Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutnen Free Oatmeal Trigger Reaction?


jamer

Recommended Posts

jamer Apprentice

Just curious if anyone has ever had a gluten type reaction to eating gluten free oatmeal? I'm having horrendous reflux since eating some this morning. I've also notice chocolate does this to me too...normal?

 

I never had a problem with either before my diagnosis with celiac disease. This is also the first time I've ate the oatmeal since going gluten-free in January.

 

Stumped.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Oatmeal can cause people to have similar reactions. I cannot eat it anymore because i get a stomach ache from it.

 

Chocolate, on the other hand, is one of the trigger foods for acid reflux. Some people can handle it, while others cannot.

 

You'll find as you go along that there are probably going to be foods that, before the gluten free diet, you had no issue with, but now do.

Adalaide Mentor

It is normal for oatmeal to cause that problem for some people. I know this may seem like a stupid question, but was it certified gluten free oatmeal? If not, there is no way to know if the reaction was the oatmeal or gluten.

Takala Enthusiast

Yes, I react badly to gluten-free oatmeal cross contamination, and this started years after giving up gluten.  I found out by eating snack foods with oatmeal fiber, and then started to react badly to the Bob's Red Mill brands of flours, because they mill gluten-free oatmeal in their facilities.  Oh, well.  A small percentage of us do. 

BabsV Enthusiast

If it was certified gluten free, how much did you eat? My nutritionist (who specializes in Celiac patients and is gluten-free herself) told me that oatmeal should only be ingested by those who are symptom-free and they should eat no more than 1/4 cup (precooked) at one time. Plus if you are at the beginning of the healing process it might have been too much for your system to handle!

 

Plus, what kind of chocolate was it? Lots seem to have 'shared equipment' issues...and depending on your tolerance levels that might contribute. I've found the only chocolate that doesn't bother me is Scharffen Berger, and I can only eat small amounts (like 1/8th of a bar) at a time due to fat malabsorption issues.)

jamer Apprentice

The chocolate I had was in Pamela's chocolate chip cookies and the oatmeal was certified gluten free. I think maybe half a cup. I'm having a hard time figuring out what I can eat and what is hurting my stomach. When I was diagnosed two months ago, I was pregnant at the time. I didn't know it until a few days later. When I'm pregnant, my stomach can handle anything. I can eat spicy, chocolate, oatmeal, and so on. I was following the gluten free diet a few days before the biopsy came back. The reflux was gone in a matter of days. Sadly, I had a miscarriage a month ago. So, now it's like starting over as to what my body is able to handle. I guess I will now add chocolate and oatmeal to the do not eat list.  Any flavorful suggestions on how to get fiber now? I've thought about getting some flax pills for it but is that as good as eating non gluten containing grains?

shadowicewolf Proficient

The chocolate I had was in Pamela's chocolate chip cookies and the oatmeal was certified gluten free. I think maybe half a cup. I'm having a hard time figuring out what I can eat and what is hurting my stomach. When I was diagnosed two months ago, I was pregnant at the time. I didn't know it until a few days later. When I'm pregnant, my stomach can handle anything. I can eat spicy, chocolate, oatmeal, and so on. I was following the gluten free diet a few days before the biopsy came back. The reflux was gone in a matter of days. Sadly, I had a miscarriage a month ago. So, now it's like starting over as to what my body is able to handle. I guess I will now add chocolate and oatmeal to the do not eat list.  Any flavorful suggestions on how to get fiber now? I've thought about getting some flax pills for it but is that as good as eating non gluten containing grains?

brown rice is pretty good if you can handle it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

I eat pure oatmeal from Bob's Red Mill about once a week, and have not had a problem so far. A minority of people with celiac disease react to pure oats--it seems that I am not a member of that club.

jamer Apprentice

I LOVE rice. It's one of my go to foods when my stomach is upset. Brown, white, whatever. I can tolerate that very well. I think I may try Bob's Mill. I always loved oatmeal and ate it regularly before the diagnosis. This disease just sucks.

