Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Else Have A Lump Behind Their Jaw?


taynichaf

Recommended Posts

taynichaf Contributor

I havent seen anything like this related to celiac, but i just thought i should ask. under my ear lobe in the back of my jaw i can feel this pea-sized bump. It doesnt stick out or cause much trouble, but sometimes when I start chewing something I get a shooting pain where the lump is. It doesnt happen all the time, but it seems to be happening more and more. Ive noticed it for a few years, and when I brought it up to my doctor he just said swollen lymph nodes and didnt do anything about it. Also, it dosent hurt to touch it or anything....

 

Anyone no if this could be a symptom of celiac? (im not a diagnosed celiac)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

I saw the title of your thread and jumped on it. My "lump" is different though. Yours does sound like a lymph node. I have some of those too, swollen and rock hard. They SAY that if they can be wiggled around it's infection. If they are hard and don't move when you try to wiggle them, it's cancer. I don't know if that's true in every case, but that's what I have read.

 

My other "lump" is on the jawbone itself and it too is rock hard, doesn't wiggle, is the size of a chicken egg, and hurts so bad it takes my breath away. I can't get my mouth open enough to even eat. I'm on a liquid diet right now. Someday, if I'm still alive by then, I'll get insurance...

taynichaf Contributor

I saw the title of your thread and jumped on it. My "lump" is different though. Yours does sound like a lymph node. I have some of those too, swollen and rock hard. They SAY that if they can be wiggled around it's infection. If they are hard and don't move when you try to wiggle them, it's cancer. I don't know if that's true in every case, but that's what I have read.

 

My other "lump" is on the jawbone itself and it too is rock hard, doesn't wiggle, is the size of a chicken egg, and hurts so bad it takes my breath away. I can't get my mouth open enough to even eat. I'm on a liquid diet right now. Someday, if I'm still alive by then, I'll get insurance...

Oh my gosh!... I'm so sorry!.. I hope you get help for that soon!

 

And I can wiggle it a bit, so no cancer :) I'll just bring it up to my new doctor and see what he has to say.

 

But hopefully all goes well for you XOXO

foam Apprentice

My Tumour is rock hard but mobile and painless, but that's only because of it's location in my neck, I wouldn't worry too much about a pea size lump but watch it and if another one comes up, then you can really worry. Mines egg sized (on a good day) and generally much bigger than that. It's not allways the case but most of the time a tumour with smooth rounded edges is OK, anything with webs and weird edges, not ok. As to are these things related to gluten, I'd say... nearly everything is !

VeggieGal Contributor

I saw the title of your thread and jumped on it. My "lump" is different though. Yours does sound like a lymph node. I have some of those too, swollen and rock hard. They SAY that if they can be wiggled around it's infection. If they are hard and don't move when you try to wiggle them, it's cancer. I don't know if that's true in every case, but that's what I have read.

My other "lump" is on the jawbone itself and it too is rock hard, doesn't wiggle, is the size of a chicken egg, and hurts so bad it takes my breath away. I can't get my mouth open enough to even eat. I'm on a liquid diet right now. Someday, if I'm still alive by then, I'll get insurance...

Thats scary, I have a pea sized lump that doesnt wiggle or hurt (feels like bone) behind my ear which I've had for about a week but I'm sure I've had one before awhile back and it just went on its own (assumed it was just abit of gristle).

I've got to the point where I'm fed up of going to the doctors and feel like I live there ! so I was hoping it was just vanish again. Suppose I best get it checked :(

sisterlynr Explorer

In 2007 I had two lumps around my ears/jaw.  The lump right behind my ear was painful and felt like it was oblong.  Just next to that lump was another that was about the size of an egg.  It did not move around nor was it painful.  I was sent to an ENT for examination.  

 

There are salivary glands (3) in that area of your face/neck.  The salivary glands empty into the lymph nodes if there is infection, whether viral or bacterial.  My Parotid gland was the painful one.  The ENT sent me to have the other lump aspirated to determine if it cancer.  Mine was NH Lymphoma.  They removed that lump but didn't touch the Parotid gland.  It has facial nerves which run through and around it and if excised can affect your facial nerves and cause paralysis.  I was told my parotid gland most likely was full of cancer.  I was Stage IV NH Lymphoma by 2008 and had RCHOP Chemo.  The cancer had metzed to my liver, spleen, nodes in the neck and all over my body.  I am in remission for 5 years now and happy to be alive!  God is good and I credit my being alive to prayer and God giving my Oncologist wisdom, in my treatment.

 

NH Lymphoma can be credited to Celiac Disease, especially in the colon.  My Oncologist never determined if it was from Celiac.  I would suggest that you look up salivary glands or parotid gland for your research.  

 

 

VeggieGal Contributor

In 2007 I had two lumps around my ears/jaw. The lump right behind my ear was painful and felt like it was oblong. Just next to that lump was another that was about the size of an egg. It did not move around nor was it painful. I was sent to an ENT for examination.

