Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Car Trip!


ABQ-Celiac

Recommended Posts

ABQ-Celiac Rookie

After eating gluten and dairy free for 9 months, I made my first long car trip. I used to love road trips: pizza, Chinese food, and fast food all day!

 

But this year I packed my rice cooker, toaster, and a cooler with ham, frozen chicken, ketchup, bacon, eggs, soy sauce, and then a bag of the life-saving Mi-Del cookies and Glutino crackers and nutrition bars to fill in the cracks!

 

It was a pain, of course, finding kitchenette motels where I could cook suppers and breakfasts, but I was healthy all week. I stopped at Wendy's every lunch for plain patties and a baked potato, or a plain chicken patty for a change. (Not every fast food place understands the order: "2 patties, no bun, no cheese," but most did.

 

I got tired of washing dishes in motels every night and morning, but it was better than being sick.

 

I did 7 days and used up my traveling food and restocked it every couple of days. The food gets boring, but it's boring at home as well. (Rice and ham. Rice and chicken. Rice and hamburger.)

 

Since I last posted, I did have another endoscopy to check my villi, and they are still atrophied, but overall I was cancer free in my stomach, colon, and duodenum, so that was all good news.

 

Here's to a good week of coping for everyone!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

That sounds great!  We have an RV which makes it a lot easier, but travel for business too.  Purchasing a "throw" away Styrofoam cooler upon arrival  is handy or cramming a collapsible  cooler into our luggage has saved us when we haven't found a frig in our hotel room.  Our fast food is shopping at grocery stores now.  Just a few visits, like you, to Wendy's or In-N-Out when we're sick of cooking.  

 

We always keep a few cans of gluten-free soup on those trips for emergencies.  Our little cheap toaster is invaluable for sandwiches.  And there's nothing like a bowl of Rice Chex with added fruit to start your traveling day.

 

Thanks too for letting me know about your recovery.  I'm still a newbie and I guess I'm just going to have to accept the fact that it took years to damage my villi and years to completely heal.  The good news is that I'm feeling much better.

ABQ-Celiac Rookie

Hi! Yes, I wasn't diagnosed until I was in my 50s, so the amount of damage was fairly extensive. I still have bad nausea days, sometimes from cross-contamination, sometimes - as my doctors say - because my stomach is just doing the best it can.

 

We had an RV years ago, though, and are thinking of getting one again. 

 

Cheers!

 

 

That sounds great!  We have an RV which makes it a lot easier, but travel for business too.  Purchasing a "throw" away Styrofoam cooler upon arrival  is handy or cramming a collapsible  cooler into our luggage has saved us when we haven't found a frig in our hotel room.  Our fast food is shopping at grocery stores now.  Just a few visits, like you, to Wendy's or In-N-Out when we're sick of cooking.  

 

We always keep a few cans of gluten-free soup on those trips for emergencies.  Our little cheap toaster is invaluable for sandwiches.  And there's nothing like a bowl of Rice Chex with added fruit to start your traveling day.

 

Thanks too for letting me know about your recovery.  I'm still a newbie and I guess I'm just going to have to accept the fact that it took years to damage my villi and years to completely heal.  The good news is that I'm feeling much better.

cyclinglady Grand Master

Hi! Yes, I wasn't diagnosed until I was in my 50s, so the amount of damage was fairly extensive. I still have bad nausea days, sometimes from cross-contamination, sometimes - as my doctors say - because my stomach is just doing the best it can.

 

We had an RV years ago, though, and are thinking of getting one again. 

 

Cheers!

We camped for years in tents.  Love the RV.  We drive a Pleasureway on a Sprinter platform (Mercedes Diesel).  Gets 21 mpg.  Little, but we can go anywhere!  Thankful to be able travel and cook gluten-free.  It greatly reduces the worrying factor.  

 

Have a great weekend.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,311
    • Most Online (within 30 mins)
      7,748

    kayd.sloan
    Newest Member
    kayd.sloan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Canker sores can definitely be frustrating, especially when you're already managing a strict gluten-free lifestyle and have been diagnosed with celiac disease for so long. While these painful mouth ulcers aren’t exclusive to celiac disease, they can be linked to nutritional deficiencies—particularly of iron, folate, or vitamin B12 (as @trents mentioned )—which are common in people with celiac, even those who are very careful with their diet. Ongoing fatigue and aches might also suggest that your body isn’t fully absorbing nutrients or that there’s some underlying inflammation. It could be helpful to get bloodwork done to check for these deficiencies, and possibly even a full nutritional panel. Sometimes, new sensitivities or hidden sources of gluten or additives like sodium lauryl sulfate (common in toothpaste) can trigger symptoms like canker sores too. Since your reactions are so severe and you're highly vigilant, it might also be worth considering whether any other autoimmune conditions could be involved, as they can develop over time and overlap with celiac. Consulting with your doctor or a celiac-informed dietitian may help pinpoint the cause and bring relief.
    • knitty kitty
      @Dora77, You shouldn't worry about getting glutened through your skin.  You would have to touch a gluten infested doorknob and then put your hand in your mouth.   I'd be more concerned with your mom's heating up gluten bread in the oven and boiling gluten noodles.  These methods cause particles of gluten to become airborne which would then enter your nose and be swallowed, going into your digestive tract.  I have to avoid the bakery aisle at the grocery store for this reason.  An M95 mask helps. If you get nutritional deficiencies corrected, your immune system will calm down and be less reactive to gluten expose.  Vitamin D helps regulate the immune system.  Thiamine and Niacin help make digestive enzymes which would help digest any accidental gluten exposure.  Thiamine helps Mast cells not to release histamine, an inflammatory agent released as part of the reaction to gluten, and also a neurotransmitter that causes alertness and anxiety, and the flight or fight response.  Pyridoxine will help improve the OCD.  Remember your brain is part of the body.  Vitamin deficiencies affect your brain and mental health as well as the rest of your body.  
    • Jacki Espo
      I do not have evidence other than anecdotal but I am certain when I have gotten these it's the result of eating gluten (back when I did).  I don't get them now that I don't eat gluten. 
    • Dora77
      What really bothers me is if worrying about getting cc‘d from touching the same door knob as others touched is valid. Seems like an extremely unlikely way to get glutened but i read people saying that.    If thats true then theres realistically zero chance i dont get cc‘d in a non gluten-free household unless i Cook Everything myself and wash my hands multiple times in between and store all of my stuff separately
    • trents
      Welcome to the forum, @Mrs. Cedrone! Among the various causes for canker sores, are "Nutritional problems like too little vitamin B12, zinc, folic acid, or iron" https://www.webmd.com/oral-health/canker-sores Could you be deficient on something?
×
×
  • Create New...