Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pins And Needles And Celiac


KerryLad

Recommended Posts

KerryLad Rookie

just wondering if anyone gets pins and needles in hand or face when they eat wheat or aything? i have them now 3 weeks and afraid they wont stop cause they are cracking me up :( its my intestines are def at me and stinging down there and hurting a small bit whenver i eat i feel sick after it and sting alot my blood results came back negitive from celiac but i reallt think its that making me sick any idea how many people get pins and needles from it ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

It may be due to a vitamine deficiency, indirectly caused by Celiac.   Have you been to the doctor to run a full panel?   In the old days (several years ago) it used to be called an "Executive Panel", but your doctor would know.  I certainly would recommend it.

KerryLad Rookie

It may be due to a vitamine deficiency, indirectly caused by Celiac.   Have you been to the doctor to run a full panel?   In the old days (several years ago) it used to be called an "Executive Panel", but your doctor would know.  I certainly would recommend it.

got full bloods done and all came back ok vitamins levels etc tyroid perfect all good like... and i know its intestines and stomach like and its cracking my up my hands are getting sore and my left wrist is very sore :(

ravenwoodglass Mentor

Did they test your B12? It should be over 500 not over 250 as the old normal level low point used to be. It won't hurt to try a sublingual B12 supplement to see if it helps. Do tell your doctor you are supplementing though because supplementing will raise the levels in the blood tests.

KerryLad Rookie

Did they test your B12? It should be over 500 not over 250 as the old normal level low point used to be. It won't hurt to try a sublingual B12 supplement to see if it helps. Do tell your doctor you are supplementing though because supplementing will raise the levels in the blood tests.

ya all my b vitmain levels are good taken b12 the last 2 weeks as well like everything is good with my bloods and thats what bugging me celiac test came back clear negitive.. i have being eating chicken wraps latelly thinking there was no wheat in them and there is no wonder im not healing :(

GF Lover Rising Star

Kerry,

 

From this thread and the other one you started with this same issue, it is becoming clear that you do not have a good understanding of what Gluten Free really means.  Please read the Newbie thread and do some self education.   Of course, we are always here to help but you must further your knowledge if you are to be successful with this life change.  I would also suggest you take it more seriously.  I don't me to sound harsh but this is my opinion.

 

Best of luck,

 

Colleen 

KerryLad Rookie

Kerry,

 

From this thread and the other one you started with this same issue, it is becoming clear that you do not have a good understanding of what Gluten Free really means.  Please read the Newbie thread and do some self education.   Of course, we are always here to help but you must further your knowledge if you are to be successful with this life change.  I would also suggest you take it more seriously.  I don't me to sound harsh but this is my opinion.

 

Best of luck,

 

Colleen 

im new to it and trying to understand it and trust me im taken it serious would not be here otherwise or for the fun of it im suffering like and trying to figurre and get answers like 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,197
    • Most Online (within 30 mins)
      7,748

    Liburna
    Newest Member
    Liburna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.