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Malabsorption, Depersonalization, Migraines And Gluten Oh My!


MIgrainePosterChild

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MIgrainePosterChild Newbie

hey all, I am a Gluten free newbie and a member of the community suggested I should introduce myself and explain my situation in a new thread, so here goes:

 

The things you need to know about me:

I am in my early 30s. I have had hemiplegic migraines inherited from my dad since I was six or 7. Aura with the migraines usually runs the full gamut from visual distrurbances, to numbness, to disorientation to severe headaches. I have been overweight since puberty hit, and have had GI issues since middle school or high school, but I have dropped 16 pounds since moving from CA to OR in August and trying to start a healthier lifestyle and I am still having GI issues. 

 

Somehow the "out of body" feelings and visual disturbances that I used to associate with my migraine aura, became prolonged to the point where I am now feeling them every day. Doctors tried to treat for migraines rather than GI issues and since they couldn't understand what my "out of body feelings were", I lost a few jobs in a row as the result of not being able to be reliable. In doing my own research to find out why I was feeling inexplicably sick every day, my symptoms matched those of malabsorption. My picture could have been next to the description. Gluten and possibly lactose intolerance seemed to be the underlying causes for malabsorption  and possible depersonalization (my out of body feelings) so I am now attempting to go 100% gluten free to see if it will fix my issues. I am finding it really difficult for two reasons: #1 I don't know how to cook. I'm used to eating out and grabbing snacks or frozen foods. #2 I am a cheese-a-holic (not so good for avoiding dairy) and #3 hubby and I can barely pay the rent, let alone by all the food we need (though the financial assistance question someone asked in here was very helpful). My doctor just ran a test today for B12 deficiency and I am waiting on the results. She has recommended that I should see a psychiatrist, a GI Specialist and a neurologist, none of which I can do because I have no money!

 

So....I am basically in a constant state of zombie mode, fatigued, stressed, gassy, constipated, sleep deprived, starving, and feeling completely lost when anyone mentions cooking. I just really need some help and advice!

 

 


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mamat78 Apprentice

hey all, I am a Gluten free newbie and a member of the community suggested I should introduce myself and explain my situation in a new thread, so here goes:

 

The things you need to know about me:

I am in my early 30s. I have had hemiplegic migraines inherited from my dad since I was six or 7. Aura with the migraines usually runs the full gamut from visual distrurbances, to numbness, to disorientation to severe headaches. I have been overweight since puberty hit, and have had GI issues since middle school or high school, but I have dropped 16 pounds since moving from CA to OR in August and trying to start a healthier lifestyle and I am still having GI issues. 

 

Somehow the "out of body" feelings and visual disturbances that I used to associate with my migraine aura, became prolonged to the point where I am now feeling them every day. Doctors tried to treat for migraines rather than GI issues and since they couldn't understand what my "out of body feelings were", I lost a few jobs in a row as the result of not being able to be reliable. In doing my own research to find out why I was feeling inexplicably sick every day, my symptoms matched those of malabsorption. My picture could have been next to the description. Gluten and possibly lactose intolerance seemed to be the underlying causes for malabsorption  and possible depersonalization (my out of body feelings) so I am now attempting to go 100% gluten free to see if it will fix my issues. I am finding it really difficult for two reasons: #1 I don't know how to cook. I'm used to eating out and grabbing snacks or frozen foods. #2 I am a cheese-a-holic (not so good for avoiding dairy) and #3 hubby and I can barely pay the rent, let alone by all the food we need (though the financial assistance question someone asked in here was very helpful). My doctor just ran a test today for B12 deficiency and I am waiting on the results. She has recommended that I should see a psychiatrist, a GI Specialist and a neurologist, none of which I can do because I have no money!

 

So....I am basically in a constant state of zombie mode, fatigued, stressed, gassy, constipated, sleep deprived, starving, and feeling completely lost when anyone mentions cooking. I just really need some help and advice!

I am also new to this whole thing but what I can say about gluten free eating is before you have to go spend a whole bunch of money to try to "replace" gluten foods (like pasta, breads etc) try going whole foods like fruits,veggies, meats, nuts. There are lots of gluten free deli meats as well. At least those are good, quick grabbing foods that arent too expensive or out of reach. Also rice crackers and such that are gluten free and easy snacks can be helpful. At this point, I am just adjusting my cooking  but not attempting yet to replace faviourites with gluten free substitutes as that is where I need to do some special shopping and planning! 

