Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Disabilities Act And Celiac


Ciel121

Recommended Posts

Ciel121 Apprentice

I read an article recently about a woman who could not attend college because of her allergy to peanuts...and I learned that Celiacs are officially considered disabled. Check out this web site:

 

Open Original Shared Link

 

I know when I studied for my second Masters (in secondary education) they covered this act and I thought of Celiacs, but I never thought we are officially included. The law does not allow someone to be excluded because of a disability...

 

How does this work with restaurants? Are they not forced by law to accommodate Celiacs then? Hmmm....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

It doesn't appear to work in restaurants. Here's why:

It's a choice to purchase a product at a restauraunt. And, Just as a grocery does not have to stock gluten-free bread or a boutique does not have to have a size 16, we are physically able to choose where to shop.

A college is a bit different. If the student is required to purchase a meal plan, they have to be able to provide it safely. If they cannot, they have to make it a " choice" and offer to release the student from the mandatory meal plan ( as an example ).

In the end, the " law " is only as good as the legal interpretations and lawsuit outcomes. I fear a ruling that all restauraunts must provide gluten-free food will not be as helpful as we hope. Many places will just offer some pre- made gluten-free option that they can microwave and serve in the container. For most businesses, people willing to pay for a product, be it gluten-free bread or a size 16 or Celiac safe menu options, will fuel the variety of options offered.

shadowicewolf Proficient

Yep, we're covered under it. But like it was already said, its only really useful for school situations.

 

For example, some colleges require their freshman (and sometimes sophomore) to live on campus in the dorms. With the disability act, that student can have accommodations in the school's cafeteria.

Ciel121 Apprentice

Hmmm...hopefully as progress comes they restaurants will be required to fully fulfill proper meals for Celiacs. I mean they provide ramps for wheelchairs... I'm also concerned about airports and flights because that is a highly limiting situation with no choices and I'm pretty sure airlines receive federal funding. Travel has been really hard for me, so I hope that one aspect changes.

 I love that this is considered a real disability! I always joke that I'm food disabled, but now I realize I am literally food disabled, ha ha.

shadowicewolf Proficient

Hmmm...hopefully as progress comes they restaurants will be required to fully fulfill proper meals for Celiacs. I mean they provide ramps for wheelchairs... I'm also concerned about airports and flights because that is a highly limiting situation with no choices and I'm pretty sure airlines receive federal funding. Travel has been really hard for me, so I hope that one aspect changes.

 I love that this is considered a real disability! I always joke that I'm food disabled, but now I realize I am literally food disabled, ha ha.

That would be nice actually. I don't see actual restaurants being able to do this, too many risks. However, if there was a good section of food in airports that would be nice.

kareng Grand Master

That would be nice actually. I don't see actual restaurants being able to do this, too many risks. However, if there was a good section of food in airports that would be nice.

 

 

Some airports are stocking the GoPicnic boxes in the "gift shop".  Mostly the gluten-free ones and at least one vegan one (that's what GoPicinc told me the other day).

shadowicewolf Proficient

Some airports are stocking the GoPicnic boxes in the "gift shop".  Mostly the gluten-free ones and at least one vegan one (that's what GoPicinc told me the other day).

I looked at those. Looks like a great option for some.

 

But other things as well, like salads, meats, and fruits. It doesn't have to be anything fancy, just an area that was dedicated to it i guess.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ksee Rookie

For disability status you must first file for the legal determination. Celiac with treatment does not qualify unless there was damage caused to a severity that does not allow a return to work within a year. Disability determination for adults has to do with ability to maintain a job. Excessive medical costs or inconvenience may be covered by state organizations such as Medicaid. 

If you have severe impairment caused by celiac disease and go through the process of disability determination (up to two or more years) it does not mean everyone has to accommodate your disease.

If you identify a situation where a company or organization could offer "reasonable accommodation" but refuses, you can hire an attorney who may be reimbursed if your claim is valid. Reasonable accommodation is that which does not put excessive physical or financial demands on the company or organization. In other words, small restaurants may not have financial means or physical space to add facilities for preparing foods while assuring no contamination and maintain the education of staff required. 

