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Recent Activity
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- Scott Adams replied to mermaidluver22's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Some inflammation in ileum with celiac?
It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains ele... -
- mermaidluver22 replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15Help needed
hi, how are u now? any answers? -
- mermaidluver22 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Some inflammation in ileum with celiac?
I have biopsy-confirmed celiac disease and have been strictly gluten-free, but my tTG-IgA is still elevated, so I know I'm still healing. I recently had a capsule endoscopy that showed small erosions and inflammation only in the distal ileum — nothing in the upper small intestine. My GI isn’t calling it Crohn’s yet because biopsies showed only mild, non-... -
- trents replied to max it's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Hi Ya All, Dr. just. Told me I have one celiac marker. I have been taking multiple blood test for thin Dr for years. Why couldn’t he have mentioned this! Anyway my functional med practitioner
Welcome to the forum, @max it! By "one celiac marker" do you refer to a genetic marker or a blood antibody test result? -
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By Scott Adams · Posted
It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains elevated despite a strict gluten-free diet, this could indicate ongoing healing or subtle gluten exposure. The ileal inflammation might still be related to celiac, though it’s good your doctor is ruling out other conditions like Crohn’s, given the nonspecific biopsy findings. Some people with celiac do report ileal involvement, particularly if they have refractory disease or delayed healing. Keeping close follow-up with your GI and possibly revisiting your diet for hidden gluten sources could help. Hang in there—it’s a journey, and you’re doing great by staying proactive! -
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By mermaidluver22 · Posted
I have biopsy-confirmed celiac disease and have been strictly gluten-free, but my tTG-IgA is still elevated, so I know I'm still healing. I recently had a capsule endoscopy that showed small erosions and inflammation only in the distal ileum — nothing in the upper small intestine. My GI isn’t calling it Crohn’s yet because biopsies showed only mild, non-specific inflammation with no chronic features. Has anyone experienced celiac impacting their ileum as well? the gi world is so confusing! thank u ❤️ -
Welcome to the forum, @max it! By "one celiac marker" do you refer to a genetic marker or a blood antibody test result?
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