There are salivary glands (3) in that area of your face/neck. The salivary glands empty into the lymph nodes if there is infection, whether viral or bacterial. My Parotid gland was the painful one. The ENT sent me to have the other lump aspirated to determine if it cancer. Mine was NH Lymphoma. They removed that lump but didn't touch the Parotid gland. It has facial nerves which run through and around it and if excised can affect your facial nerves and cause paralysis. I was told my parotid gland most likely was full of cancer. I was Stage IV NH Lymphoma by 2008 and had RCHOP Chemo. The cancer had metzed to my liver, spleen, nodes in the neck and all over my body. I am in remission for 5 years now and happy to be alive! God is good and I credit my being alive to prayer and God giving my Oncologist wisdom, in my treatment.

NH Lymphoma can be credited to Celiac Disease, especially in the colon. My Oncologist never determined if it was from Celiac. I would suggest that you look up salivary glands or parotid gland for your research.

Thanks for sharing and thats great news you're in remission and you caught it in time :) . Just shows its always best to get our concerns checked out. God bless ..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HeloIP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      EGD with flatten mucosa

    2. - HeloIP posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      EGD with flatten mucosa

    3. - Joel K posted a topic in Meet Up Room
      0

      Caribbean Sailing with Celiac

    4. - Joel K posted a topic in Board/Forum Technical Help
      0

      Forum Rules

    5. - MelissaClinPsyD replied to MelissaClinPsyD's topic in Coping with Celiac Disease
      4

      Refractory Coeliac Disease research to reduce anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,490
    • Most Online (within 30 mins)
      7,748

    Jeff Coppes
    Newest Member
    Jeff Coppes
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @HeloIP! There are some other diseases, some medications (NSAIDs, olmesartan) and even some other food protein intolerances (the dairy protein casein) that can cause flattened villi in the duodenum but the most likely cause is celiac disease. Your GI doc may want to run some blood work to check for antibodies that are specific to celiac disease as a follow-up so, in case he/she does, don't start a gluten-free diet until that blood draw is done.
    • HeloIP
      For years, I’ve had intermittent gut symptoms that included abdominal pain, fatigue, bloating, and gas. I did not have significant diarrhea. A few days ago, I had a EGD that revealed gastritis and mucosal flattening in the duodenum. I’m waiting on the results of the biopsy now. I feel that celiac disease is what has been my problem for years. I’m almost afraid they’ll tell me the test is negative and then I’ll be right back where I started. Any insights on these findings would be helpful. Thank you.
    • Joel K
      Greetings! I would love to get a group going with fellow sailors with celiac disease who would be interested in chartering a sailing yacht down in the Caribbean perhaps a few times a year.  Most likely in the US and/or British Virgin Islands, though other islands may also be considered.  Doesn't have to be the same people and doesn't have to be only experienced sailors.  But everybody would have to be willing to share in the charter, provisioning, and running expenses, in participating in sailing the yacht, and sharing in the work of living on board for a week or two at a time.  This would be a good opportunity to travel safely, foodwise, as all food on board would be provisioned as gluten free.  Of course, I realize many with celiac disease concurrently have additional food interaction issues and we would have to plan around these as well.  But the main concern and commonality among all hands is celiac disease.  We might have some meals ashore as well, and so planning the restaurants out would certainly be a part of our discussions on the trip. The modern yachts will range from 40 to 60 foot long and we'll have berths for six to ten persons, including myself.  Since chartering is such a big deal in the Caribbean, we will need to reserve a boat well in advance.  So firm committment to the venture would need to take place early once the process begins -- often up to a year in advance.  I will have more details once we get some interest. I am a retired ship captain after 48 years at sea, having sailed also in many traditional and modern schooners and a few yachts.  I last chartered a 52 foot sloop out of Road Town, Tortola, in the BVI in April 2025, and am course certified in ASA-101, 103, & 104.  My USCG Master license for Oceans was finally retired in 2022 and no longer active.  I live in Manchester, New Hampshire and work as a Myoskeletal Alignment Therapist with a clinic in Bedford, NH. If you have any interest in chartering with me, please let me know.
    • Joel K
      Greetings! I'd like to post a request for interest in an event I'd like to set up.  But before I do, I'm wondering what the rules for posting in the forum are.  Is there somewhere on this site where the rules for posting in the forum or in meetup groups are located? Thanks in advance.
    • MelissaClinPsyD
      There is no minimum time since diagnosis of refractory coeliac disease to be eligible for this research. The research is a feasibility study for people with refractory coeliac disease since there is currently no psychologically based intervention tailored for refractory coeliac. The aim of this research is to provide therapeutic support that is not routinely offered at gastroenterology clinics thus encourages people to maintain wellbeing in consideration of having symptoms despite a gluten free diet. Hope you gain further clarity and some relief following your endoscopy!
×
×
  • Create New...