Jump to content

Skylark

Advanced Members
 View Profile  See their activity

  • Posts

    5,198

  • Joined

  • Last visited

  • Days Won

    79

Skylark last won the day on July 13 2012

Skylark had the most liked content!

30 Followers

  • JBaby
  • Neshema1
  • i-geek
  • SleepyBunny
  • eborzecki
  • basilicious
  • icm
  • MomGoneRunning
  • Aggie2011
  • faithforlife
  • psawyer
  • jess-gf

See all followers

Profile Information

  • Gender
    Female
  • Interests
    Biochemistry
  • Location
    California

Recent Profile Visitors

48,991 profile views
  • ElenaM

    ElenaM

  • Tim1718

    Tim1718

  • aharrisons8

    aharrisons8

  • Cazbo

    Cazbo

  • Scrapmanson

    Scrapmanson

  • grossi

    grossi

  • currier54

    currier54

  • HannahBick

    HannahBick

  • Elineea

    Elineea

  • Ilsa

    Ilsa

  • Disney

    Disney

Skylark's Achievements

Collaborator

Collaborator (7/14)

  • One Year In
  • One Month Later
  • Week One Done
  • Reacting Well Rare
  • Posting Machine Rare

Recent Badges

938

Reputation

About Me

Gluten-free since 2005, diagnosed on an elimination diet and the resolution of dermatitis herpetiformis on my hands after a couple years gluten-free. I have since learned I was tested in childhood but had been off wheat because it made me sick. Nobody told Mom I had to be eating wheat for the test. They may not have known.

I had a classic recurring, blistered, itchy rash but my doctor didn't recognize it because it was only on my hand. When I initially came in after self-diagnosing my doc offered a challenge and blood tests and I laughed at him. I had borderline anemia, hypothroidism (now have Hashimoto's), aphthous ulcers, signs of B-complex deficiency, intermittent carpal tunnel syndrome, chronic fatigue, depression, IBS, gastritis, white spots and ridges on my nails, tooth enamel problems, and food sensitivities possibly from "leaky gut". All but the depression and thyroid disease resolved on a gluten-free diet. The depression gradually resolved with EMPowerPlus vitamin and micronutrient supplement from TrueHope. I needed a high dose for a couple years and gradually tapered. 

I know when I'm glutened because I get aphthous ulcers a day or two later. I feel crummy too, but that's not unusual.

Anyone who tells you that you can't have celiac disease with only DQ2.2 is lying. I'm DQ2.2/DQ2.2-ish. (Not quite a 2.2 match.) Mom is celiac with only DQ2.2 and no other risk alleles.

  1. Melissa Perry started following Skylark
  2. icm started following Skylark
  3. Skylark
    The home tests are better for finding celiac than for ruling it out. TTG tests are 80% accurate. There is still a 20% chance that you are celiac so no, you shouldn't assume you are intolerant.
  4. Skylark
    Your kids' response to the diet means a LOT more than fecal IgA. It's not a terribly reliable test, though a result of 144 is certainly interesting. Little kids don't always have a strong immune response so the older's test results might simply be a reflection of his/her more mature immune system. As other folks have said, you can't have them tested for...
  5. Skylark
    It has happened to other board members so don't give up hope. Just get well and set the best example you can.
  6. Skylark
    As I said above, "not detectable" assumes the test for gluten works reliably on soy sauce. It doesn't. Eat at your own risk.
  7. Skylark
    Sorry to hear that. It must be frustrating, especially the reacting. Maybe this will be easier to take on when you are feeling better. Has your doctor spoken to your husband? Maybe he'll believe better if he hears it first-hand?
  8. Skylark
    Oh gosh, that sounds terrible! Most of the celiac tests look for autoimmunity so it seems to me that your immune suppressants might mask celiac disease. Celiac can really mess with calcium absorption and cause osteoporosis. It's also a risk factor for duodenal tumors so to my way of thinking it sort of all fits together. Gluten intolerance is also pretty...
  9. Skylark
    Welcome to the board! tTG IgA is a test for a kind of autoimmunity that's almost always caused by celiac and yours is quite high. Be sure to give the gluten-free diet a good strict try no matter what the endoscopy results are. Sometimes the celiac damage gets missed because it can be patchy. If you've had a lot of stomach trouble you should feel loads better...
  10. Skylark
    Some naturally fermented soy sauce gets broken down by the cultures to where the gluten is below detection limits. Problem is, the tests don't work right on broken-down gluten so you can't really know whether the soy sauce is safe. Since the laws don't take the subtleties of gluten testing into account they can be legally labeled gluten-free. I personally...
  11. Skylark
    It took my mom a few years to watch me get well and then take the plunge herself. She denied feeling better on the diet for a good six months but got sick every single time she ate wheat and finally accepted that she needed to be gluten-free. By the way, if you are talking about minor children, I think you need to put your foot down and get them tested...
  12. Skylark
    In this study the challenge was with wheat, not pure gluten, so using the phrase "gluten sensitivity" would be incorrect. Top-level researchers use very precise language to try to describe exactly what they observe, not what they might assume.
  13. Skylark
    I went to a 100% gluten-free restaurant in Asheville. It took me about ten minutes to decide what to order because I'm so used to not having any choices. Food was excellent and the restaurant was plenty busy. They're using local, sustainable food too so they appeal to a wider market than just celiac/gluten-free. They bake all their own breads, muffins...
  14. Skylark
    Yeah, the jury is still out. I had a really strong response to eggs on an IgG test so I have to eliminate/challenge to be sure. Thing is, I tend to feel really awful on Monday and I usually make omelets or bake on the weekends. I also came up positive for soy on the IgG test and I know soy doesn't agree with me. Dairy came back negative so I'm praying...
  15. Skylark
    Thanks! I can do guar gum, psyllium, and chia. I forgot you can sub chia for eggs. I'm going to play with flax too. Cow dairy is iffy, sometimes I react sometimes not. I seem to be back to tolerating goats milk so might be able to find goat sour cream. I can do enough starch to try the Ener-G egg replacer. I might give that a go in my regular almond meal...
  16. Skylark
    There is no such research. It's an urban legend that has cropped up on the internet recently. I have looked up all the supposed scientific references and they say that coffee allergies and reactions are actually quite rare. Coffee is a bit of a GI irritant and it's hard on folks with stomach trouble. It was probably too much for your system to handle...
  17. Skylark
    In Nature! Sweet! That's an impressive study too.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.