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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


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    • RMJ
      Do you have any other results from either of the two labs where you’ve been tested recently?  If so, are the newest results from that lab elevated over previous results? It took me 5 years to get all of my antibodies into the normal range. Then 3 years later one went up into the positive range.  I realized that I had started baking with a different brand of gluten free flour.  When I stopped using that flour the level went back to normal.  Has something changed in your diet, environment, activities, medications or other areas where you could possibly be exposed to gluten? 
    • thejayland10
      Thank you for the clarifcation, how can I get to the bottom of this as to why they may be elevated even on a super strict gluten-free diet? 
    • trents
    • Bronwyn W
      Hi, Please can I ask for opinions on using Anti-inflammatories for symptom treatment of inadvertent gluten exposure? Should it be part of a foundational treatment plan, upon inadvertent exposure? Kind Regards,  Bronwyn 
    • RMJ
      In testing for celiac disease total IgA is run just to be sure you’re not deficient (in which case the TTG IgA results would not be reliable). Different labs may have slightly different normal ranges, but the units are usually the same and the results can be compared.  In your case, what is meaningful for celiac disease is that you were not deficient in total IgA for either test. Different labs use different units for the TTG IgA test and there are no conversion factors to turn one into the other. In your case, the labs have another difference - one uses a weak positive category and one doesn’t.  The two results really can’t be compared. In each case you’re slightly into the full positive range for that test/lab so in reality your antibodies might not have jumped up at all between these two tests.  
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