-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Celiac Disease & Gluten-Free Diet Blogs
Inoculation day!
I did the hookworm larva collection and inoculation today. It took 1/2 hr with doing everything right and safely, including clean-up. You can see the 5 jars I prepared a week ago in the pic. Only #2 jar had a good number of larvae so it was the only jar I used. I placed enough drops onto a checker board scored Petri dish until I had 25 and soaked them up onto a gauze bandage. It wasn't worth the effort to pipette out one extra larva in the last drop so I ended up with 26 this time. Thi
My Story Chapter Two
My health declined when I was taking an SSRI. I learned that certain drugs can cause Thiamine deficiency. SSRI's are one of those drugs. Depression is a symptom of Thiamine deficiency. It's also a symptom of Vitamin D deficiency. I was eating the Standard American Diet at the time, which is a diet that causes High Calorie Malnutrition. Consuming large amounts of carbohydrates without a corresponding increase in Thiamine causes a Thiamine deficiency. For every extra 1000 calories an ad
My Story
Yes, I do have Celiac disease. I had symptoms since infancy, but they were explained away as character flaws. I was told my stomach aches were faked to avoid going to school and other responsibilities, or to spoil family fun, and that my Dermatitis Herpetiformis was caused by being dirty and not bathing properly. I wasn't diagnosed with Celiac until midlife. My various health problems for which I sought medical attention were treated as separate entities. No medical professional lookedKoikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL
Commerce, CA – Koikoi Trading Inc. is recalling certain lots of FU ZHOU FISH BALL products in multiple pack sizes (200g, 400g, and 5LB) because the products may contain undeclared allergens: wheat and sesame. People who have an allergy or severe sensitivity to wheat and/or sesame run the risk of a serious or life-threatening allergic reaction if they consume these products. The products were distributed through foodservice and e-commerce channels and may have reached consumers through direc
About Celiac Remission
Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened. Those immune cells only replicate when triggered. If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casVitamins I Take
I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease. Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible. (Read the ingredients listing.) Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize. B vitamins breakdown when exposed to heat and light, and over time. So "shelf-stable" forms won't breakdown sNutrition and Gluten free diet
Effect of physical activity on thiamine, riboflavin, and vitamin B-6 requirements https://pubmed.ncbi.nlm.nih.gov/10919966/ The effects of endurance training and thiamine supplementation on anti-fatigue during exercise https://pmc.ncbi.nlm.nih.gov/articles/PMC4241913/ Effects of thiamine supplementation on exercise-induced fatigue https://pubmed.ncbi.nlm.nih.gov/8815395/ Exploring the Relationship between Micronutrients and Athletic Performance: A Comprehensive ScieGastrointestinal Beriberi
Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke eHäagen-Dazs Chocolate Dark Chocolate Mini Bars Recall Due to Undeclared Wheat and Gluten
Dreyer’s Grand Ice Cream, Inc. has issued a voluntary recall of certain Häagen-Dazs Chocolate Dark Chocolate Mini Bars due to undeclared wheat, which may pose a serious risk to those with wheat allergies or sensitivities. Product Details Product: Häagen-Dazs Chocolate Dark Chocolate Mini Bars (6-count) Batch code: LLA519501 Best By date: 31 JAN 2027 How to check: Look for batch code LLA519501 under “Best By 31 JAN 2027” on the package. Where Sold KroInoculation and video development
