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So Really, How Reliable Are Blood Tests?

taynichaf

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taynichaf Contributor
taynichaf
Posted

I've had people tell me that there are many false negatives and the blood testing isnt all that reliable... and then theres the people that say false negatives are rare with blood testing.... WHICH IS IT?!

 

I'm really freaking confused on wether or not to go through with my endoscopy or not because my tests were negative(although they were not the full panel :/  )

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kareng Grand Master
kareng
Posted

Pretty reliable. Ask the experts:

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Open Original Shared Link

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

I'd wait till you have positive blood tests before doing the endoscopy which is more expensive than the blood tests.

 

The blood panel will cover more bases.

 

Off the top of my head the DGP-IgG is about 98% accurate and the EMA is 100 % accurate but it is less sensitive.

 

If you are short on money for blood tests, at least go for the DGP-IgG.

I might just get that one myself in the future as my IgA is normal low.

 

While you are waiting to do the tests,  phone or visit the blood lab and ask for the code for the panel.

Tell them the doctor gets it mixed up.

If you decide you want DGP-IgG,  write it down, tell the doctor that is the test you want and read the paper she gives you.

If it says tTG then give it back to her and say you want DGP-IgG.

She problably has no clue about DGP tests as they are newer and more specific but we know what it is.

 

You have to consider that your problems could also be caused by Crohns or colitis, if it's not Celiac.

Find out this summer so you can enjoy the rest of your life.

 

 I hope you can find out what is your true problem as you are young and starting your life

and you want to put all your illnesses behind you before starting College in the fall. 

taynichaf Contributor
taynichaf
Posted
  • Author

Pretty reliable. Ask the experts:

Open Original Shared Link

Open Original Shared Link

Awesome, thanks!

taynichaf Contributor
taynichaf
Posted
  • Author

I'd wait till you have positive blood tests before doing the endoscopy which is more expensive than the blood tests.

 

The blood panel will cover more bases.

 

Off the top of my head the DGP-IgG is about 98% accurate and the EMA is 100 % accurate but it is less sensitive.

 

If you are short on money for blood tests, at least go for the DGP-IgG.

I might just get that one myself in the future as my IgA is normal low.

 

While you are waiting to do the tests,  phone or visit the blood lab and ask for the code for the panel.

Tell them the doctor gets it mixed up.

If you decide you want DGP-IgG,  write it down, tell the doctor that is the test you want and read the paper she gives you.

If it says tTG then give it back to her and say you want DGP-IgG.

She problably has no clue about DGP tests as they are newer and more specific but we know what it is.

 

You have to consider that your problems could also be caused by Crohns or colitis, if it's not Celiac.

Find out this summer so you can enjoy the rest of your life.

 

 I hope you can find out what is your true problem as you are young and starting your life

and you want to put all your illnesses behind you before starting College in the fall. 

Ok... I'll make a new doctors appointment and have all the tests picked out and everything... thanks! And I will do research on the other two, but I don't think I have crohns because I have C instead of D, and weight gain instead of weight loss.

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

Once you have the blood test requisition form in your hand make sure it's the tests you want.

If it's not don't be shy to give it back to her if it's the wrong test. You are the boss.

And you don't have to go the same day to the blood lab.

You can wait till you've done your gluten challenge whatever amount of weeks you decide to do it.

taynichaf Contributor
taynichaf
Posted
  • Author

Once you have the blood test requisition form in your hand make sure it's the tests you want.

If it's not don't be shy to give it back to her if it's the wrong test. You are the boss.

And you don't have to go the same day to the blood lab.

You can wait till you've done your gluten challenge whatever amount of weeks you decide to do it.

Lol, I know this now! I'm not leaving the office unless it's the tests I want!

Thanks for everything

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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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