Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Sensitive Is It Possible To Be?


wartburg03

Recommended Posts

wartburg03 Rookie

I've been gluten free for 3 months, and after having my blood sugar go insane for the first 2 months, I am finally healing and feeling good. A friend stayed with me for 3 days recently and only ate gluten containing foods twice, a sandwich and a hamburger bun. She was really careful to clean up afterward and not share utensils or double-dip into the peanut butter jar. We also ate at the mall food court (but packed our own lunches, my friend eating her wheat bread sandwich across from me. I did touch her ziploc bag briefly), then took a trip to Whole Foods. At the end of the shopping trip I began experiencing some mild gluten symptoms which have continued for 2 days so far. Is it possible for me to be that sensitive to a bread crumb? Could I have touched something at Whole Foods? Was the table at the food court contaminated? I'm new to this gluten free diet, live alone, and have not dared to eat out yet, so I'm not sure how sensitive a person can be or if maybe I did accidentally eat something (but I can't think of anything I ate that was new). Does anyone else react to such minute things?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Daura Damm
Lakefront Brewery



Celiac.com Sponsor (A8-M):
Little Northern Bakehouse


Takala Enthusiast

It could be anything, so don't worry if you don't figure out every source.  If I eat in public, I try to wash my hands first and rinse them really well if I have been touching a lot of stuff before sitting down.  And my dear spouse will get extra paper napkins for me to lay out so nothing touches the table, even if it has been cleaned recently.   But you could have been reacting to something you ate at home, also.  It takes a while to figure out all the possible vectors that gluten can sneak in on. 

wartburg03 Rookie

Thanks. The napkins are a good idea. I didn't want to go overboard, but maybe it's worth it if it will keep me from reacting.

dilettantesteph Collaborator

It is possible to be that sensitive.  It can take awhile to figure out your level of sensitivity.  Don't assume the worst.  It is possible to get a crumb somewhere but not see it.  Many celiacs find that they need a gluten free household to avoid accidental gluten contamination, so that could be it.  Or, the table could easily have not been cleaned, or not cleaned well at the food court, and an unseen crumb could have gotten in your food somehow.  We always uses utensils (our own) when eating in public.  Even if you can get your hands well washed, you end up having to touch other things like the door and the chair before you get to touching your food.  

 

I hope that you feel better soon and can avoid this in the future.

wartburg03 Rookie

Thank you. I try and be very mindful, but I can always do better. I have to eat at a restaurant tomorrow for my sister's bachelorette party. I was already planning on bringing my own spices but now I'll bring my own silverware too.

  • 2 weeks later...
lbeehenderson Newbie

I have been gluten free for almost 3 years now and still get symptoms occasionally.  My boyfriend and I have a gluten free house hold but, as a grad student, I sometimes have to eat at school or pass out from lack of food.  Today I have been feeling awful! Distended belly, anxiety, exhaustion, blurred vision, foggy, bloated, faint, sad, etc.  I am always careful about the food I eat but, I guess I am more sensitive than I thought.  

 

How have people figured out their sensitivity level?  I thought I was ok as long as I didn't eat it directly but, who knows now.... 

kareng Grand Master
  On 4/18/2013 at 12:24 AM, lbeehenderson said:

I have been gluten free for almost 3 years now and still get symptoms occasionally.  My boyfriend and I have a gluten free house hold but, as a grad student, I sometimes have to eat at school or pass out from lack of food.  Today I have been feeling awful! Distended belly, anxiety, exhaustion, blurred vision, foggy, bloated, faint, sad, etc.  I am always careful about the food I eat but, I guess I am more sensitive than I thought.  

 

How have people figured out their sensitivity level?  I thought I was ok as long as I didn't eat it directly but, who knows now.... 

I think most of the Super Sensitives would never eat at a school cafeteria/ food court.

I'm not extra sensitive, but I always make sure I have some safe food with me - a packet of nuts, or pack a lunch


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Food for Life
Tierra Farm



Celiac.com Sponsor (A8-M):
Lakefront Brewery


dilettantesteph Collaborator

One way I knew I was extremely sensitive was when I ate a tiny bite of a gluten-free cookie, just to taste it.  It was from a company that is very responsible, has gluten-free facilities and tests to make sure that their food is under 20 ppm.  That tiny bite made me sick.  That way I knew that if I wanted to eat a whole cookie, it needed to be far under 20 ppm.  I have had this sort of experience many times.

 

I don't think that you need to be all that sensitive to get sick from a food court.  The people working there won't necessarily have good training in food preparation for people with allergies.  From what I have read, you do better at higher end restaurants.  I personally gave up on such things fairly early on due to too many bad experiences.  You would probably be wise to follow Kareng's and carry food with you, or go to carefully vetted places. 

 

I hope you feel better soon.

1desperateladysaved Proficient

I am pondering carrying my own table and chair.  Then I could avoid using picnic tables, but have a nicer place to eat over the summertime.  I have been told by a doctor to eat at home.  My body is being very touchy on me.  Thank God for my car oven and supply of paper utensils in the car and ready!  I bring the food, or shop at the coop for it when I go out.

 

Diana

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      130,217
    • Most Online (within 30 mins)
      7,748

    zappanh
    Newest Member
    zappanh
    Joined

  • Celiac.com Sponsor (A20):
    GliadinX


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Daura Damm



  • Upcoming Events

  • Posts

    • trents
      Hello, Jeff and yes, PTL! The word "marker" is typically used in connection with gene testing but gene testing is not usually where testing for celiac disease starts. It usually starts with blood work looking for antibodies that are more or less specific to celiac disease. The most popular antibody test ordered by doctors is the tTG-IGA test but there are others. Here is an overview: Do you have access to your medical record/test results online? What is your next step with this? I assume you are not yet eating gluten free.
    • knitty kitty
      @lizzie42, I have dermatitis herpetiformis outbreaks when I am exposed to foods high in iodine.  Iodine can cause dermatitis herpetiformis to flair up badly.  So I avoid high iodine foods like dairy products, crustaceans (shrimp, crab, lobster, shellfish), Eggs, and iodized table salt.  Spinach,  potatoes, kale, and kelp are high in iodine, too. The antibodies that cause dermatitis herpetiformis are tTg 3 IgA.  The tests for Celiac Disease measure tTg 2 IgA antibodies.  The dermatitis herpetiformis tTg3 antibodies can hang around for two years or more and become more active when exposed to iodine without having gluten present.  Dermatitis Herpetiformis is pressure sensitive and...
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • jeff pine
      hi Ya Trent, I really like my gastroenterologist; he mentioned it casually. maybe he thought I knew it. These tele appointments are good for getting to the point. I think he used the marker word. I will ask. PTL.
    • trents
      @MegRCxx, it is common for people with celiac disease to have other food intolerances as well. Most common offenders are oats (even gluten free oats) and dairy. Soy, eggs and corn are less common but not rare. So, factor into your consideration.
×
×
  • Create New...