On September 23, 2025, I did my latest inoculation. It was right around the five-month mark — plenty of time to avoid the expected adult hookworm die-off in my gut at around 6 to 6.5 months. I never noticed any interruption of “worm services.” Neither my gluten reactions nor the colitis ever reared their ugly heads, so it appears I had a smooth transition with the new hookworms. This time, out of the five small jars I prepared, four were almost entirely vacant of larvae — but one was hoppinAmy's Gluten-Free Burritos Recalled for Possible Foreign Material Contamination
Amy’s Kitchen has initiated a recall of select Gluten Free Bean & Rice Burritos due to potential foreign material, according to current recall listings. The affected retail unit is 5.5 oz with lot code 30C1725 and an expiration date of 03/2027. Distribution included multiple U.S. states. Specific foreign material was not disclosed in public summaries at the time of writing. Why This Matters for Celiac Disease and Gluten Sensitivity Gluten-free shoppers rely on accurate labeling andDoan’s Bakery Issues Allergy Update on Undeclared Wheat and Milk Allergens in Bundt Cakes
Doan’s Bakery of Woodland Hills, CA is recalling White Chocolate Coconut and Carrot Bundt Cakes because they may contain undeclared wheat and milk. People who have an allergy or severe sensitivity to wheat and/or milk run the risk of experiencing a serious or life-threatening reaction if they consume these products. The recalled bundt cakes were sold by Doan’s Bakery and distributed nationwide via mail order via goldbelly.comExternal Link Disclaimer from June 1, 2025 through September 24, 2Hookworms and ChatGPT5
I recently sprang for a ChatGPT5 subscription just to play with it and have found it to be a revelation. ChatGPT5 has become my new best friend helping me to explore and answer questions that have been nagging me sometimes for years. Of course our conversation turned to hookworms and celiac disease as well as my other condition, ulcerative colitis. ChatGPT5 had an awful lot to say on the topic and was able to summarize past research for me and tell me where future research is going. Here'sHEB Blueberry Flavored Yogurt Pretzels Recalled Due to Undeclared Wheat
Product Name: Blueberry Pretzels " Brand Name: HEB " Description: 8oz HEB Blueberry Flavored Yogurt Pretzels " UPC Codes: 9787011400 " Lot Numbers: 080226, 080326 " Best By / Use By Dates: 080226 & 080326 " Package Size: 8oz " Establishment Number: 008046575 " UPC Codes: 9787011400 " Lot Numbers: 080226, 080326 " Best By / Use By Dates: 080226 & 080326 " Package Size: 8oz " Establishment Number: 008046575 Read more at: www.accessdata.fda.govJust did the jars for the next hookworm incubation
Took about 20 minutes and 1/2 of that was clean-up. As per what has become my usual process, I prepared five small jars with the expectation of only using the one jar with the greatest population of larvae. Today is August 29th, so given that a week appears to be sufficient time for the eggs to hatch and the larvae to do their thing of migrating down to the water at the bottom of the jars, the harvest date will be Friday September 5th. This time I'll be having a crack at making a video forProbably the best Helminthic Therapy video I've seen
A couple of therapists who use hookworms in their practice and a Crohn's patient talk about their use of hookworms and other helminths. Hookworm treatment is the same for celiacs as it is for Crohn's or any other Inflammatory Bowel Disease condition.GLUTEN EASE TABLETS DONT WORK
ENZYMEDICA gluten ease tablets do NOT WORK . Waste of Money . I actually ate more bloated when tanking 2-3 tablets in 1 day . anything out there that works ??
