Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extremely Confused Due To Symptoms.

ElianRiddell

Recommended Posts

ElianRiddell Newbie
ElianRiddell
Posted

Hi all,

This amazing forum helped me diagnos myself (or at least help me put my doctor on the right track) I'm lucky enough to have my doctor be my uncle (so he actually listens to me and he's very open to my opinion and trying nearlly anything to get my skin under control) and finally after a year I had a blood test done and came back wheat intolerant (found out three months ago) so far he has me on an antibiotic for possible infection under my skin, I'm also on a wheat/dairy/fish free diet (blood test came back intolerant to all three) and so far it's certainly healing but recently I've started to question certain symptoms on my skin that are making the healing difficult.

The first and most confusing (haven't been able to find anything on it) are these varying in size (from a pimple to an inflamed mosquito/flea bite) lumps I get under my skin, they're close enough to the surface to see the lumps but when I squeeze them nothing really comes out they're also painless - just really itchy.

Sometimes they leak a fair bit of clear fluid, sometimes it's just blood (if I squeeze the blood blotches around the lump on my skin and takes a day or so to fade) one guess was that my skin tissue is becoming inflamed because when I squeeze these lumps they make a popping noise under the skin (it's quite loud as well) which I assumed was the sound of tearing my skin tissue.

They're situated almost everywhere on my body, but they cluster on the back side of my thighs, buttocks, tailbone/slighty above the buttocks, mid to lower back, shoulders and just above my belly button.

The ones that are worrying me however are defieantly the ones on my buttocks, thighs, tailbone and sides of thighs and belly because they itch ALL THE TIME where as the rest of my body only tends to itch on occasion.

Since they itch so much I end up scratching them off, making the skin in the area leak clear fluid (really wet) and leaving red "holes" that scab/bleed/itch even more, I'm confused because I haven't been able to find a close enough description of these symtoms anywhere - please help me identify what's wrong. (I'm thinking of asking my uncle/doctor to put me on dapsone?) Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Did you have the celiac panel blood test, or the foods intolerance testing?

ElianRiddell Newbie
ElianRiddell
Posted
  • Author

Did you have the celiac panel blood test, or the foods intolerance testing?

I'll have to talk to my uncle, I'll be seeing him in the next week so I'll find out.

janpell Apprentice
janpell
Posted

I just wanted you to know that my sister has the exact same thing as you and was diagnosed with MRSA. She is frustrated with it because it takes awhile to heal but she pretty much is cleared up. She did a couple rounds of antibiotics but went to a more holistic approach which is working well for her.

A clean diet will do wonders for you. Myself, I go gluten, dairy, soy, sulphite, peanut, free. And have a huge list of foods that have to limited and rotated. Food is just a habit.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,141
    • Most Online (within 30 mins)
      7,748
    smkatin
    Newest Member
    smkatin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.