Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Canker Sores


megsybeth

Recommended Posts

megsybeth Enthusiast

One of my most recent symptoms before diagnosis was cankers sores. I've had them all my life. Other celiac symptoms went away over the years but these stuck. Since going gluten free I get them occasionally and mentioned to my celiac specialist and she says the symptoms can last a while. But they're getting a lot better and less comon.

 

Today my son, who is 4 and gluten intollerant, showed me has first canker sore. And I have one. I've heard some people get them when glutened. Anyone else? I'm not sure what could be new, checked all our supplements. The only restaurant we've been to is Chipotle which has been good to us so far. I'm just wondering if I should eliminate some foods or if it's a coincidence we both have them.

 

Thanks for any advice!
Megan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

It could be a cc issue. Its been known to happen :(

 

Hope you start feeling better. I read somewhere that honey helps to heal them.

GF Lover Rising Star

I get them whenever my immune system acts up.  I swab with vinegar to hurry them along.

JNBunnie1 Community Regular

Without other symptoms, I wouldn't consider canker sores to be a sign of a glutening,

although it is possible. I found that any commercial toothpaste gives me canker sores,

I now have to use liquid soap to brush my teeth (you get used to it....). All it is is a

localized bacterial infection. I find that zinc lozenges kick the crap out of them. I hold

the lozenge against it for as long as I can, until it melts away. It also numbs the canker

sore, which is good, cuz those buggers hurt! Also avoiding sugar helps, as with any

illness.

EmiPark210 Contributor

I get them when I've had too much sugar coupled with stress. Everyone has their own causes but if you've still been getting them without gluten then it doesn't seem like it's a CC sign, though it's ways worth checking things every once and a while.

gluten-is-kryptonite Apprentice

I used to get them all the time growing up and then once i got diagnosed with Celiac last year and got completely off gluten I no longer get canker sores (or the laundry list of other symptoms).

 

If i get glutened accidentally I always will get a canker sore a few days later. Every time!!

 

If you are still getting canker sores I would ask if you by any chance are getting a small amount of gluten. Do you use a separate toaster? Are you getting cross contamination without knowing it?

VeggieGal Contributor

After my positive blood test and then being referred to the hospital, one of the first questions the specialist asked me was "do you get mouth ulcers?" so I guess it must be related. I used to get them as a kid but thats all. My 11 yr old son gets them all the time but he tested negative on a home testing kit , but of course its not the full panel. I used to just think they were caused by being run down and too much sugar.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



birdie22 Enthusiast

I've had them since I was a child. I always assumed it was acidic food, and later on, hormonal. Since going gluten-free in Nov '11 they all but disappeared. I do still get one every now and then. Usually they are tiny and come/go within a few days, unlike before when they'd get huge and take forever to heal. Sadly, I've had two horrible ones back to back this month, each lasting at least 7 days and one immediately following the other. I chalk it up to cc issue as my husband and kids are not gluten-free.

 

I've heard that SLS free toothpaste helps (I used Rembrandt C) as well as B12 and l-lysine.

Sharon-1 Newbie

My sons canker sores were severe. It was between that and his constantly complaining about his stomach aches that pushed me to take him to a specialist.  My family doctor tested for h pylori, it came back negative.  I just had the feeling that he was wrong.  After an upper and lower Gi we found he did have the h pylori bacteria and not long after we started on meds for it his test results came back saying he was positive for Celiacs.  Wow what a moment to finally find out what the problem was after so long of fighting it.  He had mouth sores so severely that it actually scared his mouth.  He could not even get braces which he needs badly.  Now we are on the right track. I can tell when he has something he is not suppose to eat because his mouth breaks out.  I currently give him B complex and lysene every day. He has aspergers and ADHD also.  His melt downs have been fewer and he is currently doing a little better in school.   His father has always had mouth sores also.  We had him tested for celiacs but it came back negative.  He has all of the symptoms including osteoporosis   He just had a hip replacement and is only 53 years old.  He has not complained of a mouth sore since I insisted we all go gluten free.  I am currently still learning about all of the wheat products and I am still amazed at the items with wheat in them.  I am grateful to have forums like this one to help. 

  • 3 months later...
Pegleg84 Collaborator

I realize I'm reviving an old topic, but might as well add to it rather than starting a new one.

I'm dealing with a nasty nasty sore right now. I almost couldn't get to sleep last night the pain was so bad.

I used to get them a lot pre-gluten-free, and now they only show up if I've been glutened or have a cold or something. It's usually a sure sign that I'm still recovering from some damage.

I've had this one for almost a week, so need to do something serious to force it to heal (It's in a really bad spot, constantly rubbing against my teeth, so any protective gel stuff rubs right off). I've done a salt pack (PAIN!!) which does help a bit, but I'll try the vinegar instead. Apple cider vinegar is my new cure-all.
Taking lots of vitamin c, b12, and zinc is also supposed to help.

 

Anyone else have canker-killing tips?

ImaMiriam Apprentice

I'd like to hear any remedies, too! My daughter says she has these mouth sores a lot, and I found out that Anbesol has gluten in it. So we have nothing now.

 

How do you know if it's the toothpaste? I thought that all toothpaste is gluten-free. If it's not, I gotta go check them all right away before anyone brushes their teeth tonight!!!!

 

Can anyone recommend gluten-free zinc lozenges? That sounds like a good idea -- are there any side effects to these?

 

Thanks!

Pegleg84 Collaborator

Some toothpastes do have gluten, but its not common. I'm sure there's a thread or two around about which are/aren't. Some people do find other ingredients in toothpaste to be irritating, like sulphites and other nastiness (yet toothpaste is one of the few non-all-natural things I still use).

 

I tried the vinegar (unfiltered apple cider vinegar, with the mother, which is kind of a cure-all) and it seems to be helping. It's starting to heal, and being less of a pain. Hopefully will be gone by the end of the week. Instead of swabbing, I rinced my mouth with a bit, concentrating on the sore area. It stings, but not as bad as salt.

birdie22 Enthusiast

Prescription orabase pastes work well. My PCP gave me an RX but your dentist could too. Just dob it on with a Qtip before bed. It's gritty and gross tasting/feeling but it does help cut down the pain and longevity of a nasty sore.

GF Lover Rising Star

There is this stuff called Swish And Swirl.  My Oncologist gave it to me when my immune system crashed and canker sores were killing me.  It's a Rx.  Easy to use and tastes fine.  You swish in mouth and swallow.  Speeds healing and works to decrease severity.  And GP can prescribe it.

 

Colleen 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,919
    • Most Online (within 30 mins)
      7,748

    SB Willow
    Newest Member
    SB Willow
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.