Good luck! 

cavernio Enthusiast

Good of you to try the gluten free diet!

Firstly, I will suggest that you strongly consider getting tested for celiac disease BEFORE starting you gluten-free diet. Being diagnosed as a celiac will mean doctors will actually consider you one instead of potential dismissals of your health problems and personal gluten-eating experience. It could also make adhering to the gluten free diet easier if you have certainty. And finally, if you go gluten free now, as bad as you're feeling, if you decide later that you want to be tested for celiac disease, gluten might make you feel much worse. (You need to be eating gluten for accurate celiac test results.)

I can't help you with the money, but I have a pretty low opinion about psychiatry-they try to treat symptoms, often ineffectually using drugs that can have weird side-effects, instead of looking for a cause and then solving it. 

The only doctor necessary to diagnose celiac disease would be the gastroenterologist.  

If you find being strictly gluten free isn't helping, your symptoms largely seem neurological, and I'd opt to see a neurologist.

 

All that said, I personally find that because I don't eat out anywhere because I don't trust anywhere, I save money on food. Me and my husband both, actually, since he's gluten-free for me :-) Once a week pizza, once a week restaurant dinner, and regular daily snacks or lunches at work all adds up. Cheese is also expensive, (especially the good ones), and I also find that I hardly any food goes bad in the fridge for me now. Lots of ways being gluten-free saves me money.

As far as cooking goes, I can't relate to not knowing how to cook as an adult, but the best foods to eat as a celiac are really quite simple. Fresh vegetables, steamed or raw, and plain meat and seafood are always going to be safe, healthy staples. My weekly meals always consist of a roast early in the week with potatoes, then usually a meal or with leftover roast (some sort of casserole or stew or curry with veggies), a seafood dish, (shrimp, fried fish), a stir fry (just a bunch of veggies chopped and sauteed shortly in batches on a hot oiled pan, meat or tofu optional, add a gluten-free sauce or find a recipe and make your own), with or without plain rice, a soup using bones from said roast (with or without drippings) or shrimp peelings, a legume dish-lentils or baked beans/chili, and of course things like pork chops, chickent breasts, steaks, liver. Always have lots of greens and extra (cucumber, tomato, peppers, etc) for fresh salads, they make a great side to every meal and require little work, and plenty of other vegetables to steam or boil or munch on raw. Fruits are a big part of our snacking now, and some can get pricey, but if you stick with what's on special (which is usually what's in season), it's a lot cheaper. Making plain food tasty often relies on spices. Some may not be safe, but many brands, if you contact them, will let you know. (I just recently found a curry powder I think I can trust), The fresh ones are always safe.

If you're really strapped for cash, find the old produce section of the grocery store if you have one, and buy those veggies the day you need them. Some fruits like oranges and grapefruit last a long time in a fridge. Other ones like berries don't.

Lunches for me are leftovers from the night before, but I make my husband a sandwich using a gluten-free bread (he likes el peto potato or flax) with mayo or avocado and safe sandwich meat (or leftover roast....you can't go wrong with a roast...beef, porf, chicken, lamb, they're all good!), a gluten-free oat free nut bar he can eat (I'm not eating any of them atm), and at least 2 pieces of fruit/veggies.

Eggs are incredibly good and fast for breakfast, lunch  or dinner, and potatoes and sweet potatoes are excellent starch sides.

Smoothies make fast breakfasts. Almond Breeze is a tasty, safe milk substitute, and those cans of coconut milk subsitute well for cream in recipes.

 

There are a lot more options, like gluten-free pastas from rice flour or quinoa, (nothing's easier than boiling noodles and throwing on a jar of safe tomato sauce), whole grains for cereals like amaranth, crackers, muffins, breads. However, the more grains and manufactured products you eat, the more chances you have of getting too much gluten. Most of these products have safe traces of gluten, but a few of us react to even small amounts, or other various grains. It will be easier if, when you first adjust from a wheat-filled diet, to avoid these as much as possible, than to find you're still not feeling well and then try to change recipes you finally perfected, using products that you might react to.

 

As you begin to cook more, you'll find more foods that you'll always want around. Our household ones are potatoes, rice, garlic, onions, milk substitute, coconut milk, carrots, banana, apples, oranges, olive oil, sort sort of animal fat (I'm avoiding grain/sunflower oils,) eggs, bread, mayo, tomatoes, some sort of leafy green, frozen peas, lentils, beans, and enough spices that they're taking over the counter-top.

