Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutnen Free Oatmeal Trigger Reaction?


jamer

Recommended Posts

jamer Apprentice

Just curious if anyone has ever had a gluten type reaction to eating gluten free oatmeal? I'm having horrendous reflux since eating some this morning. I've also notice chocolate does this to me too...normal?

 

I never had a problem with either before my diagnosis with celiac disease. This is also the first time I've ate the oatmeal since going gluten-free in January.

 

Stumped.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Oatmeal can cause people to have similar reactions. I cannot eat it anymore because i get a stomach ache from it.

 

Chocolate, on the other hand, is one of the trigger foods for acid reflux. Some people can handle it, while others cannot.

 

You'll find as you go along that there are probably going to be foods that, before the gluten free diet, you had no issue with, but now do.

Adalaide Mentor

It is normal for oatmeal to cause that problem for some people. I know this may seem like a stupid question, but was it certified gluten free oatmeal? If not, there is no way to know if the reaction was the oatmeal or gluten.

Takala Enthusiast

Yes, I react badly to gluten-free oatmeal cross contamination, and this started years after giving up gluten.  I found out by eating snack foods with oatmeal fiber, and then started to react badly to the Bob's Red Mill brands of flours, because they mill gluten-free oatmeal in their facilities.  Oh, well.  A small percentage of us do. 

BabsV Enthusiast

If it was certified gluten free, how much did you eat? My nutritionist (who specializes in Celiac patients and is gluten-free herself) told me that oatmeal should only be ingested by those who are symptom-free and they should eat no more than 1/4 cup (precooked) at one time. Plus if you are at the beginning of the healing process it might have been too much for your system to handle!

 

Plus, what kind of chocolate was it? Lots seem to have 'shared equipment' issues...and depending on your tolerance levels that might contribute. I've found the only chocolate that doesn't bother me is Scharffen Berger, and I can only eat small amounts (like 1/8th of a bar) at a time due to fat malabsorption issues.)

jamer Apprentice

The chocolate I had was in Pamela's chocolate chip cookies and the oatmeal was certified gluten free. I think maybe half a cup. I'm having a hard time figuring out what I can eat and what is hurting my stomach. When I was diagnosed two months ago, I was pregnant at the time. I didn't know it until a few days later. When I'm pregnant, my stomach can handle anything. I can eat spicy, chocolate, oatmeal, and so on. I was following the gluten free diet a few days before the biopsy came back. The reflux was gone in a matter of days. Sadly, I had a miscarriage a month ago. So, now it's like starting over as to what my body is able to handle. I guess I will now add chocolate and oatmeal to the do not eat list.  Any flavorful suggestions on how to get fiber now? I've thought about getting some flax pills for it but is that as good as eating non gluten containing grains?

shadowicewolf Proficient

The chocolate I had was in Pamela's chocolate chip cookies and the oatmeal was certified gluten free. I think maybe half a cup. I'm having a hard time figuring out what I can eat and what is hurting my stomach. When I was diagnosed two months ago, I was pregnant at the time. I didn't know it until a few days later. When I'm pregnant, my stomach can handle anything. I can eat spicy, chocolate, oatmeal, and so on. I was following the gluten free diet a few days before the biopsy came back. The reflux was gone in a matter of days. Sadly, I had a miscarriage a month ago. So, now it's like starting over as to what my body is able to handle. I guess I will now add chocolate and oatmeal to the do not eat list.  Any flavorful suggestions on how to get fiber now? I've thought about getting some flax pills for it but is that as good as eating non gluten containing grains?

brown rice is pretty good if you can handle it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

I eat pure oatmeal from Bob's Red Mill about once a week, and have not had a problem so far. A minority of people with celiac disease react to pure oats--it seems that I am not a member of that club.

jamer Apprentice

I LOVE rice. It's one of my go to foods when my stomach is upset. Brown, white, whatever. I can tolerate that very well. I think I may try Bob's Mill. I always loved oatmeal and ate it regularly before the diagnosis. This disease just sucks.

Juliebove Rising Star

Gluten is not my issue but I do have GERD and an oat intolerance.  Chocolate usually gives me severe GERD!  The darker the chocolate the worse it is.  And I love the dark chocolate.  I have recently been making a vegan peanut butter fudge that has cocoa powder in it.  It works for me so long as I don't eat it too close to bedtime. 

