Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If You Have Another Autoimmune Disorder...


jenvan

Recommended Posts

jenvan Collaborator

Hey there! I thought this would be an interesting question to ask. I also wonder because since going gluten-free my psoriasis has continually gotten worse. I am definitely gluten-free, and my last blood work came back normal. Perhaps my body is going crazy on my skin since it is no longer attacking my intestines?! I'm not sure...but wanted to see if anyone else's additional autoimmune disorder or disease had gotten worse since going gluten-free...even if it was only for a period of time. Gracias! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

Does dairy free help with that?

elisabet Contributor
Does dairy free help with that?

<{POST_SNAPBACK}>

for my son It helped both diary free and soy free,but it is so difficult.

Guest Viola

Hi, my psoriasis seemed to get worse for the first year or two ... I think because I was so stressed out over the new diet, plus changing houses and other family stuff. But after that it continued to get better until now I only get it when some crises pops up. Also It does tend to show up in small patches in the hot humid days during the summer.

My arthritis improved after diagnosis, but now as I get older it is starting to get worse again.

nikki-uk Enthusiast

My husband was dx with Psoriatic Arthritis about 2 yrs before celiac disease.

Psoriatic Arthritis is very similar to rheumatoid arthritis.

Anyhow ,the arthritis was very painful,very aggresive flare ups and he had a general decline in health.

Since going gluten-free a year ago-his psoriasis has disappeared completely-and has only had niggles in his joints(touch wood!)

The arthritis is still there-but no where as debilitating pre gluten-free. :)

redheadheather Explorer
for my son It helped both diary free and soy free,but it is so difficult.

<{POST_SNAPBACK}>

You're dairy and soy free as well as gluten-free w/your son? MY son was diagnosed w/milk and soy allergies as an infant - but we were told he outgrew them because he has no skin reactions to them anymore. What are your typical meals for your son? How old is he? I'm going to bring up these issues w/my son's doctor when we see them next week (how we know he's *really* outgrown these allergies, etc).

Thanks!

julie5914 Contributor

Apparently YES! I had had some mild thyroid troubles before going gluten free and have been wondering all this time, isn't that supposed to get better, but it is getting worse. Then I wonder if maybe I am noticing it more since my intestines are more happy, but I don't think that's it. Headaches came back worse, fatique is often worse and muscle pain and achiness is worse! What a trade off. I am waiting on a slew of blood test results to see if we can figure out what's going on.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

I wonder if maybe some of your headaches are due to gluten withdrawl .. something like caffine withdrawl causes headaches as well. I can remember getting headaches years ago, but can't remember if it was before or after I started the diet. Now I only get them if I have to skip my morning coffee :rolleyes: Also I find a good many Celiacs have problems with bouts of depression, would that cause headaches? Certainly stress does if we are dealing with family or friends that won't help, or at the very least co-operate with food issues.

Just some thoughts <_<

Rachel--24 Collaborator
Apparently YES! I had had some mild thyroid troubles before going gluten free and have been wondering all this time, isn't that supposed to get better, but it is getting worse. Then I wonder if maybe I am noticing it more since my intestines are more happy, but I don't think that's it. Headaches came back worse, fatique is often worse and muscle pain and achiness is worse! What a trade off. I am waiting on a slew of blood test results to see if we can figure out what's going on.

<{POST_SNAPBACK}>

Julie,

What kind of thyroid problems did you have? Were you Hypo? Do you take meds?

When I went gluten-free I got headaches and hairloss related to overactive thyroid. It was because more of my meds were being absorbed as I started to heal. I had to decrease the dose.

maxcarr Newbie
Julie,

What kind of thyroid problems did you have? Were you Hypo? Do you take meds?

When I went gluten-free I got headaches and hairloss related to overactive thyroid. It was because more of my meds were being absorbed as I started to heal. I had to decrease the dose.

<{POST_SNAPBACK}>

Hi Rachel, I have hypo too, and was diagnosed with celiac about 18 months ago - but I'm now having my hair fall out quite a bit (again) ...I guess time to get the thyroid levels checked!

judy05 Apprentice
Hey there!  I thought this would be an interesting question to ask.  I also wonder because since going gluten-free my psoriasis has continually gotten worse.  I am definitely gluten-free, and my last blood work came back normal.  Perhaps my body is going crazy on my skin since it is no longer attacking my intestines?!  I'm not sure...but wanted to see if anyone else's additional autoimmune disorder or disease had gotten worse since going gluten-free...even if it was only for a period of time.  Gracias!  :)

<{POST_SNAPBACK}>

My auto immune disease got worse, I developed type 2 Diabetes! Before that I had to have half of my thyroid removed because it was destroying itself. I also get bad headaches from allergies but my migraines have lessened. You name it, I've had it. The only thing that helps is the gluten-free diet and exercise. I thank God I am losing weight so maybe the diabetes will get better without having to take medication.They say when one organ goes, they all go. Remember the skin is condidered an organ too.

jenvan Collaborator

Judy- interesting thoughts on developing diabetes... makes me wonder--maybe my skin is also worse b/c now i am absorbing more carbs, sugar etc...which is related to one of the theories for psoriasis. hmm...

julie5914 Contributor

No, I wasn't on meds - I should have said I had symptoms like hypo, but the numbers were always normal until lately - now they are going up, and I will likely be on meds soon. Hopefully that will correct itself though. My doc also thinks that a lot of my autoimmune symptoms are linked to adrenal problems (which then later cause thyroid trouble). We shall see when she calls back next week with the results. I suppose it could be some sort of withdrawal - the headaches usually wake me up at night though - I sense they are blood pressure related (I have low bp).

Eliza13 Contributor

I had pain in my knee and edema, which went away after 3 weeks on the diet. I also had what I believe was DH on my elbows, which went away spontaneously prior to going on the diet.

Skar.

jenvan Collaborator

thanks for the responses all...trying to play 'detective' ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,085
    • Most Online (within 30 mins)
      7,748

    M A Humphries
    Newest Member
    M A Humphries
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.