Because the resulting damage is the reason for disability determination, not the celiac disease causing that damage, you may get better results by advocating celiac issues rather than finding yourself at legal odds with a business or organization.

I'm not saying this is as it should be. 

My disability determination is much more definite and direct, my problems with mobility and sight are clearly spelled out, but I still have problems that are not addressed. I'm sorry, I wish I could offer a prettier picture.

You should look up all these terms at socialsecurity.gov. If you feel you might qualify most attorneys will offer a free consultation. If an attorney takes your case it will be because they believe you will win and they will only request payment from a judgment you receive.

kareng Grand Master

For disability status you must first file for the legal determination. Celiac with treatment does not qualify unless there was damage caused to a severity that does not allow a return to work within a year. Disability determination for adults has to do with ability to maintain a job. Excessive medical costs or inconvenience may be covered by state organizations such as Medicaid. 

If you have severe impairment caused by celiac disease and go through the process of disability determination (up to two or more years) it does not mean everyone has to accommodate your disease.

If you identify a situation where a company or organization could offer "reasonable accommodation" but refuses, you can hire an attorney who may be reimbursed if your claim is valid. Reasonable accommodation is that which does not put excessive physical or financial demands on the company or organization. In other words, small restaurants may not have financial means or physical space to add facilities for preparing foods while assuring no contamination and maintain the education of staff required. 

Because the resulting damage is the reason for disability determination, not the celiac disease causing that damage, you may get better results by advocating celiac issues rather than finding yourself at legal odds with a business or organization.

I'm not saying this is as it should be. 

My disability determination is much more definite and direct, my problems with mobility and sight are clearly spelled out, but I still have problems that are not addressed. I'm sorry, I wish I could offer a prettier picture.

You should look up all these terms at socialsecurity.gov. If you feel you might qualify most attorneys will offer a free consultation. If an attorney takes your case it will be because they believe you will win and they will only request payment from a judgment you receive.

 

 

i didn't think she was applying for disability payments.  Just the ADA protections.  That is how I took it, as she was asking about restaurants.

 

edited to add:  I know getting on disability is a real pain in the a$$.  I know a few people with very real disabilities who keep getting denied.  Then they show some idiot on Disability for a back injury,  movng furniture or chopping wood on the News!

Ksee Rookie

i didn't think she was applying for disability payments.  Just the ADA protections.  That is how I took it, as she was asking about restaurants.

I understand but those protections are only given to those with legal determinations. Children can be determined to have disability if their illness or injury is judged to prevent future ability to work, obtain education to work and of course for life threatening conditions.

It was not something I understood before my disability. For instance, lots of people have autoimmune diseases and continue to work. These people are only considered disabled when illness prevents any productive income and there is not medical expectation of a return within at least a year.

Medical limitations are the basis of disability but "Disability" is a legal status, along with legal protections.

But please don't take only my word for it. Research the website. :) 

kareng Grand Master

Not trying to argue, but there have been several articles on here about how the ADA works for GI illness and reasonable accomadations.  Mainly, this has been legally applied to schools and the recent ruling against a college that refused to serve safe food for students, forced to buy a meal plan,who have Celiac and food allergies. 

 

Wheelchair ramps are for all people in chairs or with walkers, etc, even the ones not on disability.  ADA covers people who are not on disability and want to work. (as well as people who recieve Disability payments and other goverment aid). A person in a wheelchair, as an example, could easiliy be a computer programer but needs some "reasonable accomadations".  Things like an office doorway that is wide enough , a desk a wheelchair can pull up to, etc.

 

I think we are talking about 2 different things here. 

Ksee Rookie

I understand and I'm not trying to be discouraging but I have found real world application of the law is not uniform. I don't doubt your statement of recent rulings but to obtain that ruling someone had to go through the process I described, identify a problem and go through the legal hurdles to resolve it.

