Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are Blood Tests The Only Way To Dx


harley1200

Recommended Posts

harley1200 Newbie

I went to the doc with the tests that were suggested here. I was told that I should have a colonoscopy (I am 50 and they keep pushing that). Since my symptoms are mostly systemic (swelling, rash, constipation) I declined the colonoscopy. My doc was not familar with the testing and suggested I see an allergist.

 

If I go to the allergixt I am sure they will do the pin prick stuff...will that show a gluten intolerance? My other option was for a referral to a GI specialist...but I would have to wait a few months to get in to see the GI guy since I am not in serious distress.

 

Any advice? My other option is to have a lab order the tests and pay myself. Is there any lab out there that does these?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

No, for celiac there is also the endoscopy where they do a biopsy and in addition to that there is a gene test, however, this one can't diagnosis by itself.

 

There are no 'official' tests for an intolerance, outside of a diet change to see if that is whats causing it.

 

As for labs, i don't know.

kareng Grand Master

Why won't he order your blood work? The colonoscopy has nothing to do with Celiac but is still a good idea over 50. They could do the endoscopy ( for Celiac) at the same time. I know several people who have gone for the routine colonoscopy at 50 with no symptoms and found pre- cancerous polyps. If left, they would likely become cancer in a few years.

celiac is not an allergy and neither is non- Celiac gluten intolerance. At the current time, there is no test for NCGI.

nvsmom Community Regular

Ditto the others.

 

The blood tests for celiac disease are:

tTG IgA and tTG IgG

DGP IgA and DGP IgG

EMA IgA

total serum IgA

AGA IgA and AGA IgG (older and less frequently used)

 

Make sure you are eating gluten in the weeks prior to testing.  Good luck.

 

Oops... editted to add that I saw you already knew the blood tests. Sorry.

cyclinglady Grand Master

I went to my doc to have my thyroid re-checked and I suggested the colonoscopy since I'm 51.  The gastro prior to the procedure recommended an endoscopy since I was anemic and had thyroiditis.  Blood test was positive and endoscopy showed moderate to severe damage.  My colonoscopy was normal.   :D Lucky for me, my gastro was Celiac savy (he must have just went to a conference!)  

 

An allergist can only test you for an allergy -- which is fine (I've got plenty of allergies to boot).  But I'd make the appointment for the gastro doc.  

 

I would have gone gluten-free right after the blood test, but 1) I needed the colonoscopy anyway and I'd be prepped for the endo and 2) a definite diagnosis would benefit my family.  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...