Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  • Record is Archived

    This article is now archived and is closed to further replies.

    Jefferson Adams
    Jefferson Adams

    A Simple, Reliable Way to Score Gluten-Free Compliance in Patients with Celiac Disease

    Reviewed and edited by a celiac disease expert.

    Celiac.com 10/13/2009 - The standard method of measuring successful observance of a gluten-free diet in patients with celiac disease is through a dietary interview performed by health professional. However, there is currently have no simple, objective method for conducting such a dietary interview.

    To address this discrepancy, a team of researchers recently designed an easy, quick questionnaire based on four simple questions which yield a five-level score (0–IV). The score provides the test individual with an indication of their compliance level.

    Celiac.com Sponsor (A12):
    The research team was made up of Federico Biagi, Alida Andrealli, Paola Ilaria Bianchi, Alessandra Marchese, Catherine Klersy, and Gino Roberto Corazza.

    The team recently set out to assess the accuracy of the questionnaire. They ran the questions past 168 celiac patients, 126 females and 42 males, with a median age of 42·4 (SD 12·9) years. All subjects were allegedly following a gluten-free diet (median 82, 25th–75th percentile 50–108, range 15–389 months).

    They compared the resulting scores with the persistence of both villous atrophy and endomysial antibodies while on a gluten-free diet.  They also compared patient survival rates. Non-expert personnel interviewed patients by telephone.

    The questionnaire took less than one minute to complete. The lowest results were markedly more common among the patients with a persistence of both villous atrophy and positive endomysial antibodies. Those patients also had significantly higher rates of death overall.

    From these results, the researchers conclude that the questionnaire offers a simple, accurate way to verify compliance with a gluten-free diet for patients with celiac disease.

    Source:
    Open Original Shared Link



    User Feedback

    Recommended Comments

    Guest Hallie

    Oh not fair! Surely if the questionnaire only consisted of 4 questions, you could tell us what they were. Neither does the abstract of the study tell us! Sorry, but this in not up to your usual fine standards of reporting!

    Link to comment
    Share on other sites
    Guest Janelle

    Posted

    So what is the question? This left me hanging.

    Link to comment
    Share on other sites
    Guest ellie

    I need those 4 questions. How does one get them. I think I am a great detective but this one haunts me. Especially when counseling the teen and young adult.

    Link to comment
    Share on other sites
    Guest Michelle

    Posted

    Oh not fair! Surely if the questionnaire only consisted of 4 questions, you could tell us what they were. Neither does the abstract of the study tell us! Sorry, but this in not up to your usual fine standards of reporting!

    The article was very informative and did include the four questions. Hallie, click on the "Source" link at the bottom of the page. This takes you to the abstract. Click on "View PDF" and you have the whole article.

     

    Thank you Celiac.Com for sharing this article. I am writing my dissertation on celiac disease and this information was invaluable!

    Link to comment
    Share on other sites


    Guest
    This is now closed for further comments

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • About Me

    Jefferson Adams

    Jefferson Adams is Celiac.com's senior writer and Digital Content Director. He earned his B.A. and M.F.A. at Arizona State University. His articles, essays, poems, stories and book reviews have appeared in numerous magazines, journals, and websites, including North American Project, Antioch Review, Caliban, Mississippi Review, Slate, and more. He is the author of more than 2,500 articles on celiac disease. His university coursework includes studies in science, scientific methodology, biology, anatomy, physiology, medicine, logic, and advanced research. He previously devised health and medical content for Colgate, Dove, Pfizer, Sharecare, Walgreens, and more. Jefferson has spoken about celiac disease to the media, including an appearance on the KQED radio show Forum, and is the editor of numerous books, including "Cereal Killers" by Scott Adams and Ron Hoggan, Ed.D.