Juliebove Rising Star

Gluten is not my issue but I do have GERD and an oat intolerance.  Chocolate usually gives me severe GERD!  The darker the chocolate the worse it is.  And I love the dark chocolate.  I have recently been making a vegan peanut butter fudge that has cocoa powder in it.  It works for me so long as I don't eat it too close to bedtime. 

 

Oats make me very sick to my stomach.

Gemini Experienced

The chocolate I had was in Pamela's chocolate chip cookies and the oatmeal was certified gluten free. I think maybe half a cup. I'm having a hard time figuring out what I can eat and what is hurting my stomach. When I was diagnosed two months ago, I was pregnant at the time. I didn't know it until a few days later. When I'm pregnant, my stomach can handle anything. I can eat spicy, chocolate, oatmeal, and so on. I was following the gluten free diet a few days before the biopsy came back. The reflux was gone in a matter of days. Sadly, I had a miscarriage a month ago. So, now it's like starting over as to what my body is able to handle. I guess I will now add chocolate and oatmeal to the do not eat list.  Any flavorful suggestions on how to get fiber now? I've thought about getting some flax pills for it but is that as good as eating non gluten containing grains?

 

I am so very sorry you suffered a miscarriage, jamer.  No wonder your stomach is so messed up!  It's hard to tell if gluten-free oats are giving you grief when you are going through so much turmoil.  Between the hormonal changes you must be going through and the fact you have not been gluten-free very long, I would just wait a bit and try them again.  My gut was totally trashed at diagnosis but after healing, I tolerate certified gluten-free oats very well.  I eat a lot of oatmeal too....always have.  I just make sure they are the certified kind and I have no problem.  I am sure once your gut heals better and your body gets back to normal, things will be better for you.  It is very common for women with active Celiac to suffer miscarriages and nfertility issues.

I am glad they diagnosed you so you can be well again.

 

As for fiber, veggies and fruits have a good abundance of that.  Try to include more in your diet.  Maybe also try some other gluten-free grains that are high in fiber like teff flour.  It is high in fiber and many other nutrients you are in need of now.  You can Google it and find some recipes on line using teff, if you are feeling motivated.  It makes good bread and I have a good recipe that is pretty easy if you are interested.

jamer Apprentice

Thanks Gemini. Luckily, I've never had fertility issues and as far as this miscarriage, it was twin to twin transfusion. Pathology also indicated a chromosonal defect. Still doesn't make it easier but I was super nervous it was from the Celiac. All of my blood levels are within normal limits. They were before my diagnosis. The only change from October to now is that my folate and B12 are on the lower end of normal. I've already added extra supplements in addition to my prenatal. We plan on trying to get pregnant again as soon as I have my first post D&C period. 

 

I hope I get to where I can tolerate oatmeal again. It's always (since childhood) been one of my favorite foods for anytime of the day. :)

cavernio Enthusiast

For what it's worth, the celiac society of canada still says to avoid all oats. It's only recently that oats have been considered safe for celiacs, since newer studies seem to show that it's simply trace amount of other grains mixed in with the oats that are the issue.

jamer Apprentice

For what it's worth, the celiac society of canada still says to avoid all oats. It's only recently that oats have been considered safe for celiacs, since newer studies seem to show that it's simply trace amount of other grains mixed in with the oats that are the issue.

 I think that is valuable information, thank you for sharing!!

psawyer Proficient

For what it's worth, the celiac society of canada still says to avoid all oats. It's only recently that oats have been considered safe for celiacs, since newer studies seem to show that it's simply trace amount of other grains mixed in with the oats that are the issue.

Who are the "celiac society of canada?" That is not the position of the Canadian Celiac Association.

Open Original Shared Link

Gemini Experienced

For what it's worth, the celiac society of canada still says to avoid all oats. It's only recently that oats have been considered safe for celiacs, since newer studies seem to show that it's simply trace amount of other grains mixed in with the oats that are the issue.

 

Pure, uncontaminated oats means just that.....uncontaminated.  There are some excellent sources for oats.  There are no trace amounts of other grains mixed in, unless you buy regular oats. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,020
    • Most Online (within 30 mins)
      7,748

    Healthyone
    Newest Member
    Healthyone
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.