 

Oats make me very sick to my stomach.

Gemini Experienced

The chocolate I had was in Pamela's chocolate chip cookies and the oatmeal was certified gluten free. I think maybe half a cup. I'm having a hard time figuring out what I can eat and what is hurting my stomach. When I was diagnosed two months ago, I was pregnant at the time. I didn't know it until a few days later. When I'm pregnant, my stomach can handle anything. I can eat spicy, chocolate, oatmeal, and so on. I was following the gluten free diet a few days before the biopsy came back. The reflux was gone in a matter of days. Sadly, I had a miscarriage a month ago. So, now it's like starting over as to what my body is able to handle. I guess I will now add chocolate and oatmeal to the do not eat list.  Any flavorful suggestions on how to get fiber now? I've thought about getting some flax pills for it but is that as good as eating non gluten containing grains?

 

I am so very sorry you suffered a miscarriage, jamer.  No wonder your stomach is so messed up!  It's hard to tell if gluten-free oats are giving you grief when you are going through so much turmoil.  Between the hormonal changes you must be going through and the fact you have not been gluten-free very long, I would just wait a bit and try them again.  My gut was totally trashed at diagnosis but after healing, I tolerate certified gluten-free oats very well.  I eat a lot of oatmeal too....always have.  I just make sure they are the certified kind and I have no problem.  I am sure once your gut heals better and your body gets back to normal, things will be better for you.  It is very common for women with active Celiac to suffer miscarriages and nfertility issues.

I am glad they diagnosed you so you can be well again.

 

As for fiber, veggies and fruits have a good abundance of that.  Try to include more in your diet.  Maybe also try some other gluten-free grains that are high in fiber like teff flour.  It is high in fiber and many other nutrients you are in need of now.  You can Google it and find some recipes on line using teff, if you are feeling motivated.  It makes good bread and I have a good recipe that is pretty easy if you are interested.

jamer Apprentice

Thanks Gemini. Luckily, I've never had fertility issues and as far as this miscarriage, it was twin to twin transfusion. Pathology also indicated a chromosonal defect. Still doesn't make it easier but I was super nervous it was from the Celiac. All of my blood levels are within normal limits. They were before my diagnosis. The only change from October to now is that my folate and B12 are on the lower end of normal. I've already added extra supplements in addition to my prenatal. We plan on trying to get pregnant again as soon as I have my first post D&C period. 

 

I hope I get to where I can tolerate oatmeal again. It's always (since childhood) been one of my favorite foods for anytime of the day. :)

cavernio Enthusiast

For what it's worth, the celiac society of canada still says to avoid all oats. It's only recently that oats have been considered safe for celiacs, since newer studies seem to show that it's simply trace amount of other grains mixed in with the oats that are the issue.

jamer Apprentice

For what it's worth, the celiac society of canada still says to avoid all oats. It's only recently that oats have been considered safe for celiacs, since newer studies seem to show that it's simply trace amount of other grains mixed in with the oats that are the issue.

 I think that is valuable information, thank you for sharing!!

psawyer Proficient

For what it's worth, the celiac society of canada still says to avoid all oats. It's only recently that oats have been considered safe for celiacs, since newer studies seem to show that it's simply trace amount of other grains mixed in with the oats that are the issue.

Who are the "celiac society of canada?" That is not the position of the Canadian Celiac Association.

Open Original Shared Link

Gemini Experienced

For what it's worth, the celiac society of canada still says to avoid all oats. It's only recently that oats have been considered safe for celiacs, since newer studies seem to show that it's simply trace amount of other grains mixed in with the oats that are the issue.

 

Pure, uncontaminated oats means just that.....uncontaminated.  There are some excellent sources for oats.  There are no trace amounts of other grains mixed in, unless you buy regular oats. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,244
    • Most Online (within 30 mins)
      7,748