Everyone who is wheelchair bound, either from illness or injury, either has or is in the process of getting a determination of legal disability but even then, all buildings are not required to be accessible. I know, I live in one, so I am allowed to have mobility devices installed in my building but I have to pay for the installation.

If someone uses a wheelchair or uses a white cane their disability is more visible to others. Those of us who have less visible disability are asked to prove those limitations. Again, please don't take my word, do your own research. I'm only saying how these things happen in actual situations so anyone who thinks they need to follow this road can do that with the information they need.

Nikki2777 Community Regular

This is interesting.  I'm trying to get my cafeteria at work to start making some gluten-free options available.  Technically, they're available now (salads, baked potatoes, etc.), but no care is taken to prevent or lessen the chance of cross contamination so I rarely eat there since my diagnosis.  I've considered raising the threat of ADA action with them to get them to do something.  I'll be watching this for ideas.

kareng Grand Master

This is interesting.  I'm trying to get my cafeteria at work to start making some gluten-free options available.  Technically, they're available now (salads, baked potatoes, etc.), but no care is taken to prevent or lessen the chance of cross contamination so I rarely eat there since my diagnosis.  I've considered raising the threat of ADA action with them to get them to do something.  I'll be watching this for ideas.

Go to human resources and mention ADA. See the look of dread and terror or annoyance that will spread across their face.

But, you can bring a lunch? Them providing a safe lunch isn't really a requirement to help you do your job.

Nikki2777 Community Regular

Go to human resources and mention ADA. See the look of dread and terror or annoyance that will spread across their face.

But, you can bring a lunch? Them providing a safe lunch isn't really a requirement to help you do your job.

Thanks  - yes, I'm hoping to resolve this without HR, but I'll go to them if I can't.  I believe I'm the only person with Celiac in the company, but a very senior exec is following the SCD so I might enlist help from him (I'm pretty sure his meals are prepared privately - I'm just lowly middle management).

 

I've been bringing my lunch most of the time, but we have many impromptu lunch meetings in the cafeteria and it would be nice to be able to eat something so I don't end up derailng the agenda with discussions about Celiac.  

 

I'm confident I'll talk them into doing something.  It's just going to take some time and a few well-placed threats.

Ksee Rookie

Thanks  - yes, I'm hoping to resolve this without HR, but I'll go to them if I can't.  I believe I'm the only person with Celiac in the company, but a very senior exec is following the SCD so I might enlist help from him (I'm pretty sure his meals are prepared privately - I'm just lowly middle management).

 

I've been bringing my lunch most of the time, but we have many impromptu lunch meetings in the cafeteria and it would be nice to be able to eat something so I don't end up derailng the agenda with discussions about Celiac.  

 

I'm confident I'll talk them into doing something.  It's just going to take some time and a few well-placed threats.

Oh I see this as solvable. In your case (if it were me) and I could not get any consideration, I would find a way to gently urge the discussion toward diversity in the workplace. I get the sense they may be way ahead of you but embrace the agenda derailment just a bit and subtly.

Your point is at least as strong when looking at it as a discriminatory issue as a disability issue and maybe stronger. Your company is large enough to have a cafeteria and HR department and since you describe yourself as middle management I'm guessing there are more than 100 employees. That puts your company in a category of having greater responsibility to accommodate varying employee needs.

Googles Community Regular

I registered with my universitie's students with dissabilities office for protection. My department was insane and I actually had a professor ask me if I should be in our area of study given that I was asking how to bring up my Celiac with my internship. It helped because I had someone to talk to about my trials around dealing with my professors incase anything came up. Luckily that was the worst of it. I was worried most of all of getting sick during class and needing to leave possibly in the middle of something important (like a test or presentation). Luckily I made it through all 3 years of classes. I only had a few problems at my internship where I had to leave for a short period of time to get more Imodium as I had run out of what I had with me. :mellow:  My internship was actually really awesome about it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.