Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pancreatitis


minamoe

Recommended Posts

minamoe Newbie

I was just recently diagnosed with Celiacs almost three weeks ago. As of yet, we cannot find any genetic history in our family. However, we did read some literature that said pancreatitis was common with Celiacs. My uncle almost died from this over the summer. Does anyone else have pancreatitis. I was also wondering if there is anyone with Turner's Syndrome with no genetic history of Celiacs with it, as I have Turner's as well. Just wondering.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluelotus Contributor

Turner's syndrome has to do with one of your x-chromosomes. Celiac disease is thought to be on a different chrom (if it was on x, or x-assoc, more males than females would likely have it). Someone correct me, but I think celiac disease is assoc with chrom 6 or 16 (I think there is a 6 in there somewhere). Anyway, I hope it helps.

bluelotus Contributor

Forgot to mention too - I hadn't heard about the pancreatitis assoc, although I would not be suprised, however, I know it is assoc with gall bladder issues too. Both of those organs are involved with digestion and processing various items, so if something is wrong with the dig. tract, it would easily follow that assoc organs would experience trouble.

Carriefaith Enthusiast

I did some research on the connection between pancreatitis and celiac disease:

Open Original Shared Link

I was getting really concerned that I wasn't getting better after like 11 months on the diet, so I started doing a lot of research on other possible problems that I could have. Turns out I just needed longer to get better. I am fine now, unless I get glutened.

jenvan Collaborator

i don't have pancreatitis, but a woman in my local support group does. it can be very difficult to get rid of. and yes, there can be a link between it and celiac.

Lauren M Explorer

Oh... my...!!!

I had NO idea there was a link. I had pancreatitis 2 months before I was diagnosed celiac disease. I almost died. It was the most painful experience of my LIFE. I always thought it might have triggered my celiac disease. Maybe it was the other way around....?

This is VERY interesting to me. Anyone else had pancreatitis?

- Lauren

minamoe Newbie

I know what chromosomes are affected by Turner's. My brother-in-law was tested for Celiacs in the spring and my sister says she saw some research saying there was a link between Celiacs and Turners, as in there is a high prevalance of Turner's girls and women having Celiacs. I do not recall seeing this in any of the lists of medical conditions common with Turners, but I was just wondering.

Thanks for the feedback on the pacreatitis. I have a co worker who also has Celiacs and she gave me Lifeline, from the Celiac Sprue Association, and there were two articles on the connection...in England, anyone with pancreatitis is automatically tested for Celiacs. Outside of Turner's, my uncle having Celiacs as well is the only link I can find. Thanks again for the input!

Turner's syndrome has to do with one of your x-chromosomes.  Celiac disease is thought to be on a different chrom (if it was on x, or x-assoc, more males than females would likely have it).  Someone correct me, but I think celiac disease is assoc with chrom 6 or 16 (I think there is a 6 in there somewhere).  Anyway, I hope it helps.

<{POST_SNAPBACK}>


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
bluelotus Contributor

Hi again - didn't mean to offend by mentioning Turner's was an issue related to your x-chrom.

I am reading "Dangerous Grains" and they mention that people with Turner's should be tested for celiac disease. I am only half way through the book, and so far, they haven't elaborated any more then just that statement.

terri Contributor

My dad died from pancreatitis. He was always ill every night after eating and only 56 when he died. I wonder if he was an undiagnosed celiac? Guess I'll never know.

  • 1 month later...
tasha77 Newbie
Oh... my...!!!

I had NO idea there was a link. I had pancreatitis 2 months before I was diagnosed celiac disease. I almost died. It was the most painful experience of my LIFE. I always thought it might have triggered my celiac disease. Maybe it was the other way around....?

This is VERY interesting to me. Anyone else had pancreatitis?

- Lauren

Just joined. I had acute pancreatitis in 2001, then chronic all these years. Lots of doctors and tests and procedures. Told it was idiopathic (unknown origin). I never believed it was really pancreatitis. Had gall bladder out a long time ago. Recently read a book, Perricone Prescription. The initial two-week eating plan sounded sensible to me. Easy to do since I enjoy broccoli, spinach, sardines, apples, etc. Only eating organic fresh foods, nothing processed. Lo and behold, no more abdominal pain. None. For Thanksgiving, ate bread and pie. Pain. Tried pasta, more pain. Fortunately, organic food is nearby, and it's just me, so no temptation in the house. No doctor ever mentioned celiac but friends did. It's great to be pain free!

yaso Newbie

I'm curious about something. celiac disease and wheat intolerance has been showing up on my mother's side of the family for the last 8 years. She has recently been daignosed with pancreatic cancer and I was wondering if there was a possible connection. I know diet isn't going to turn this around but I wondered if it might help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    Donna Shields
    Newest Member
    Donna Shields
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.