Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Months Gluten-Free, Feel Like I'm Dying


Wheresthebeef

Recommended Posts

Wheresthebeef Rookie

I'm nearly 3 months out from my gluten free diet.  Things have been really rough for me. I'm starting to discover that fruit and starch and other high carb foods are not really good for me, especially if I eat too many of them.  I'm still very skinny.

 

I also discovered that I develop new allergies to foods if I eat them too much.  An IgE test proved it, I developed allergies to 3 vegetables I had been eating recently up until the appointment.

 

Today I just feel so anxious and sick.  I just can't wait for this day to end.  I know there's alot more people here that have it worse than I do too, but sometimes I just feel like I'm dying.

 

Edit: Anyone have to take iron supplements on top of this diet?  Wow, they hurt so much. >.>


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txgal748 Apprentice

Hi!

 

Fortunately I have not developed allergies to any food since going gluten-free.  I recommend you visit Mark's Daily Apple website and look into the primal blueprint diet.  Hang in there.  Maybe after your digestive system has had time to heal you may be able to add some foods back.

Good Luck!

PRG Newbie

I'm nearly 3 months out from my gluten free diet.  Things have been really rough for me. I'm starting to discover that fruit and starch and other high carb foods are not really good for me, especially if I eat too many of them.  I'm still very skinny.

 

I also discovered that I develop new allergies to foods if I eat them too much.  An IgE test proved it, I developed allergies to 3 vegetables I had been eating recently up until the appointment.

 

Today I just feel so anxious and sick.  I just can't wait for this day to end.  I know there's alot more people here that have it worse than I do too, but sometimes I just feel like I'm dying.

 

Edit: Anyone have to take iron supplements on top of this diet?  Wow, they hurt so much. >.>

Take heart. Be good to yourself, be patient, and consider that the "allergies" may not be permanent conditions at all, but instead temporary intolerances as your body adjusts and heals. I've been gluten-free for three months, and it's not always been smooth going. At first I feared I had a myriad of food intolerances in addition to gluten, but eventually I decided that I was paying such close attention to my body that I noticed every little thing. You'll likely find you can eat many things, in moderation, in several months. Until then, here are some things to try: my body responds EXTREMELY well to fish, kale, sauteed onions, garlic, flax seeds, sesame seeds, millet, amaranth, carrots, winter squash, and beets. Coconut is very good to me, as is green tea. Eat only whole foods--NO prepackaged gluten-free anything for a week and see if it helps. We're all different, but I feel bionic when I eat only whole foods.

 

As for an iron supplement, there's a naturally-derived iron supplement in liquid form (made in Germany) that I get from my local natural food store. It's expensive. But I was hospitalized for iron-deficiency anemia (I needed two blood transfusions before a doctor would even think about doing an endoscopy for a biopsy) and I'm regaining iron. It takes a long time for the body to convert food into heme iron and red blood cells. I left the hospital with a hemoglobin count of 10.9, and eight weeks later it was only 11.6. But hey, at least it's headed in the right direction.

flowerqueen Community Regular

You've had some good advice already on here, so there's not much to add. I would like to say though, that I was gluten free for over a year before I really started to feel better.   I was extremely anaemic too and the first type of iron tablet I was prescribed made me ill.  There are different types of iron medication, so it's worth the time to look into one which is more suitable. 

 

Even though it's been 16 months since I started my gluten free diet I still get 'flare-ups' which I can't always pin point what has caused them.  (Cross-contamination etc.) so you have to act like a detective sometimes.  Don't dispair, it will get better in time.

1desperateladysaved Proficient

I take iron and don't understand about any pain associated with it.  I take a capsule of powder.  Mine is very natural, just meat.

 

At 3 months gluten free, part of the time I felt like I was dying.  Keep in my the goal of better health.  You are going toward it, but it isn't all up hill.  Often my lowest points were followed by the strongest ones yet, so I am hoping you're about due for one of those.

 

Diana

StolenMockingbird Newbie

I had the same issue, except it was almost 2 1/2 years after I started the gluten-free diet. I would try the Specific Carbohydrate Diet, and I only say that because you mentioned starches and carbs. I'm really not the type to tell someone "This worked for me, it will work for you," but it might point you in the right direction. There are many similar diets that might be as helpful to you as SCD was for me.

Open Original Shared Link - This site really changed my life. I hope this helps.

  • 2 weeks later...
jiggles Apprentice

I also have difficulties taking iron , I take two sachets a day of spatone www.Spatone from boots pharmacy , I am in the UK but

It sounds just like the one PRG takes from Germany and I too find these type of supplements very kind and gentle on the tummy,

they are supposed to get absorbed very easily , even when my tummy was at its worst I had no problems taking this type of iron

and I also ate more meat ,

hope you start feeling better soon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    3. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

    4. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,691
    • Most Online (within 30 mins)
      7,748

    4Nic8ion
    Newest Member
    4Nic8ion
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.