MIgrainePosterChild Newbie

Good of you to try the gluten free diet!

Firstly, I will suggest that you strongly consider getting tested for celiac disease BEFORE starting you gluten-free diet. Being diagnosed as a celiac will mean doctors will actually consider you one instead of potential dismissals of your health problems and personal gluten-eating experience. It could also make adhering to the gluten free diet easier if you have certainty. And finally, if you go gluten free now, as bad as you're feeling, if you decide later that you want to be tested for celiac disease, gluten might make you feel much worse. (You need to be eating gluten for accurate celiac test results.)

I can't help you with the money, but I have a pretty low opinion about psychiatry-they try to treat symptoms, often ineffectually using drugs that can have weird side-effects, instead of looking for a cause and then solving it. 

The only doctor necessary to diagnose celiac disease would be the gastroenterologist.  

If you find being strictly gluten free isn't helping, your symptoms largely seem neurological, and I'd opt to see a neurologist.

 

All that said, I personally find that because I don't eat out anywhere because I don't trust anywhere, I save money on food. Me and my husband both, actually, since he's gluten-free for me :-) Once a week pizza, once a week restaurant dinner, and regular daily snacks or lunches at work all adds up. Cheese is also expensive, (especially the good ones), and I also find that I hardly any food goes bad in the fridge for me now. Lots of ways being gluten-free saves me money.

As far as cooking goes, I can't relate to not knowing how to cook as an adult, but the best foods to eat as a celiac are really quite simple. Fresh vegetables, steamed or raw, and plain meat and seafood are always going to be safe, healthy staples. My weekly meals always consist of a roast early in the week with potatoes, then usually a meal or with leftover roast (some sort of casserole or stew or curry with veggies), a seafood dish, (shrimp, fried fish), a stir fry (just a bunch of veggies chopped and sauteed shortly in batches on a hot oiled pan, meat or tofu optional, add a gluten-free sauce or find a recipe and make your own), with or without plain rice, a soup using bones from said roast (with or without drippings) or shrimp peelings, a legume dish-lentils or baked beans/chili, and of course things like pork chops, chickent breasts, steaks, liver. Always have lots of greens and extra (cucumber, tomato, peppers, etc) for fresh salads, they make a great side to every meal and require little work, and plenty of other vegetables to steam or boil or munch on raw. Fruits are a big part of our snacking now, and some can get pricey, but if you stick with what's on special (which is usually what's in season), it's a lot cheaper. Making plain food tasty often relies on spices. Some may not be safe, but many brands, if you contact them, will let you know. (I just recently found a curry powder I think I can trust), The fresh ones are always safe.

If you're really strapped for cash, find the old produce section of the grocery store if you have one, and buy those veggies the day you need them. Some fruits like oranges and grapefruit last a long time in a fridge. Other ones like berries don't.

Lunches for me are leftovers from the night before, but I make my husband a sandwich using a gluten-free bread (he likes el peto potato or flax) with mayo or avocado and safe sandwich meat (or leftover roast....you can't go wrong with a roast...beef, porf, chicken, lamb, they're all good!), a gluten-free oat free nut bar he can eat (I'm not eating any of them atm), and at least 2 pieces of fruit/veggies.

Eggs are incredibly good and fast for breakfast, lunch  or dinner, and potatoes and sweet potatoes are excellent starch sides.

Smoothies make fast breakfasts. Almond Breeze is a tasty, safe milk substitute, and those cans of coconut milk subsitute well for cream in recipes.

 

There are a lot more options, like gluten-free pastas from rice flour or quinoa, (nothing's easier than boiling noodles and throwing on a jar of safe tomato sauce), whole grains for cereals like amaranth, crackers, muffins, breads. However, the more grains and manufactured products you eat, the more chances you have of getting too much gluten. Most of these products have safe traces of gluten, but a few of us react to even small amounts, or other various grains. It will be easier if, when you first adjust from a wheat-filled diet, to avoid these as much as possible, than to find you're still not feeling well and then try to change recipes you finally perfected, using products that you might react to.

 

As you begin to cook more, you'll find more foods that you'll always want around. Our household ones are potatoes, rice, garlic, onions, milk substitute, coconut milk, carrots, banana, apples, oranges, olive oil, sort sort of animal fat (I'm avoiding grain/sunflower oils,) eggs, bread, mayo, tomatoes, some sort of leafy green, frozen peas, lentils, beans, and enough spices that they're taking over the counter-top.

