Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pancreatitis


minamoe

Recommended Posts

minamoe Newbie

I was just recently diagnosed with Celiacs almost three weeks ago. As of yet, we cannot find any genetic history in our family. However, we did read some literature that said pancreatitis was common with Celiacs. My uncle almost died from this over the summer. Does anyone else have pancreatitis. I was also wondering if there is anyone with Turner's Syndrome with no genetic history of Celiacs with it, as I have Turner's as well. Just wondering.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluelotus Contributor

Turner's syndrome has to do with one of your x-chromosomes. Celiac disease is thought to be on a different chrom (if it was on x, or x-assoc, more males than females would likely have it). Someone correct me, but I think celiac disease is assoc with chrom 6 or 16 (I think there is a 6 in there somewhere). Anyway, I hope it helps.

bluelotus Contributor

Forgot to mention too - I hadn't heard about the pancreatitis assoc, although I would not be suprised, however, I know it is assoc with gall bladder issues too. Both of those organs are involved with digestion and processing various items, so if something is wrong with the dig. tract, it would easily follow that assoc organs would experience trouble.

Carriefaith Enthusiast

I did some research on the connection between pancreatitis and celiac disease:

Open Original Shared Link

I was getting really concerned that I wasn't getting better after like 11 months on the diet, so I started doing a lot of research on other possible problems that I could have. Turns out I just needed longer to get better. I am fine now, unless I get glutened.

jenvan Collaborator

i don't have pancreatitis, but a woman in my local support group does. it can be very difficult to get rid of. and yes, there can be a link between it and celiac.

Lauren M Explorer

Oh... my...!!!

I had NO idea there was a link. I had pancreatitis 2 months before I was diagnosed celiac disease. I almost died. It was the most painful experience of my LIFE. I always thought it might have triggered my celiac disease. Maybe it was the other way around....?

This is VERY interesting to me. Anyone else had pancreatitis?

- Lauren

minamoe Newbie

I know what chromosomes are affected by Turner's. My brother-in-law was tested for Celiacs in the spring and my sister says she saw some research saying there was a link between Celiacs and Turners, as in there is a high prevalance of Turner's girls and women having Celiacs. I do not recall seeing this in any of the lists of medical conditions common with Turners, but I was just wondering.

Thanks for the feedback on the pacreatitis. I have a co worker who also has Celiacs and she gave me Lifeline, from the Celiac Sprue Association, and there were two articles on the connection...in England, anyone with pancreatitis is automatically tested for Celiacs. Outside of Turner's, my uncle having Celiacs as well is the only link I can find. Thanks again for the input!

Turner's syndrome has to do with one of your x-chromosomes.  Celiac disease is thought to be on a different chrom (if it was on x, or x-assoc, more males than females would likely have it).  Someone correct me, but I think celiac disease is assoc with chrom 6 or 16 (I think there is a 6 in there somewhere).  Anyway, I hope it helps.

<{POST_SNAPBACK}>


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
bluelotus Contributor

Hi again - didn't mean to offend by mentioning Turner's was an issue related to your x-chrom.

I am reading "Dangerous Grains" and they mention that people with Turner's should be tested for celiac disease. I am only half way through the book, and so far, they haven't elaborated any more then just that statement.

terri Contributor

My dad died from pancreatitis. He was always ill every night after eating and only 56 when he died. I wonder if he was an undiagnosed celiac? Guess I'll never know.

  • 1 month later...
tasha77 Newbie
Oh... my...!!!

I had NO idea there was a link. I had pancreatitis 2 months before I was diagnosed celiac disease. I almost died. It was the most painful experience of my LIFE. I always thought it might have triggered my celiac disease. Maybe it was the other way around....?

This is VERY interesting to me. Anyone else had pancreatitis?

- Lauren

Just joined. I had acute pancreatitis in 2001, then chronic all these years. Lots of doctors and tests and procedures. Told it was idiopathic (unknown origin). I never believed it was really pancreatitis. Had gall bladder out a long time ago. Recently read a book, Perricone Prescription. The initial two-week eating plan sounded sensible to me. Easy to do since I enjoy broccoli, spinach, sardines, apples, etc. Only eating organic fresh foods, nothing processed. Lo and behold, no more abdominal pain. None. For Thanksgiving, ate bread and pie. Pain. Tried pasta, more pain. Fortunately, organic food is nearby, and it's just me, so no temptation in the house. No doctor ever mentioned celiac but friends did. It's great to be pain free!

yaso Newbie

I'm curious about something. celiac disease and wheat intolerance has been showing up on my mother's side of the family for the last 8 years. She has recently been daignosed with pancreatic cancer and I was wondering if there was a possible connection. I know diet isn't going to turn this around but I wondered if it might help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Coping with Celiac Disease
      12