Hookwormed status report
Not much going on to report. My last inoculation of 25 Necator americanus hookworm larvae occurred April 11 2025, and I'm due to start incubating Aug 27 2026 and inoculate again with 25 larvae Sep 3 2025. Over the years I've seen my celiac/ulcerative colitis symptoms return six month-ish after inoculation, so I've settled on a frequency of a little less than 5 months, or in this instance, 4.79 months. Human hookworms (NA) don't reproduce in the body and since my immune system is constantlyMadeline’s Pâtisserie Issues Allergy Alert on Undeclared Wheat in Croissants and Croissant Buns
Sylvania, Ohio (May 15, 2025) Element 112, LLC dba Madeline’s Pâtisserie is issuing a voluntary recall of a specific batch of our ready-to-eat croissants, due to a labeling error. The ingredient statement on the exterior of the box was labeled as “flour” and does not accurately reflect the contained allergen of “wheat” These products are sold fully baked, frozen, and in a food service case of 24 units. These products have been produced since March 10, 2025 with the last production date of MKyla's YouTube channel
Followers of my blog probably watched Kyla's interview with William Porter from a few months ago. What might have slipped notice is that Kyla has her own YouTube channel where she posts videos about her experiences with Helminthic Therapy and Crohn's Disease. Spoilers, she's about 90% better because of HT. Kyla is very active on Instagram where her page is called @letshealIBD https://www.youtube.com/@letshealIBD Helminthic Therapy is used for Inflammatory Bowel Disease generally: celiaMay Flower International Inc., Issue Allergy Alert on Undeclared Wheat in "Beijing Soybean Paste"
May Flower International Inc of Maspeth, NY, is recalling its 8.82-ounce/250g packages of “Beijing Soybean Paste” food treats because they may contain undeclared wheat. People who have allergies to wheat run the risk of serious or life-threatening allergic reaction if they consume these products. The recalled “Beijing Soybean Paste” were distributed nationwide in retail stores. The Beijing Soybean Paste is packaged in 8.82-ounce/250g plastic packages, with UPC 6917799000385. The labeliFather, it's been some time since my last hookworm larvae innoculation
I did a 5-day fast in March that really messed up my stools making faecal sample collection problematic. Apparently I'm one of the few people that really need fiber always going through my system to prevent things going to hell, so next time I fast I'll be doing that even though it does break the spirit of fasting. Seven days ago I set up 5 small jars for incubation. When I looked at them today 2 were barren of larvae, 2 were ok but a little sparse, and one was grade A. Having a good concen-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Blog Comments
-
Welcome to the celiac.com community, @Amiah!
First of all, you would do well to post your question in one of the appropriate community forums rather than in a blog. It will get more attention that way.
Now as to your question, there are some other things that can cause elevated igg antibodies besides celiac disease. Various infections, mostly. For instance, candida albicans. But the odds are it is nascent celiac disease and there has not been enough time for damage to the lining of the small bowel to manifest itself.
At this point, it might be wise to trial the gluten free diet and see if her symptoms improve. If they do, she either has celiac disease or NCGS (Non Celiac Gluten Sensitivity). The GI symptoms of the two overlap significantly. NCGS does not damage the lining of the small bowel and does not have an autoimmune component so there are not tests for it yet. Celiac disease must first be ruled out. The other thing you can do is to have genetic testing done to see if she carries either of the two primary genes known to provide the potential to develop celiac disease. Almost 40% of the population have one or both of the genes but only about 1% of the population develops celiac disease so it is not really a diagnostic test so much as it is a "rule out celiac disease" test.
I hope this helps.
-
Thank you for sharing this—your story is heartbreaking, powerful, and, unfortunately, far too familiar to many in the celiac community. Being dismissed, misdiagnosed, and blamed for symptoms for decades, only to later discover they were all connected to untreated celiac disease and malabsorption, represents a profound failure of the medical system. The permanent damage you’ve endured underscores how serious nutritional deficiencies can be, especially when they’re repeatedly overlooked or minimized. Your perseverance, self-advocacy, and willingness to use your hard-won knowledge to help others is incredibly meaningful, and I know your voice will resonate with people who are still struggling to be believed or properly diagnosed.
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Celiac.com Sponsor (A22):
-
Blog Statistics
-
Total Blogs869
-
Total Entries2,299
-
-
Celiac.com Sponsor (A21):
-
Who's Online (See full list)
-
My Clubs
-
Arkansas Celiac Patients
Open Club · 1 member
-
Atlanta’s gluten-free Connection
Open Club · 2 members
-
South Florida Club
Open Club · 2 members
-
-
Recent Activity
-
-
- trents commented on Amiah's blog entry in Amiah1
Help!!
Welcome to the celiac.com community, @Amiah! First of all, you would do well to post your question in one of the appropriate community forums rather than in a blog. It will get more attention that way. Now as to your question, there are some other things that can cause elevated igg antibodies besides celiac disease. Various infections, mostly. For... -
1
-
-
-