    >VIEW ALL ARTICLES BY JEFFERSON ADAMS

     


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Related Articles

    Scott Adams
    Wahab PJ, Meijer JW, Mulder CJ.
    Department of Gastroenterology and Hepatology, Rijnstate Hospital Arnhem, The Netherlands.
    Am J Clin Pathol 118(3):459-463, 2002
    Celiac.com 10/28/2002 - The following study strongly supports follow-up care and testing for people with celiac disease. As the study found, over 10% of people with diagnosed celiac disease have still not fully recovered even after five years of treatment.
    To assess histologic recovery in response to gluten withdrawal in celiac disease, 158 patients seen in our hospital during a 15-year period underwent follow-up small intestine biopsies (SIBs) within 2 years after starting a gluten-free diet; further SIBs were done if villous atrophy was present. A modified Marsh classification was used (IIIA, partial villous atrophy...


    Scott Adams
    Celiac.com 2/13/2003 - This new study emphasizes the importance of following a strict gluten-free diet, and getting regular follow-up biopsies after your diagnosis. It also speaks to the need to discover whether or not you may have additional food intolerance, such as to cows milk (casein), soy, corn, etc., as some of these can also cause intestinal damage similar to that of celiac disease. -Scott Adams

    Lee SK, Lo W, Memeo L, Rotterdam H, Green PH.
    Gastrointest Endosc 2003 Feb;57(2):187-91
    Current affiliations: Department of Surgical Pathology and Medicine, Columbia University College of Physicians and Surgeons, New York, New York.
    BACKGROUND: The diagnosis of celiac disease requires characteristic histopathological changes in an intestinal biopsy with clinical...


    Jefferson Adams
    Celiac.com 04/16/2010 - In most adults with celiac disease, clinical symptoms disappear with a gluten-free diet. However, the exact effects of a gluten-free diet on rates of mucosal recovery in adults with celiac disease is less certain.
    A group of clinicians recently set out to estimate the rate of mucosal recovery under a gluten-free diet in adult subjects with celiac disease, and to gauge the clinical prospects of ongoing mucosal damage in celiac patients following a gluten-free diet.
    The study group included: Alberto Rubio-Tapia, MD; Mussarat W. Rahim, MBBS; Jacalyn A. See , MS , RD, LD; Brian D. Lahr , MS; Tsung-Teh Wu, MD; and Joseph A. Murray, MD.
    Each patient in the study had biopsy-proven celiac disease, and was assessed at the Mayo Clinic. Also, each patient received...


    Jefferson Adams
    A Systematic Review of Diagnostic Testing for Celiac Disease Among Patients With Abdominal Symptoms
    Celiac.com 06/03/2010 - Clinical presentation of celiac disease can vary considerably from patient to patient. Most patients with celiac disease present atypical symptoms. Moreover, most patients who present abdominal symptoms in primary care do not have celiac disease, and so diagnostic tests for celiac disease are not necessary and should be avoided.
    A team of researchers recently conducted a systematic review of diagnostic testing for celiac disease among patients with abdominal symptoms.
    The team included Daniëlle A. W. M. van der Windt, PhD; Petra Jellema, PhD; Chris J. Mulder, MD, PhD; C. M. Frank Kneepkens, MD, PhD; and Henriëtte E. van der Horst, MD, PhD. Their article appears in the Journal of the American Medical Association.
    The goal of the research was to review a...


  • Recent Activity

    1. - trents replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bee balm lipbalm not gluten free

    2. - knitty kitty replied to Allias's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      calcium malabsorption that does not resolve with supplementation

    3. - Wheatwacked replied to cjjones5969's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      9

      Problems

    4. - Grace Good posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bee balm lipbalm not gluten free

    5. - Wheatwacked replied to Allias's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      calcium malabsorption that does not resolve with supplementation


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,167
    • Most Online (within 30 mins)
      7,748

    JaneB
    Newest Member
    JaneB
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Popular Now

    • Allias
    • matts
      15
    • cjjones5969
      9
    • BadHobit
      11
    • Vickey Matteson
      5
  • Popular Articles

    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
  • Upcoming Events

×
×
  • Create New...