Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Celiac Symptoms Change From Childhood To Adulthood?


Deaminated Marcus

Recommended Posts

Deaminated Marcus Apprentice

When I read a Celiac book I saw I had the classic childhood symptoms of chronic D, sickly and being skinny. 

 

In my 20's the symptoms changed and I lost to chronic D and I gained weight.

 

Because doctors are so misinformed, I just wanted to know if others who were diagnosed with Celiac in adulthood can remember if their symptoms changed from Childhood to Adulthood.

 

Now my big problem are muscle aches and joint pain which I didn't have as a child or teen.

 

Can people who were officially diagnosed with Celiac tell me if their symptoms changed from childhood to adulthood.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I got more symptoms as time went by. As a child it was stomachaches,"c", and sore knees. In my teens, the GI symptoms were less but I started getting headaches. In my twenties, I had the symptoms continue. Stomach aches and headaches grew worse. I started getting arthralgias and a lot of bronchial or sinus infections. Also got a bad back. In my thirties I fell apart. Everything got quite a bit worse. Bloating really kicked in and I started losing hair. My sore joints started making it hard to do things- like put on a jacket. I was diagnosed when I was 38.

...I'm hoping that my forties will be better! LOL

kareng Grand Master

Marcus, I'm confused here. You have posted many, many posts in the last 2 weeks so I might not be remembering correctly, but.....didn't you say you weren't diagnosed with Celiac? Did I miss that you were diagnosed as a child but didn't eat gluten-free until now?

GottaSki Mentor

Hey Marcus...

 

My symptoms were the same in childhood...unexplained weight GAIN, bloating, discomfort after each meal, sore joints, heat intolerance.....but evolved over the years -- had one 6 year 'remission' during my teen years when I lived off of salad and diet coke -- which i do not recommend for any young woman -- but strangely I was at my healthiest during those years.

GottaSki Mentor

I got more symptoms as time went by. As a child it was stomachaches,"c", and sore knees. In my teens, the GI symptoms were less but I started getting headaches. In my twenties, I had the symptoms continue. Stomach aches and headaches grew worse. I started getting arthralgias and a lot of bronchial or sinus infections. Also got a bad back. In my thirties I fell apart. Everything got quite a bit worse. Bloating really kicked in and I started losing hair. My sore joints started making it hard to do things- like put on a jacket. I was diagnosed when I was 38.

...I'm hoping that my forties will be better! LOL

 

Your 40s are going to be great...I am certain : )

pretty in paleo Apprentice

Absolutely. My mom says that she remembers seeing changes in my health even when I was 9 years old, at the time it was D and behavior problems that were misdiagnosed as ADHD. By the time I was diagnosed a couple weeks before entering college, my symptoms were totally different: constipation, heart burn, stabbing pains after eating, almost fainting, shortness of breath....well, its a very long list. I also was always a skinny kid but then started to get sort of a belly, which is gone now, yay!

Deaminated Marcus Apprentice

No Kareng, I was never diagnosed, I'm still waiting for a gastroenterologist to scope me.

 

Thank you all for your replies. 

I can see 2 changed over time and one remained the same.

I asked because the young gastro doctor I saw last week said I don't fit the Celiac profile.

And a friend keeps saying I don't have Celiac because my symptoms are no longer the classic ones I had as a child - teen.

 

Your responses were helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

No Kareng, I was never diagnosed, I'm still waiting for a gastroenterologist to scope me.

 

Thank you all for your replies. 

I can see 2 changed over time and one remained the same.

I asked because the young gastro doctor I saw last week said I don't fit the Celiac profile.

And a friend keeps saying I don't have Celiac because my symptoms are no longer the classic ones I had as a child - teen.

 

Your responses were helpful.

But...didn't you say you have been gluten-free for several years? What would be the point ?

pretty in paleo Apprentice

No Kareng, I was never diagnosed, I'm still waiting for a gastroenterologist to scope me.

 

Thank you all for your replies. 

I can see 2 changed over time and one remained the same.

I asked because the young gastro doctor I saw last week said I don't fit the Celiac profile.

And a friend keeps saying I don't have Celiac because my symptoms are no longer the classic ones I had as a child - teen.

 

Your responses were helpful.

happy to help out anytime!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,573
    • Most Online (within 30 mins)
      7,748

    ColleenWest
    Newest Member
    ColleenWest
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.