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Recent Activity
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- Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease32Pain in the right side of abdomen
Hi Sorry not been on for a while. My daughter had a recent hospital stay as went to GP with slight blurred vision, lower back pain and tingling in hands and feet, slight balance problems. GP wanted to rule out stroke. Had recently started Vit B12 medication as blood test showed really low level of 30, folate was 2.2. Was admitted for 4 days, various... -
- dixonpete commented on dixonpete's blog entry in Pete Dixon2Another conversation with ChatGPT about hookworms
I suppose it's all in how you ask the question. I just asked ChatGPT how much it would cost to resolve my gut issues the way hookworms have, and ChatGPT's response was "$15,000–$30,000/year for the most plausible UC biologic/small-molecule route, or $10,000–$40,000+/year for omalizumab-style allergy modulation". That assumes such medication actually wor... -
- Scott Adams commented on dixonpete's blog entry in Pete Dixon2Another conversation with ChatGPT about hookworms
My question to ChatGPT: Is purposeful Hookworm infection a reasonable treatment for those who have many food intolerance issues, including those with gluten intolerance who want to eat gluten? Answer: No — purposeful hookworm infection is not a reasonable or medically accepted treatment for broad food intolerance, gluten intolerance, or for p... -
- xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease01 Year Elimination Diet journey
It has been a year since I started my Elimination diet from gluten. I have learned alot w/o being diagnosed (going through eating gluten for a test isn't happening) The first month or so were learning curve and I have learned to READ LABELS which are tricky as not just gluten but possibly wheat may affect you or other Gluten containing ingredients that are... -
- Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis3
Skin issues
It may help to bring the clearest photos, avoid squeezing or digging at the bumps, and ask your doctor whether a skin scraping, culture, biopsy, or parasite/fungal evaluation would be appropriate based on what they see. Since you mentioned cats, it’s also worth asking about possible flea bites, mites, ringworm, or other pet-related skin issues, and checking w...- 1
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By xxnonamexx · Posted
It has been a year since I started my Elimination diet from gluten. I have learned alot w/o being diagnosed (going through eating gluten for a test isn't happening) The first month or so were learning curve and I have learned to READ LABELS which are tricky as not just gluten but possibly wheat may affect you or other Gluten containing ingredients that are spelled out. I have found great protein bars w/o sugar alcohols as I noticed those increased gas. I have taken vitamins as suggested by members on this board. Started baking gluten free, when going out I have found gluten friendly restaurants. I have felt so much better since eliminating gluten/sugar alcohols. It is hard to find sugar free products but I limit myself to gluten free snacks as they have high sugar etc. I have been using Bobs Red Mill gluten-free oatmeal and One Degree Farmers oatmeal but I am looking to try some new breakfast ideas like Buckwheat or a great gluten-free cereal. Journey still continues and learning more and more. -
By Scott Adams · Posted
It may help to bring the clearest photos, avoid squeezing or digging at the bumps, and ask your doctor whether a skin scraping, culture, biopsy, or parasite/fungal evaluation would be appropriate based on what they see. Since you mentioned cats, it’s also worth asking about possible flea bites, mites, ringworm, or other pet-related skin issues, and checking with a veterinarian if your cats have itching or hair loss. Also, please tell your doctor about the topiramate change, meningioma, and the garlic, especially since you were told not to eat garlic. Even if your husband doesn’t see what you see, your symptoms are real and deserve a careful medical evaluation. -
By Scott Adams · Posted
It sounds like you have an allergy or separate intolerance to quinoa, but there is the slight possibility it was somehow cross-contaminated with wheat, even though it was certified gluten-free. -
Unless gluten exposure is happening on a regular basis, it is doubtful that blood antibodies would show up elevated in testing. It takes time for them to build up to detectable levels.
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HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If you are reacting to foods that don't contain gluten, you may be reacting to something else. Alternatively, a condition called SIBO is common in people with coeliac disease, where there is an overgrowth of bacteria in the small intestine. This can be tested for with a simple breath test. The main treatment is with a course of antibiotic. Small Intestinal Bacterial Overgrowth (SIBO)
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