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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- lizzie42 replied to lizzie42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Confusion about my son's results
These are my sons results. My daughter was high positive on everything and maxed out the tests in addition to being anemic, bad rash, etc. Yes, he has been eating mostly gluten free (not completely). He was also on a high dose of budosinide at the time of testing due to some asthma and sickness. I didn't realize that affects the results. This... -
- trents replied to lizzie42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Confusion about my son's results
@lizzie42, Are the results you posted above for your daughter or for your son? If these are for your 5 year-old son, they are strongly positive and definitely suggest celiac disease. The ttg-iga is the centerpiece of celiac disease antibody testing and at 59 it is a strong positive. If you are wondering why some of the other tests are negative, you need... -
- Diana Swales replied to lizzie42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Confusion about my son's results
If your son is only 5 and his sister is diagnosed celiac disease, is it a possibility that he has been eating a majority gluten free diet with his sister. If this is the case his result would be low or negative. The choice would be yours as to whether to put him in onto a full gluten diet for 4 -6 weeks, handle and NOTE the changes in his diet... -
- aperlo34 replied to aperlo34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
advice needed 2 months in... struggling with symptoms
@cristiana Yes - just to add to this: my ferritin went down after my first 2 infusions (which were 8 months ago), so I got more infusions a couple of weeks ago. From those alone, I'm feeling better. It's a work in progress! Be patient! I was also taking iron supplements the entire time. -
- cristiana replied to aperlo34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
advice needed 2 months in... struggling with symptoms
@OlafAndvarafors I just wanted to reassure you that I had these same issues for a while before and after diagnosis but they did settle. I think the deficiencies and anxiety that are very common in undiagnosed/newly diagnosed coeliacs are a perfect mix for twitching! I cannot say exactly how long you will experience this but my feeling that once you are...
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