      Related issues

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      12

      Related issues

    3. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      12

      Related issues

    4. - Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,457
    • Most Online (within 30 mins)
      7,748

    Skeezicks
    Newest Member
    Skeezicks
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I take Niacin, bilberry, Omega threes, zinc, selenium, and Vitamins C and A for eye health, skin health and digestive tract health.  The skin, digestive system and eyes are all derived from basically the same sort of cells.  Niacin is extremely important to keeping these tissues healthy.    Niacin has be shown to prevent cataracts and improve eye health.  Niacin is turned into tryptophan which is necessary to heal the digestive tract.  Tryptophan is used to make Serotonin, a very important neurotransmitter in mood regulation.  Those with Niacin insufficiency become irritable and easily upset, angry, even. Niacin improves skin health.  The flushing of Niacin opens the smallest blood vessels in the skin so that waste products can more easily be removed.  I have Dermatitis Herpetiformis.  Niacin helps drain away those built up antibodies in the blisters and improve skin health.   Bilberry contains lutein and zeaxanthin and other anthocyanins,  potent antioxidants that help protect the eyes from macular degeneration and cataracts.  Bilberry has sGLT1 and GLUT2 which help to lower glucose levels by removing excess glucose from the bloodstream.  High blood glucose levels are bad for eye health.   Omega Threes are important to provide relief in dry eyes.  You are familiar with how oil floats on water.  Same thing happens with eyes.  Omega threes provide the oily layer that protects water from evaporating from the eyes causing dry eyes.  Omega threes in olive oil, sunflower seed oil,  and flaxseed oils will help improve dry eyes. Vitamin A and Riboflavin B2 are important in this function as well.   None of the medications I was given improved my dry eyes.  I increased my Omega threes and Vitamin A, and had improvement very quickly. Selenium and zinc are important in skin and eye barrier functions, too, and are important to preventing infections. When I take 100 mg of Niacin every three hours (but not more than 500 mg/day), my skin and eye health improves.  If one is deficient in Niacin, the flushing effects may be uncomfortable, but ride it out, continue taking Niacin and the flushing goes away as niacin stores inside cells are repleted.  When flushing, don't scratch!  Use pressure applied over a bigger area above the itch.  I wrap up in a towel or blanket to create the counter pressure.  The flushing goes away the longer one takes Niacin.  Don't use Niacinamide (the non flushing form of Niacin).   Other vitamins that improve eye health are Vitamin E and Pyridoxine B6 and Thiamine B1.  Most Vitamin E sold is derived from wheat germ, so find another source of Vitamin E.  I used Evening Primrose oil, also a source of healthy Omega threes and helps with female problems like perimenopause  and menopause symptoms. Do be aware that antifungals and antibiotics (as are frequently prescribed) destroy Thiamine.  Immunosuppressive drugs can suppress production of tTg antibodies.  Supplementing with thiamine above the RDA is safe and nontoxic.  RDA were set as the lowest amount to prevent illness.  Optimal health is seen in higher amounts.   Do talk to your doctor and dietician about supplementing essential nutrients.   References: https://pubmed.ncbi.nlm.nih.gov/39183990/ https://pubmed.ncbi.nlm.nih.gov/41156490/ https://pmc.ncbi.nlm.nih.gov/articles/PMC7602486/
    • Jmartes71
      Thankyou. I have cyclosporine 0.05% OP single use drops and Erythromycin ophth ointment 3.5 Gmail for eyes. Dermatologist gave Pimecrolimus cream 1% and Clobetasol Propoonate USP 0.05% it doesn't help at all.i do see a difference taking Yarrow Pom but its too expensive!
    • Wheatwacked
      I've added NAC, N-Acetyl Cysteine; "crucial for replenishing glutathione—the body's master antioxidant." I used Clear Eyes 1% NAC lubricating eye drops for several years until the FDA forced them off the market.  In 2015 I had cataracts in bofh eyes.  In 2019 my left eye was clear, right eye was improved.  They are back now.  I discovered new companies with the drops at higher NAC but went with 500 mg NAC capsules.  Spread the cheer 🤓. My impression so far is the NAC is doing good.  Best with meal.
    • Known1
      When the pizza was dropped off she told me it had a Udi's certified gluten-free crust.  Even so, I am trying to play things as safe as possible for at least the next 6-months.  With that said, I returned the two slices to my neighbor and asked her to thank her mom for the pizza.  😊  I will likely bump into my neighbor's mom sometime next week.  She shuttles my neighbor's son, a freshman, to and from high school.  As mentioned, she is very kind so I am sure she will understand.  Heck, at least it went back to her family members and not in the trash.
    • Jmartes71
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.