    Peter McGill
    Newest Member
    Peter McGill
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      There are thirteen essential vitamins:  eight B vitamins, four fat soluble vitamins, and Vitamin C.  They all work together.   If you are deficient in one, you are probably low in the other dozen.  Celiac Disease affects the absorption of all the vitamins, and the dozen or so essential minerals, as well.  Cobalamine Vitamin B12, needs Folate B9 and Pyridoxine B6 to function properly.  Pyridoxine B6 needs Riboflavin B2.  Vitamin C is needed to interact with B12 as well.  Thiamine B1 and Niacin B3 are also needed to provide the energy for these vitamins to function properly.  If one is also low in Folate and Pyridoxine, B12 Cobalamine is not going to be able to function properly and the body doesn't bother to absorb it.   Vitamin D is safe even in high doses.  Vitamin D3 should be supplemented.  Vitamin D2 is not as well utilized because it's synthetic, not a form the body can utilize easily.  Vitamin D must be activated by Thiamine Vitamin B1.  Insufficient Thiamine B1 will make one feel "dopey".  Thiamine is needed for brain function.  The brain uses as much energy just thinking as your muscles do while running a marathon.   Multivitamins do not contain sufficient amounts of essential vitamins to correct nutritional deficiencies.  Supplementing with ALL eight B vitamins, extra Thiamine (don't use the form thiamine mononitrate because it's not absorbed nor utilized well), Vitamin C and the four fat soluble vitamins will be more beneficial than just supplementing one or two vitamins by themselves. With sufficient amounts of essential vitamins, the immune system gets regulated and becomes less reactive to other things like pollen, molds and animal dander.  Sleep apnea is frequently found in Thiamine insufficiency.  The eight essential B vitamins are water soluble and easily excreted if not needed.  The B vitamins all work together.  Supplement them together. Thiamine deficiency disorders: a clinical perspective https://pubmed.ncbi.nlm.nih.gov/33305487/  
    • Jane07
      i have been gluten free for about 2 yrs i had a ttg recently done my blood test was .7 higher then last time. i must be doing something wrong im still not in the normal range. What advice would anyone give?
    • Michelle Amirault-Packard
      He should definitely have his vitamin D and Vitamin B12 checked.  I have celiac and i always felt tired, sometimes i described it as dopy.My vitamin D is always low at times extremely low which can affect you. But  I also did some research and contacted my doctor to see if she checked my Vitamin B12 and She said she didn’t check my vitamin B-12 because a wasn’t Anemic and the normal protocol is , if you are not Anemic they don’t test for B-12.  She had no problem doing the test for me and it came back super super deficient . So I was given a shot of B12 once a week for 4 weeks and I give myself 1 shot intramuscular once a month now for 18 years. Once your B12 is low it can take a long time to bring it back up and sustain it. I think it took about 6 months to get a decent number and about a year to get it right. I do get my Vitamin D checked but not yearly more like every other year because it is a more expensive test and I tend to always be low. I do take a vitamin D supplement but I would talk to your doctor before taking a supplement to make sure you don’t take too much especially if you are already taking a multivitamin. Because too much D can also have some bad side effects.  Celiacs tend to be able to take a higher dose due to our digestive and malabsorption issues but always talk to your doctor before taking. Other things could be making him feel extremely tired  like new allergies like pollens, animals, molds etc.. sleep apnea is a huge one( cause extreme fatigue) and some medications. Just other things he can have checked! Good luck 
    • knitty kitty
      I suggest you eliminate dairy from your son's diet next.  Cow's milk protein, Casein, can trigger tTg IgA antibody production, the same as gluten, because casein contains segments of proteins that resemble gluten protein segments.   Mucosal reactivity to cow's milk protein in coeliac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/ I cannot consume dairy products.  Some people find they can tolerate A2 dairy without a reaction. Corn is another frequently hard to tolerate food because the protein zein in corn also resembles the protein structure of gluten.   Do research in Dr. Derrick Lonsdale and TTFD thiamine.  Taking TTFD really can make a dramatic difference, speaking from personal experience. https://hormonesmatter.com/energy-deficiency-asd/ Keep us posted on your progress!
    • Scott Adams
      It sounds like you're doing everything right with your gluten-free diet, yet still experiencing significant discomfort, which must be frustrating. Since your stool sample came back normal but symptoms persist, pushing for further investigation—like a colonoscopy or biopsy—is a reasonable next step. You might also want to discuss the possibility of additional conditions, such as IBS, microscopic colitis, or other inflammatory issues, with your doctor. Tracking your symptoms, diet, and triggers in detail could help identify patterns. Don’t hesitate to advocate for yourself—if your current doctor isn’t addressing your concerns, seeking a second opinion or a referral to a gastroenterologist could be beneficial. You’re right to seek answers, and I hope you find relief soon. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...