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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Rejoicephd posted a topic in Coping with Celiac Disease0Draft gluten-free ciders… can they be trusted ?
Hi everyone do you know whether when you get a draft cider if there is a chance that it runs through the same tubing as a beer did sometime prior? the reason I’m asking is that I’m trying to eliminate a source of hidden gluten that I think hits me about once a month. And I have a suspicion it might be cider from the draft at certain bars. When I a... -
- cristiana replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease29Struggling to get into a good pattern
Thank you for the update @Rejoicephd it is good to know that you may have some answers. Keep up the good work with your diet, and do let us know if you do get a firm diagnosis. I took so long to feel better and for my TTG levels to normalise, but got there in the end, so also bear in mind it does take longer for some of us.- 1
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- StuartJ replied to The Logician's topic in Related Issues & Disorders28Gluten Sensitivity
Well, three months later and a startling revelation! After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right? Big flare up withing hours and I was really wiped out with it. She rechecks the label on the sauce bottle and right at the bottom... -
- trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut8Could this be a new intolerance
Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on. -
- Celiacpartner replied to Celiacpartner's topic in Food Intolerance & Leaky Gut8Could this be a new intolerance
Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough!
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By Rejoicephd · Posted
Hi everyone do you know whether when you get a draft cider if there is a chance that it runs through the same tubing as a beer did sometime prior? the reason I’m asking is that I’m trying to eliminate a source of hidden gluten that I think hits me about once a month. And I have a suspicion it might be cider from the draft at certain bars. When I am out, if I decide to drink, I usually order a cider brand that I know is gluten free. what I’ve noticed is that a couple times when I got a draft cider, I got symptoms of being glutened that night and the day after. This doesn’t seem to happen with all times I drink cider. I had a draft at a very clean brewery and I didn’t react from that, which is what made me start to wonder. Does anyone know if this is a possible source of getting glutened? I am like 99% sure that this is the cause and I think I’ll switch to bottle/can only from here on out, but would be interested if others experienced the same thing (or work in a bar and know how this works). Thanks! -
Thank you for the update @Rejoicephd it is good to know that you may have some answers. Keep up the good work with your diet, and do let us know if you do get a firm diagnosis. I took so long to feel better and for my TTG levels to normalise, but got there in the end, so also bear in mind it does take longer for some of us.
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Well, three months later and a startling revelation! After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right? Big flare up withing hours and I was really wiped out with it. She rechecks the label on the sauce bottle and right at the bottom of the ingredients XANTHAN GUM. There's our #1 suspect again! So by way of experimenting, she decided to try making a loaf of bread with just regular white flour like she used to do and see what happened; the familiar smell hit me when I walked in the door last night and I sat down to eat this still warm, fresh goodness - I thought even if I have to take Imodium sandwiches, it will be worth it 😋 No ill effects, either overnight or today! Half the loaf is now gone because I had some for supper, saving just one last slice for breakfast in the morning` - I've used the bathroom once and that was normal, so maybe it is not the gluten after all? Can't wait to try a beer! 😁
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Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
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By Celiacpartner · Posted
Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough!
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