Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Test Results


BSVD

Recommended Posts

BSVD Rookie

My test results were: GLIADIN (DEAMIDATED) AB (IGA)      49         range<20

                                       TISSUE TRANSGLUTAMINASE AB, IGA    10     range<4

Biopsy results were: Villous tip blunting and intraepithelial lymphocytosis and lymphoplasmacytic infiltrate suspicious with celiac sprue. Under clinical info it says: A. R/O sprue   B.  N/G

Doc said to go on gluten free diet, but I'm the type that needs to know for sure.

Can anyone help me? Maybe further testing will be more conclusive?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ksee Rookie

My test results were: GLIADIN (DEAMIDATED) AB (IGA)      49         range<20

                                       TISSUE TRANSGLUTAMINASE AB, IGA    10     range<4

Biopsy results were: Villous tip blunting and intraepithelial lymphocytosis and lymphoplasmacytic infiltrate suspicious with celiac sprue. Under clinical info it says: A. R/O sprue   B.  N/G

Doc said to go on gluten free diet, but I'm the type that needs to know for sure.

Can anyone help me? Maybe further testing will be more conclusive?

That is a for sure. You need to stop gluten,

BSVD Rookie

That is a for sure. You need to stop gluten,

Thank you so much for your reply:) I am feeling alone in all this. I have stopped gluten, but was wondering if it was really necessary.

nvsmom Community Regular

Yes. You are positive on 3 out of 3 tests. It doesn't get much more positive than that.  :( Welcome to the board.

 

There is a lot of info around here so look through the threads. Ask questions or just vent. the people around here are very helpful and encouraging. And hang in there... the first few weeks are often the hardest, mentally and physically.

notme Experienced

you're not alone - this is a good place to learn how to keep yourself eating safe and healing well.  soooo....

 

welcome to the best club you never wanted to join   :blink:

Ksee Rookie

I started feeling better very quickly, within a few days, but I have read it is different for everyone. I already knew a lot about nutrition, and healthy eating. My diet has always been simple, whole foods with simple processing if any so it was easy for me to get the gluten out of my cabinets and fridge. That could of been a reason for my rapid improvement. 

I hate eating out, for so many years it was all I could do because of my work. That is all to say, I have not had a hard time changing this one thing. I don't know yet how sensitive I will be to accidentally contacting unrecognized gluten. 

I can say the benefit of only one thing, decreased pain and digestive problems, is by itself reward enough to make any effort worth the gain. That isn't the only benefit though. I think I'm like the blindfolded person asked to describe the nature of an elephant by holding it's tail. I have a sense of something large but as yet can only hold to a thin rope.

Hang on tight, ride that elephant  :D it's gonna be great!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.