the buns so to speak, they are no longer safe? I don't (extremely thankful) have much, if any "noticeable" reaction to gluten (although I now know whats going on inside my body) so I don't know if I would have any idea if I was glutened. Sorry if this is an obvious question. I'll be learning quickly I'm sure! Thanks in advance for your responses.

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Sounds like your doctors don't know much about Celiac. Look up " celiac centers" and see what the experts say. They will all tell you that no gluten, even the small amount that sticks to a burger or is in the soy sauce the chicken is marinated in, is safe. Here's one to get you started.

http://www.cureceliacdisease.org/living-with-celiac/guide/treatment

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Hopefully, soon your body will be warning you when you make mistakes. Mine took about 4 days of a gluten free diet before it really started bellyaching when I goofed. Other than that you can learn alot here, and in time you will know how to handle it.

Diana

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Thanks for the info. I have a lot to learn going forward.

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Yikes! No, no. You can never do this. Once I got a burger patty to go for my daughter. I told them that I wanted just the patty but they put it on a bun. This was not long after she had been diagnosed. Thinking I could be smart, I took the bun off, rinsed the patty in the sink and reheated it. She got sick as a dog.

You also have to ask about fajita meat in a restaurant. I know it sounds silly but some places use a marinade that contains soy sauce and soy sauce usually contains wheat. You can get gluten-free soy sauce but most restaurants won't have it.

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Hi RedRaider,

I am in the same boat. About a week ago I started on the gluten free diet because of those symptoms.

I've learned so far that you need to be *SURGICALLY* clean about avoiding gluten. Even a crumb of bread will have a reaction.

It makes for dining at a burger place difficult. I guess you could ask them to change their gloves before making your burger, but cross-contamination in that environment seems likely.

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(1) please find a doctor who has more knowledge about celiac. They are out there.

(2) you should not "just take the bread off," as it will still be contaminated by gluten. Even if it does not seem to make you sick, it could be damaging your intestines.

(3) There are places to eat out, but you have to do your research. As far as chain restaurants, "Five Guys" burgers is great because they cook the burgers and buns separately and have a dedicated fryer for the fries. Plus their kitchen is open so you can watch and make sure everything is done properly. They automatically change gloves when I request "no bun," and I bring my own gluten-free bun to use. I know people also like Red Robin for good gluten-free practices, but we do not have that in my area. I am fortunate that there are two local burger joints that offer gluten-free buns and have a separate prep area, so I feel safe eating there, too.

(4) Fajitas are tricky, because a lot of them are marinated in soy sauce--again, you'll have to do a bit of research. I learned when going to a work function that the "Uncle Julio's" chain marinates all their grilled meats in (wheat) soy sauce, so I ate at Chipotle beforehand for my mexican fix. I also learned the hard way that some restaurants make their margaritas with beer! Good luck, and you will feel better, I promise.

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    • Allergy or Preference? Waiter asks
      At my local Five Guys, I told the counter guy that I had to avoid gluten for medical reasons. I was ordering a burger with no bun and some fries. He yelled back "Allergy Alert!" and every line cook immediately changed gloves and cleaned their work space. Will I go back? You bet I will!
    • celiac disease is psychosomatic
      The office is located in another city than location I went to. There is no receptionist at the location closest to me meaning patients wait for the doctor to open her closed door to call their name for a consult. So, I would have to knock on her door which would really make her say that I'm sick since I keep writing letters AND showing up in person. The main office is too far for me to travel with construction going on for the remainder of the year. I suppose I could mail the letter instead. But the staff is very irresponsible so it might be thrown away. The doctor probably told them that nothing needed correction in my records so ignore further requests from me. The other staff member I dealt with seemed normal, but I complained to the doctor about the staff member I dealt with today when she failed to update my phone number that I gave to her a few times (and which she said she updated), which resulted in me showing up for an appointment one of the testers thought she canceled by leaving voicemail for phone number I no longer had. What I mean is I told the doctor that the staff member said she updated my phone number when the doctor asked me why I was there when I showed up for that cancelled appointment. Unfortunately, this staff member answers the phone most of the time. I'm sure she did what she could to make me look bad to the doctor to make her look good because I complained about her. I guess if staff members seem crazy, it's a good sign the doctor is also crazy. 
    • celiac disease is psychosomatic
      The letter I am suggesting has nothing to do with the doctor.  I would type it and walk it to the desk when are in the building for your other appointment. 
    • celiac disease is psychosomatic
      Thanks. I'm not sure if the doctor will read another email I send and that's the way I'm told by staff to contact her. It will just confirm that I keep writing her letters although I only sent her one email about it! I already told the staff and her that I didn't want my medical records sent to any doctor's office, but I don't know if they will do it out of spite. It was scary talking to this doctor because she wouldn't listen or let me get a word in...I guess that's the reason why I feel the need to raise my voice at this office. When I requested a Lyme disease prescription from another doctor years ago before I knew I had celiac disease, this ignorant doctor told me not to come back to his office because there's no such thing as Lyme disease so only crazy people think they have it. I thought that was the worst experience I had with a doctor, but this experience was worse. I mean this neuropsychiatrist kept calling me a sick person over and over. It's so scary dealing with doctors like this. I really don't know how many other doctors may have wrote in my records that my symptoms are all in my head because celiac disease isn't real.   And my neurologist said this neuropsychiatrist was great. Maybe he says that about all the doctors he refers to patients to? I don't know if you call her personality psychopath since she appeared really nice during my consult, but she was thinking all this negative s*** in her mind at the time or different than she appeared to be.
    • Nature's Bounty Protein & Vitamin Shake Mix
      Sort of funny.  Says no wheat at the bottom but also says this " Other Ingredients: Proprietary Protein Blend (Soy Protein Isolate, Whey Protein Concentrate), Cocoa (processed with alkali), Inulin, Oat Fiber, Fructose, Natural Flavors, Maltodextrin, Soy Lecithin, Tricalcium Phosphate, Xanthan Gum. Contains milk and soy ingredients. Contains wheat ingredients.   I bet they do not use gluten free oats, so its a bit of a gamble.  Not one a Celiac should take as there is no such thing as "not severe Celiac".  Even if you don't feel the damage, consuming gluten will start damaging you.  Maybe its just catching up with you.
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