Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If You Have Another Autoimmune Disorder...

jenvan

By jenvan
in Related Issues & Disorders

Recommended Posts

jenvan Collaborator
jenvan
Posted

Hey there! I thought this would be an interesting question to ask. I also wonder because since going gluten-free my psoriasis has continually gotten worse. I am definitely gluten-free, and my last blood work came back normal. Perhaps my body is going crazy on my skin since it is no longer attacking my intestines?! I'm not sure...but wanted to see if anyone else's additional autoimmune disorder or disease had gotten worse since going gluten-free...even if it was only for a period of time. Gracias! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jnkmnky Collaborator
Jnkmnky
Posted

Does dairy free help with that?

elisabet Contributor
elisabet
Posted
Does dairy free help with that?

<{POST_SNAPBACK}>

for my son It helped both diary free and soy free,but it is so difficult.

Guest Viola
Guest Viola
Posted

Hi, my psoriasis seemed to get worse for the first year or two ... I think because I was so stressed out over the new diet, plus changing houses and other family stuff. But after that it continued to get better until now I only get it when some crises pops up. Also It does tend to show up in small patches in the hot humid days during the summer.

My arthritis improved after diagnosis, but now as I get older it is starting to get worse again.

nikki-uk Enthusiast
nikki-uk
Posted

My husband was dx with Psoriatic Arthritis about 2 yrs before celiac disease.

Psoriatic Arthritis is very similar to rheumatoid arthritis.

Anyhow ,the arthritis was very painful,very aggresive flare ups and he had a general decline in health.

Since going gluten-free a year ago-his psoriasis has disappeared completely-and has only had niggles in his joints(touch wood!)

The arthritis is still there-but no where as debilitating pre gluten-free. :)

redheadheather Explorer
redheadheather
Posted
for my son It helped both diary free and soy free,but it is so difficult.

<{POST_SNAPBACK}>

You're dairy and soy free as well as gluten-free w/your son? MY son was diagnosed w/milk and soy allergies as an infant - but we were told he outgrew them because he has no skin reactions to them anymore. What are your typical meals for your son? How old is he? I'm going to bring up these issues w/my son's doctor when we see them next week (how we know he's *really* outgrown these allergies, etc).

Thanks!

julie5914 Contributor
julie5914
Posted

Apparently YES! I had had some mild thyroid troubles before going gluten free and have been wondering all this time, isn't that supposed to get better, but it is getting worse. Then I wonder if maybe I am noticing it more since my intestines are more happy, but I don't think that's it. Headaches came back worse, fatique is often worse and muscle pain and achiness is worse! What a trade off. I am waiting on a slew of blood test results to see if we can figure out what's going on.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted

I wonder if maybe some of your headaches are due to gluten withdrawl .. something like caffine withdrawl causes headaches as well. I can remember getting headaches years ago, but can't remember if it was before or after I started the diet. Now I only get them if I have to skip my morning coffee :rolleyes: Also I find a good many Celiacs have problems with bouts of depression, would that cause headaches? Certainly stress does if we are dealing with family or friends that won't help, or at the very least co-operate with food issues.

Just some thoughts <_<

Rachel--24 Collaborator
Rachel--24
Posted
Apparently YES! I had had some mild thyroid troubles before going gluten free and have been wondering all this time, isn't that supposed to get better, but it is getting worse. Then I wonder if maybe I am noticing it more since my intestines are more happy, but I don't think that's it. Headaches came back worse, fatique is often worse and muscle pain and achiness is worse! What a trade off. I am waiting on a slew of blood test results to see if we can figure out what's going on.

<{POST_SNAPBACK}>

Julie,

What kind of thyroid problems did you have? Were you Hypo? Do you take meds?

When I went gluten-free I got headaches and hairloss related to overactive thyroid. It was because more of my meds were being absorbed as I started to heal. I had to decrease the dose.

maxcarr Newbie
maxcarr
Posted
Julie,

What kind of thyroid problems did you have? Were you Hypo? Do you take meds?

When I went gluten-free I got headaches and hairloss related to overactive thyroid. It was because more of my meds were being absorbed as I started to heal. I had to decrease the dose.

<{POST_SNAPBACK}>

Hi Rachel, I have hypo too, and was diagnosed with celiac about 18 months ago - but I'm now having my hair fall out quite a bit (again) ...I guess time to get the thyroid levels checked!

judy05 Apprentice
judy05
Posted
Hey there!  I thought this would be an interesting question to ask.  I also wonder because since going gluten-free my psoriasis has continually gotten worse.  I am definitely gluten-free, and my last blood work came back normal.  Perhaps my body is going crazy on my skin since it is no longer attacking my intestines?!  I'm not sure...but wanted to see if anyone else's additional autoimmune disorder or disease had gotten worse since going gluten-free...even if it was only for a period of time.  Gracias!  :)

<{POST_SNAPBACK}>

My auto immune disease got worse, I developed type 2 Diabetes! Before that I had to have half of my thyroid removed because it was destroying itself. I also get bad headaches from allergies but my migraines have lessened. You name it, I've had it. The only thing that helps is the gluten-free diet and exercise. I thank God I am losing weight so maybe the diabetes will get better without having to take medication.They say when one organ goes, they all go. Remember the skin is condidered an organ too.

jenvan Collaborator
jenvan
Posted
  • Author

Judy- interesting thoughts on developing diabetes... makes me wonder--maybe my skin is also worse b/c now i am absorbing more carbs, sugar etc...which is related to one of the theories for psoriasis. hmm...

julie5914 Contributor
julie5914
Posted

No, I wasn't on meds - I should have said I had symptoms like hypo, but the numbers were always normal until lately - now they are going up, and I will likely be on meds soon. Hopefully that will correct itself though. My doc also thinks that a lot of my autoimmune symptoms are linked to adrenal problems (which then later cause thyroid trouble). We shall see when she calls back next week with the results. I suppose it could be some sort of withdrawal - the headaches usually wake me up at night though - I sense they are blood pressure related (I have low bp).

Eliza13 Contributor
Eliza13
Posted

I had pain in my knee and edema, which went away after 3 weeks on the diet. I also had what I believe was DH on my elbows, which went away spontaneously prior to going on the diet.

Skar.

jenvan Collaborator
jenvan
Posted
  • Author

thanks for the responses all...trying to play 'detective' ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.