Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fasting After A Glutening? Pros And Cons?


anti-soprano

Recommended Posts

anti-soprano Apprentice

Hello All,

I have read some conflicting information on fasting, but the bits and pieces I've come across have been about rotational diets, which some discouraged for newbies.

 

I'm wondering if any of you fast after a glutening, either because that feels best or because  you've been advised to by a doctor.  I've been gluten-free for 9 months and accidentally glutened myself yesterday (SOOOooooo mad at myself).  Up until this point, my glutenings (which have been mostly cross contamination) have included an initial reaction and then I steadily got better.  Today I felt as though I got progressively worse- I might as well have the flu with the added plus of stomach cramping.  The kicker is I felt GREAT yesterday.  I tried to eat some lunch and some soup just now, but it doesn't make me feel any better and I feel like I'm forcing it down.  Water feels good.  Maybe some juice...

 

On a completely different note, it seems as though my symptoms are evolving to include headache, muscle ache, and joint ache.  That's never been an issue before, even before I went gluten-free.  Every encounter is an adventure!

 

Your comments are appreciated!!!  I don't want to do anything harmful that will make me feel worse.  :wacko:

Shellie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I have found that I get very severe pains in my stomach that are only alleviated by not letting it empty fully after a glutening. Eating very much also distresses me greatly. I simply graze lightly all day on whatever sounds or feels good, either physically or emotionally. Half an apple and a smidge of peanut butter, a teeny bowl of soup, sometimes just small glasses of milk, or my ultimate comfort food, mac & cheese. With food, I do whatever feels good for my body.

 

More importantly, drink water. Then drink more water. When you can't stand water any more, have more water. Most of us will get either C or D and either way water will help greatly.

 

It is normal for symptoms to get worse with time, your body now is used to being free of gluten and can overreact in a whole new way. All you can do is wait for it to pass and treat yourself with TLC. I wouldn't fast, which is a personal choice, but if eating is making you physically ill a day off probably won't be the end of the world. Just don't let up on the liquids to get all that evilness flushed out of you.

anti-soprano Apprentice

I have found that I get very severe pains in my stomach that are only alleviated by not letting it empty fully after a glutening. Eating very much also distresses me greatly. I simply graze lightly all day on whatever sounds or feels good, either physically or emotionally. Half an apple and a smidge of peanut butter, a teeny bowl of soup, sometimes just small glasses of milk, or my ultimate comfort food, mac & cheese. With food, I do whatever feels good for my body.

 

More importantly, drink water. Then drink more water. When you can't stand water any more, have more water. Most of us will get either C or D and either way water will help greatly.

 

It is normal for symptoms to get worse with time, your body now is used to being free of gluten and can overreact in a whole new way. All you can do is wait for it to pass and treat yourself with TLC. I wouldn't fast, which is a personal choice, but if eating is making you physically ill a day off probably won't be the end of the world. Just don't let up on the liquids to get all that evilness flushed out of you.

thanks Adalaide! evilness is the right would for it. ugh. I also have three swollen lymph nodes on my neck. Does that ever happen to you?

sisterlynr Explorer

I am not an alarmist but I had 2 swollen lymph nodes in my neck in 2007.   After testing and biopsy showing positive for NH Lymphoma.  I would recommend checking with your doctor. . . .  

anti-soprano Apprentice

 

I am not an alarmist but I had 2 swollen lymph nodes in my neck in 2007.   After testing and biopsy showing positive for NH Lymphoma.  I would recommend checking with your doctor. . . .  

 

Thanks Lyn. I See my doc in a couple weeks and I'll be sure to let her know. I did just have a physical this month and all my bloodwork was normal. At that time, I had a swollen lymph node in arm pit (which I think also corresponds to a cross contamination issue).  I'm fairly certain it is connected to my reaction to gluten, and I'm hoping the swelling goes away in a few days as it did before. I'm not one to take chances,though, and I will certainly take your advice!

GFinDC Veteran

Hi AS,

 

I think it is better to keep eating myself.  That way there is more good stuff in the gut to help thin out the bad stuff.  Lots of water is good too.  And some Pepto Bismol.

NorthernElf Enthusiast

 I agree with a light diet and lots of fluids. After a glutening it seems as if everything I eat has gluten...! It's really just that my GI tract is a mess. I will definitely eat less, smaller volume, and the most gentle food I can (unprocessed, non acidic, not spicy, no dairy). I try not to take anything but tylenol but if I have to work I will take pepto as well.

 

I also agree that the reactions seems stronger than when this mess all started !!! Way more sensitive...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



anti-soprano Apprentice

 I agree with a light diet and lots of fluids. After a glutening it seems as if everything I eat has gluten...! It's really just that my GI tract is a mess. I will definitely eat less, smaller volume, and the most gentle food I can (unprocessed, non acidic, not spicy, no dairy). I try not to take anything but tylenol but if I have to work I will take pepto as well.

 

I also agree that the reactions seems stronger than when this mess all started !!! Way more sensitive...

Thank you all for your replies.  I did eat lightly yesterday and I'm continuing today, although I still feel incredibly nauseous.   Lots of juice and tons of water.  I must have gotten up to pee 10 times last night!  The swelling in at least one lymph node has gone away today as well.  Man, I'm not used to this long of a reaction.  It takes endurance! 

 

I was wondering- when the small intestine is swollen, there's a higher chance of leaky gut, right?  Can eating then cause toxins to be released into the blood stream?  

  • 4 weeks later...
anti-soprano Apprentice

Hello All,

Just updating this post for anyone who may search it in the future.  Many times I read posts and wonder if they ever figured out what the issue was...

 

The shift in symptoms was actually a different issue- not from gluten.  The two issues just happened to coincide and who knows maybe the glutening triggered the other immune response.  Anyways, I was taking bactrim for a UTI after a round of cipro didn't work.  I was feeling great on the Bactrim for 5 days and it cleared all my UTI symptoms within a day or two.  After I had knowingly, stupidly glutened myself, the next morning I felt OK and had my usual breakfast.  It wasn't until lunch when I started feeling nauseous.  It did seem strange to me that I was feeling worse as the day went on, but I didn't think the med could give me those type of issues.  I had flu-like symptoms of headache, nausea, joint and muscle pains, and swollen lymph nodes- food didn't make sense to me and I didn't want it.  The next day I develop hives (hmmmmm).  Then I went to the Bactrim and low and behold all of that stuff was there.  Along with the hives came tongue swelling, which still hasn't completely subsided.  It's called a serum sickness reaction. Poor (yet still evil) gluten was blamed when it actually was a delayed allergic reaction to medication.

alesusy Explorer

thanks for the information, Anti-Soprano. Possibly your gut was frailer because of the glutening, though, and reacted to the med...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.