Thank you for the detailed advice. =)

GFinDC Veteran

Hi MPC,

 

Try simplifying your diet for a while.  Processed foods are full of various chemicals that your body needs to detoxify and remove.  While you are healing it is better not to put that extra strain on your system.  Instead eat whole foods like veggies, meats, fruits, nuts.  gluten-free bread is usually quite expensive but  a cheap sub is Mission corn tortillas.  You can warm them up a little so they fold easier, and use a couple to make a wrap.

 

Gluten can cause brain damage via gluten ataxia.  That may be a cause of your migraines, don't know tho.  But it is something to research anyway.

 

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.

Helpful threads:

FAQ Celiac com
https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101
https://www.celiac.com/forums/topic/91878-newbie-info-101/

What's For Breakfast Today?
https://www.celiac.com/forums/topic/81858-whats-for-breakfast-today/

 

Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes
https://www.celiac.com/forums/topic/97786-thread-for-gluten-free-dairy-soy-corn-and-nightshade-free-recipes/

Super Easy Meal Ideas Anyone?
https://www.celiac.com/forums/topic/97027-super-easy-meal-ideas-anyone/

eyebbb Newbie

hey all, I am a Gluten free newbie and a member of the community suggested I should introduce myself and explain my situation in a new thread, so here goes:

 

The things you need to know about me:

I am in my early 30s. I have had hemiplegic migraines inherited from my dad since I was six or 7. Aura with the migraines usually runs the full gamut from visual distrurbances, to numbness, to disorientation to severe headaches. I have been overweight since puberty hit, and have had GI issues since middle school or high school, but I have dropped 16 pounds since moving from CA to OR in August and trying to start a healthier lifestyle and I am still having GI issues. 

 

Somehow the "out of body" feelings and visual disturbances that I used to associate with my migraine aura, became prolonged to the point where I am now feeling them every day. Doctors tried to treat for migraines rather than GI issues and since they couldn't understand what my "out of body feelings were", I lost a few jobs in a row as the result of not being able to be reliable. In doing my own research to find out why I was feeling inexplicably sick every day, my symptoms matched those of malabsorption. My picture could have been next to the description. Gluten and possibly lactose intolerance seemed to be the underlying causes for malabsorption  and possible depersonalization (my out of body feelings) so I am now attempting to go 100% gluten free to see if it will fix my issues. I am finding it really difficult for two reasons: #1 I don't know how to cook. I'm used to eating out and grabbing snacks or frozen foods. #2 I am a cheese-a-holic (not so good for avoiding dairy) and #3 hubby and I can barely pay the rent, let alone by all the food we need (though the financial assistance question someone asked in here was very helpful). My doctor just ran a test today for B12 deficiency and I am waiting on the results. She has recommended that I should see a psychiatrist, a GI Specialist and a neurologist, none of which I can do because I have no money!

 

So....I am basically in a constant state of zombie mode, fatigued, stressed, gassy, constipated, sleep deprived, starving, and feeling completely lost when anyone mentions cooking. I just really need some help and advice!

Hi MigrainePosterChild.  I am brand new to this site.  Yours is the first post I've read, and I totally relate to your plight because it's almost identical to mine.  Here's the brief version of my story and what has helped me.  After being increasingly ill for about 15 years, to the point of severe gastritis, down to 92 pounds, and only able to eat a few veggies and rice for 2 1/2 years til the gastritis healed... blah, blah...  I finally recently found a doctor who got me diagnosed.  I have celiac, but the test/biopsies show negative or low likelihood of having it because my IaG is low - meaning I have a weak immune system.  At any rate, as a result of being sick for so long, my cholesterol is through the roof, my liver enzymes are elevated, my blood calcium is high, and some other stuff.  But I'm working on healing.  Here is what I've done and has worked for me.

 

Here is the celiac diet you need to follow at least for now.  Eat only meat, dairy, veggies, rice, and fruits.  Avoid grains other than rice for now.  I also can't eat oatmeal or oats of any kind.  If you have trouble digesting meat, avoid it for now too.  Eat as much as you want though.  Also, if you're hungry a lot and not able to get enough calories through eating, drink Ensure for muscles.  You can buy it in the grocery store.  You need a lot of protein right now unless you're having kidney problems, then you need to ask your doctor about diet.

