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Gluten Free, Wheat Free, Dairy Free, Nut Free, Yeast Free, Egg Free, Corn Free, Rice Free

Rachel:)

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Rachel:) Newbie
Rachel:)
Posted

Hello everyone! I'm new to this! Iv been on this diet now for 6 days..I need suggestions or even someone who understands and is in the same boat as me! Any advice is greatly appreciated :)

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Lisa Mentor
Lisa
Posted

Hello everyone! I'm new to this! Iv been on this diet now for 6 days..I need suggestions or even someone who understands and is in the same boat as me! Any advice is greatly appreciated :)

Welcome...now what does you diet consist of? And what is the reason for such a restrictive diet?  (If you have posted this previously, I appologize for the query) :rolleyes:...i.e. what boat are you in. B)

175comet Rookie
175comet
Posted

Me too!! You know it seems impossible but it can be done! I started about 2 or 3 mtgs ago. I tested out nuts and eggs and am ok with them. Here's the positive:

1) I went from 148 pds to 138 pds

2) my energy level went sky-high. I feel like I'm 20 yrs old again.

3) I've been eating really healthy so I feel more motivated to to play w my daughter and even exercise.

4) food tastes better. I'm not kidding. Last night I boiled chicken and had a plain baked potato. And I thought this was yummy! (Hey I liked Big Macs)

5) my tummy isn't ready to burst (ie no massive alien-like bloating).

6) my neurological symptoms are gone

So yeah it's a real pain in the butt and very inconvenient, but it's a lifestyle change I'm ok with.

Stay with it! You can do it!!

  • 3 weeks later...
equitopia Newbie
equitopia
Posted

I'm also gluten, dairy, soy, egg, yeast, rice, and nut free (except for cashews, those I can have). Life is hard. : (  I was tested for additional food allergies after being diagnosed with gluten and dairy intolerances, and the bloodwork came back and said I had antibodies to the other foods listed. I basically eat meat, veggie & fruits. Breakfast is the hardest meal, I usually have a coconut milk smoothie with a little fruit and some stevia, and some meat leftover from previous night's dinner (this morning was grilled chicken).

 

I've been gluten and dairy free for 2.5 yrs, but only found out about the other foods 6 months ago.  It's not easy...

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      My journey is it gluten or fiber?

      By xxnonamexx · Posted

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    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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