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Gluten-Free Basics?


striped-sweater

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striped-sweater Newbie

I am extremely new to the gluten free community; I was diagnosed with celiac disease 2 days ago. Just wanted to know:

 

-what kind of appliances and things do we absolutely have to replace?

-tips on eating out?

-what to do for retreats and summer camps (they will probably have mostly gluten to eat)

-where to buy gluten-free groceries?

-suggestions for everday, quick gluten free meals

- gluten-free store-bought meals? (canned, frozen, etc) me and my mom bought a few things, like gluten-free bread & Dinty Moore beef stew, but I can't live on that forever.

 

Luckily, I have some experience with living gluten-free. My mom went gluten free for some time about a year ago, and she would make gluten-free meals often. We also have some Glutino cereal and Gluten free pasta left over from that phase, haha. Which is good, because now for me, it is a necessity to live gluten free. 

 

Any tips from the veterans that they'd like to share? I am a young teenager, by the way, if it makes any difference.


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kareng Grand Master

Read this and have your mom do it too. Is she really just expecting you to figure it out on your own?

https://www.celiac.com/forums/topic/91878-newbie-info-101/

GFinDC Veteran

I am extremely new to the gluten free community; I was diagnosed with celiac disease 2 days ago. Just wanted to know:

 

-what kind of appliances and things do we absolutely have to replace?

Colanders, wooden and plastic if they are scratched and can't be cleaned well.   Wood you can sand off a layer if you want. and re-oil it.

 

-tips on eating out?

Don't.

 

-what to do for retreats and summer camps (they will probably have mostly gluten to eat)

Check with the camp etc before hand to see if the can accomodate your diet needs.   Some may be able to, but others won't.  You can bring lots of food with you or they can provide a place for you to cook your own meals.  You'd need to get some groceries in the area.

 

-where to buy gluten-free groceries?

Any health food store, and many regular grocery stores.   Look for items marked gluten-free. Online stores are good too.

 

-suggestions for everday, quick gluten free meals

Dessert thread

https://www.celiac.com/forums/topic/93840-whats-for-dessert-tonight/page__pid__802399#entry802399

Easy yummy bread in minutes

https://www.celiac.com/forums/topic/56641-easy-yummy-bread-in-minutes/

 

Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes

https://www.celiac.com/forums/topic/97786-thread-for-gluten-free-dairy-soy-corn-and-nightshade-free-recipes/

Super Easy Meal Ideas Anyone?

https://www.celiac.com/forums/topic/97027-super-easy-meal-ideas-anyone/

 

- gluten-free store-bought meals? (canned, frozen, etc) me and my mom bought a few things, like gluten-free bread & Dinty Moore beef stew, but I can't live on that forever.

Chex cereals and Peebles.

 

Luckily, I have some experience with living gluten-free. My mom went gluten free for some time about a year ago, and she would make gluten-free meals often. We also have some Glutino cereal and Gluten free pasta left over from that phase, haha. Which is good, because now for me, it is a necessity to live gluten free. 

 

Any tips from the veterans that they'd like to share? I am a young teenager, by the way, if it makes any difference.

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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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