 

Here is the migraine treatment you need to follow for now.  Avoid all alcohol, anything with vinegar or that has been fermented, like yogurt.  Don't eat cheese of any kind.  Don't use meat tenderizer or marinate meat.  You want to avoid any food that has been "aged."  Don't eat any produce with red or pink skin.  It has an enzyme that sets off your migraines.  Take 400 mg of B2 daily, and 400 mg of magnesium daily.  It will help with the headaches and auras.  Eat only canned or frozen produce.  The "fresh" produce in stores is not fresh.  It has been on trucks and shelves for a week or so and has started breaking down (meaning it is aging), so don't eat it.  If you eat lunch meats, buy only the ones that have no nitrites or nitrates added to them.  It will say so on the package.

 

Buy gluten free Rice Krispies, Rice Chex or Corn Chex for quick cereals.   For soup, I buy packages of Thai Kitchen soups.  They cook up in just a few minutes and taste good.  I add meat or veggies to them.  Keep some canned or cooked meat on hand for quick meals.  I use canned veggies, so it just takes a minute or two to heat them up.  Be sure the ingredient labels say just the veggies and water to avoid possible gluten contamination.  I also use Betty Crocker gluten free instant potatoes to make mashed potatoes.  I use gluten free Bisquick to make biscuits, pancakes, and also to make milk gravy, and recipes are on the box or you can find them on internet.

 

I've developed an allergy to eggs, so when I cook, I use unflavored gelatin in place of eggs.  Two packets replace one egg.

 

Cooking:  you don't have to know much.  For one person only, buy 3 packages of hamburger, a beef roast, a pork roast, a turkey breast, 2 packages of chicken breasts and a ham.  That will be enough meat to last you a month or two, depending on how much you eat.  Buy some Pam non-stick spray.  Buy a small roaster pan to cook with.  Spray the pan with Pam, just a light coating.  Turn oven to 300 degrees.  Stick meat in the roaster, put the lid on it, put it in the oven.  Let it cook for an hour or two, depending on the size.  Check it to see how it's cooking.  Then turn oven to 350 or 400 degrees to finish it off.  When checking, cut into the meat in the middle to see how pink it is.  I like meat well done, so I cook it longer on low heat to keep it moist and avoid it burning.  If you like lean meat (more pink), you won't need to cook it as long.  You'll just have to do it to learn it.  But really, once you do it a couple of times, it's pretty easy.  I use garlic, salt or Picante Sauce to season meat.

 

We also eat a lot of spaghetti.  Buy the gluten free pasta and sauce.  I use hamburger to roll meat balls and cook them in the sauce.

 

I used to shop a lot at Vitamin Cottage because that was the only place where I live that had gluten free foods, but now I'm finding things at a small local grocer we have here and also a few things at some of the large chain grocers, so it is getting easier to find products.  I also get a lot of stuff on Amazon.  Just search for "gluten free"

 

So, cook some meat, or open a can of meat, heat up a can or two of veggies and you have dinner.

 

You will learn to read labels carefully when you're grocery shopping, and before long, you'll spot ingredients on labels that you want to avoid and won't waste much time reading the labels.

 

Hope this helps!

MIgrainePosterChild Newbie

Hi MigrainePosterChild.  I am brand new to this site.  Yours is the first post I've read, and I totally relate to your plight because it's almost identical to mine.  Here's the brief version of my story and what has helped me.  After being increasingly ill for about 15 years, to the point of severe gastritis, down to 92 pounds, and only able to eat a few veggies and rice for 2 1/2 years til the gastritis healed... blah, blah...  I finally recently found a doctor who got me diagnosed.  I have celiac, but the test/biopsies show negative or low likelihood of having it because my IaG is low - meaning I have a weak immune system.  At any rate, as a result of being sick for so long, my cholesterol is through the roof, my liver enzymes are elevated, my blood calcium is high, and some other stuff.  But I'm working on healing.  Here is what I've done and has worked for me.

 

Here is the celiac diet you need to follow at least for now.  Eat only meat, dairy, veggies, rice, and fruits.  Avoid grains other than rice for now.  I also can't eat oatmeal or oats of any kind.  If you have trouble digesting meat, avoid it for now too.  Eat as much as you want though.  Also, if you're hungry a lot and not able to get enough calories through eating, drink Ensure for muscles.  You can buy it in the grocery store.  You need a lot of protein right now unless you're having kidney problems, then you need to ask your doctor about diet.

