Gluten Is Ruining My Life
Posted 29 January 2013 - 04:59 PM
My name is Eli. I came here because I don't understand what it's happening to me. I was diagnosticated gluten sensitivity one year ago. I couldn't meet with my doctor because I had an kitchen accident. I couldn't walk for a month. Then I started univeristy and work so I forgot it. I admit it was a really irresponsibility for my health.
My lifestyle was not like anything that has to carry a person allergic to gluten. Whether it cost me to accept at first, because I was living alone and gluten free food is more expensive than normal food or just because I'm a little careless with myself. Anyway it was a shock, a really emotional change in my life and I couldn't accept it easily.
My subconscious was telling me phrases like why is this happening to me? It won't be nothing if I eat only a little gluten or on Monday I'm going to start the gluten free diet. Or just with the stress of modern day I forgot it. I was not going for then some tummy aches.
A friend of mine came to Spain about 2 or 3 month ago. As He didn't have house I told him that he could stay at my house these days. Instead of staying in my house he invited me for lunch and dinner every day.
A few weeks ago I thought I should start gluten free diet seriously , but it was because of or despite invitations from my friend (I was sleepless nights, with diarrhea, stomach pains very strong, severe memory failure, severe lack of concentration, changes moods, bad mood, anxiety etc. ..) I said enough is enough and I'm going to take this seriously.
Although this is costing me a lot. I tried to avoid gluten. I do not eat or have dinner out, I use my own utensils to clean my cutlery and my glasses, etc etc. But all this seems useless. I Think I must have gotten worse. Besides all this I think I am probably lactose intolerant too.
I know what will be the answer to my letter: see the family doctor and he refer you to a specialist. And this is what I have tried already once. I think very strong so incompetent that some doctors can become (or seem).
I explained my case to my doctor. All that I have explained to you and more. The doctor, who is about to retire and has 40 years in medicine (that is what he said to me) and think that youth people likes to complain, just told me to follow a gluten free diet (as if that was easy or sufficient) and he told me that I would some concern or some problem in my life that it would make me anxiosly (that although everyone always has something in his head or something to think about, in my case nowadays I have no current or'' no problems'' ... oh well maybe I have one, the only one I have is the only one I've told him and is the only one that he don't know how to solve: the issue of gluten.
He told me I will come back in two weeks ( I'm going tomorrow with a friend) I told him, refer to me to a specialist but no way. Tomorrow I will say it again and if he don't solve anything like before I will change my doctor.
I know I don't have cancer or some incurable disease. But that it does not mean that i'm good and nowadays I need a doctor that really helps me.
Last Thursday I woke up with very bad mood. No sense. I had slept 8h. Had slept well. But I sat all bad. I was super sensitive and I do not fight with anyone because I told myself: Eli, you don't know why are you like this, everything that people is telling you feel bad. It's all in your head so even if you can not find the solution for now, at least avoids fight with others that do not say bad things to you.
The only thing different in relation with other days is that the previous day you had drunk several cups of milk, cheese eaten enough, and also eaten 6 or 7 yogurts.
I was looking for informacion on Internet a few months ago in English the effects of gluten not only in the stomach but in the brain and the immune system overall and in all organs. I'm from Spain but there is little big informacion in Spanish . Not opinion blogs but websites popular science or medicine. I read that many mental illnes such as autism and others, are related to food and gluten but obviously there is also an important genetic component.
I don't know if the effects of consuming much lactose for lactose intolerant person will be similar to the effects of gluten for celiac people, and I'm already a little burned to find a little more information and give even more over the issue. Tomorrow I am going to the doctor so I hope he refer me to a specialist but other doctor derive me.
If you don't answer it's okay, I guess you may think I'm really crazy (I'm already starting to think it) but I just needed somewhere to explain what it's happening to me. I guess you will think I'm crazy less than most people I know if I told them this.
In the end I do not know if I'll be going crazy or not ... but I just want to find what it happens to me and to settle it or help me fix it.
I feel nothing since a few years. No pain, but also no enjoy, there's no ilusion for life and living it and motivations. All this with having mood swings like last Thursday that I sometimes get.
After lunchtime sometimes (do not eat gluten ) I feel a little sleepy at the first moment. After a while I get a lot of anxiety, bad mood, want to cry, a lot of bad mood with a lot of sadnes, desire to fight with the world .. Unexplained anxiety growing. Brain fog.
I just want to be normal again. As I don't like the word ''normal'' I will say I just want to feel alive again. Feel good. feeling something.
Thank you very much to anyone who has spent a few minutes to read this post.
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Posted 29 January 2013 - 07:33 PM
Posted 29 January 2013 - 08:30 PM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 29 January 2013 - 08:53 PM
You have come to a place that completely understands. Your frustration is understood.
You need to live gluten free - once you get through the very difficult process of removing it from your life -- you will feel better and finding healthy food for your body will become simple -- it just takes time.
Let us know how we can help
Has llegado a un lugar que entiende completamente. Su frustración se entiende.
Tienes que vivir sin gluten - una vez que pasar por el proceso muy difícil de sacarlo de su vida - usted se sentirá mejor y encontrar comida saludable para su cuerpo se convertirá en simple - sólo se necesita tiempo.
Háganos saber cómo podemos ayudarle
google translator is a bit better than me -- hope this make sense to you
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
Posted 30 January 2013 - 08:19 AM
Algunos de partida las extremidades de la dieta gluten-free por los primeros 6 meses:
Hágase la prueba antes de iniciar la dieta libre de gluten.
Obtenga su vitaminas / minerales probadas niveles también.
No comer en los restaurantes
Coma sólo alimentos integrales no procesados los alimentos.
Coma sólo alimentos que cocinar uno mismo, pensar en los alimentos simples, no comidas gourmet.
Tome vitaminas gluten-free.
Tome enzimas digestivas.
Evite los productos lácteos.
Evitar los azúcares y los alimentos ricos en almidón.
Evite el alcohol.
Some starting the gluten-free diet tips for the first 6 months:
Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid sugars and starchy foods.
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Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
Posted 30 January 2013 - 09:06 AM
Celiac can affect your mood and cause depression. You may need to eat gluten-free for a few months to see an improvement in that area. I have been eating gluten-free for 6 months and I am still noticing health areas that are improving.
Try looking at the paleo diet for a while. It restricts grains, and you eat lots of whole foods so it is not as expensive as buying pre-packaged foods. As for your lactose intolerance, that is very common amoung celiacs but many find they are able to consume milk again after a few months or year. Hang in there.
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012
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