 

Here is the migraine treatment you need to follow for now.  Avoid all alcohol, anything with vinegar or that has been fermented, like yogurt.  Don't eat cheese of any kind.  Don't use meat tenderizer or marinate meat.  You want to avoid any food that has been "aged."  Don't eat any produce with red or pink skin.  It has an enzyme that sets off your migraines.  Take 400 mg of B2 daily, and 400 mg of magnesium daily.  It will help with the headaches and auras.  Eat only canned or frozen produce.  The "fresh" produce in stores is not fresh.  It has been on trucks and shelves for a week or so and has started breaking down (meaning it is aging), so don't eat it.  If you eat lunch meats, buy only the ones that have no nitrites or nitrates added to them.  It will say so on the package.

 

Buy gluten free Rice Krispies, Rice Chex or Corn Chex for quick cereals.   For soup, I buy packages of Thai Kitchen soups.  They cook up in just a few minutes and taste good.  I add meat or veggies to them.  Keep some canned or cooked meat on hand for quick meals.  I use canned veggies, so it just takes a minute or two to heat them up.  Be sure the ingredient labels say just the veggies and water to avoid possible gluten contamination.  I also use Betty Crocker gluten free instant potatoes to make mashed potatoes.  I use gluten free Bisquick to make biscuits, pancakes, and also to make milk gravy, and recipes are on the box or you can find them on internet.

 

I've developed an allergy to eggs, so when I cook, I use unflavored gelatin in place of eggs.  Two packets replace one egg.

 

Cooking:  you don't have to know much.  For one person only, buy 3 packages of hamburger, a beef roast, a pork roast, a turkey breast, 2 packages of chicken breasts and a ham.  That will be enough meat to last you a month or two, depending on how much you eat.  Buy some Pam non-stick spray.  Buy a small roaster pan to cook with.  Spray the pan with Pam, just a light coating.  Turn oven to 300 degrees.  Stick meat in the roaster, put the lid on it, put it in the oven.  Let it cook for an hour or two, depending on the size.  Check it to see how it's cooking.  Then turn oven to 350 or 400 degrees to finish it off.  When checking, cut into the meat in the middle to see how pink it is.  I like meat well done, so I cook it longer on low heat to keep it moist and avoid it burning.  If you like lean meat (more pink), you won't need to cook it as long.  You'll just have to do it to learn it.  But really, once you do it a couple of times, it's pretty easy.  I use garlic, salt or Picante Sauce to season meat.

 

We also eat a lot of spaghetti.  Buy the gluten free pasta and sauce.  I use hamburger to roll meat balls and cook them in the sauce.

 

I used to shop a lot at Vitamin Cottage because that was the only place where I live that had gluten free foods, but now I'm finding things at a small local grocer we have here and also a few things at some of the large chain grocers, so it is getting easier to find products.  I also get a lot of stuff on Amazon.  Just search for "gluten free"

 

So, cook some meat, or open a can of meat, heat up a can or two of veggies and you have dinner.

 

You will learn to read labels carefully when you're grocery shopping, and before long, you'll spot ingredients on labels that you want to avoid and won't waste much time reading the labels.

 

Hope this helps!

Thank you, you have given me a lot to think about.


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Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MIgrainePosterChild Newbie

Hi MPC,

 

Try simplifying your diet for a while.  Processed foods are full of various chemicals that your body needs to detoxify and remove.  While you are healing it is better not to put that extra strain on your system.  Instead eat whole foods like veggies, meats, fruits, nuts.  gluten-free bread is usually quite expensive but  a cheap sub is Mission corn tortillas.  You can warm them up a little so they fold easier, and use a couple to make a wrap.

 

Gluten can cause brain damage via gluten ataxia.  That may be a cause of your migraines, don't know tho.  But it is something to research anyway.

 

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

Helpful threads:

FAQ Celiac com

https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

https://www.celiac.com/forums/topic/91878-newbie-info-101/

What's For Breakfast Today?

https://www.celiac.com/forums/topic/81858-whats-for-breakfast-today/

 

Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes

https://www.celiac.com/forums/topic/97786-thread-for-gluten-free-dairy-soy-corn-and-nightshade-free-recipes/

Super Easy Meal Ideas Anyone?

https://www.celiac.com/forums/topic/97027-super-easy-meal-ideas-anyone/

Thank you! I have visited some of these threads already, but the others will be helpful too.

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    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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