Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ectopic Heartbeats And Exercise?


designerstubble

Recommended Posts

designerstubble Enthusiast

Went to docs last week because of palpitations, flutters, missed beats... They occur sometimes everyday at rest or after eating or basically at anytime, ocasionally I don't notice them for a day. Sometimes I notice 10 in an hour.

Sometimes its more than just one ectopic, its 3 or 4 together. Once after a run i had a missed beat of about 3 seconds then a huge skipping for another 4-5 seconds... I put this down to being tired from run, hot and dehydrated. I did feel a bit sick and dizzy, but it had been a hard run!!

 

They did a 7 second ECG that showed a an ectopic heart beat. My doc checked various things (thyroid, renal etc) but now says she is going to refer me to a cardiologist... For a 24 hour ECG test...

 

In the meantime I asked if I could do my usual exercise (I have recently moved mountains to motivate myself to exercise, it's been 2 months and I'm proud of myself I'm doing ok!), but my doc says that it's up to me but advises to wait until I have seen the cardiologist. This will probably mean 2-3 months or more of waiting here in UK. She suggested I walk instead. :(

 

Gutted, demotivated. Completely pissed off. I'm trying SO hard to well.

 

I want to continue running and doing my taekwondo class (I only do 2 sessions of exercise per week) If I stop now, I know that'll be it.

 

 

 

Anyone suffer from anything similar? Have googled it all, most ectopics seem benign? 

Any info GREATLY appreciated as I think I'm gonna carry on with the running... I feel well otherwise you see (for a celiac!)

many thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I think this condition is called A-Fib in the US and, while I have never had any heart problems, I have a cousin who just underwent surgery to correct long standing A-Fib.  Well...it doesn't really correct it but that's their fix for it in AMA Land.  What I do know is that A-Fib is an associated condition for Celiac's.  I have heard a few of these people say their A-Fib went away on the gluten-free diet, after a time.  I don't know how long you have been gluten-free but there is a good chance it will self correct.  I think you will have to see the heart guy anyway but I wouldn't be overly worried about it before you do go to the doctor.  My cousin, I strongly suspect, has celiac but she STILL is not convinced she has it.  A-Fib, IBS, thyroid problems......and she still isn't convinced.  I have no idea if she has been tested because they dance around any questions I may ask so I don't bother anymore. 

 

If you have this problem after running, I would walk for awhile and see what happens after you see the heart guy.  If you feel good after running, keep on running!  :)   That's what I would do anyway.....I do not give up my exercise without a damn good reason!

designerstubble Enthusiast

Thanks so much for your response! This exactly how I feel about my running and exercise. I haven't really had this problem after running except once, when in the shower I felt like my heart didn't beat for about 3 seconds, then it went crazy for a few seconds... I felt a bit dizzy & lightheaded and it did make feel queazy and odd... but it had been a hard run (in the morning sun), and I know I was dehydrated (no fluid since the night before)... I went straight out of bed! So I'm not surprised it happened if you catch my drift?! I've been running since that (before docs appt) and been fine, generally I'm bouncing afterwards (give me 10 mins recovery!)... I have my taekwondo class tonight which is tough, but I'm going to go...

Thanks Gemini really appreciated. I'm so annoyed!... It's hard recovering and trying to get better (gluten-free for 7-8 months), and my exercise and running have kept me sane these last 2/3 months... Thank yoooooou :)

  • 1 month later...
CeliacInSenegal Rookie

Hey designerstubble, sorry to hear it. That must be scary, though as you say, it seems most uneven heartbeats are benign. Your post reminded me that I also experienced some irregular heartbeats in the last year or so, but only while exercising. I wonder now if they could have been related to Celiac, particularly before I was diagnosed. I went to see a doc at the time (you know, since I was afraid I was going to drop dead in the middle of class) and he suggested it was just dehydration, which seemed plausible given the excessively hot and humid climate I work out it (though I hadn't had the arrhythmia in the previous years doing the same). In any case, the doc didn't think it was anything to worry about. That's very interesting if Celiac can cause palpitations or uneven heartbeats. Good luck with getting some answers.

  • 3 weeks later...
designerstubble Enthusiast

Hey designerstubble, sorry to hear it. That must be scary, though as you say, it seems most uneven heartbeats are benign. Your post reminded me that I also experienced some irregular heartbeats in the last year or so, but only while exercising. I wonder now if they could have been related to Celiac, particularly before I was diagnosed. I went to see a doc at the time (you know, since I was afraid I was going to drop dead in the middle of class) and he suggested it was just dehydration, which seemed plausible given the excessively hot and humid climate I work out it (though I hadn't had the arrhythmia in the previous years doing the same). In any case, the doc didn't think it was anything to worry about. That's very interesting if Celiac can cause palpitations or uneven heartbeats. Good luck with getting some answers.

Thats interesing... My cardiologist thinks its not related to celiac but I wonder how so many years of malabsoption cannot affect other parts of the body?? we all know that celiac disease messes with hormones... heart rhythms are also affected by thyroid and adrenal so... my guess is that its all connected... Mainstream consultants are just NOT interested!! Anyway, I had an exercise stress test which showed premature ventricular beats and premature atrial beats, apparently nothing to worry about as they were not present during my maximum heart rate. They are still asking me to wear a holter device for 7 days because of my 'waking up' with racing heart episodes...But i am still exercising and learning to put up with it. Its horrible though! Fingers crossed for the tests though hey?!!!

CeliacInSenegal Rookie

Good luck with the tests. Hopefully it won't turn out to be anything serious. This may not be connected to your Celiac, but I think you're right that we (docs included) don't yet understand all the ways Celiac can affect other body systems and be linked to seemingly unrelated problems. Maybe the increase in Celiac and diagnoses will help improve our global understanding of it.

  • 4 weeks later...
designerstubble Enthusiast

Just posting an update for info purposes :)

Wore a holter device for 7 days. Showed ectopic multi form ventriculars, and couplets. Apparently nothing to get too excited about. I have been assured that it is not celiac related (I am sure that there is little research on the matter therefore do not hold much credence to that opinion!)... And I have been told that I require no further investigation at this time unless racing heart appears again. Moral of the story. Go to ER and get diagnosed at the time of episode!!! Even if you don't think it's important enough, or feel silly. Saves an awful lot of aggravation!! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Thanks for the update.  How are you feeling, though?  

designerstubble Enthusiast

I feel ok mostly. I have days of 'heart awareness' and days when I forget completely. Hopefully it will just be a phase? I seem to have gone through SO many things after diagnosis that have been a phase! Sometimes I wonder if I'm losing the plot!!! 8-)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    2. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,923
    • Most Online (within 30 mins)
      7,748

    cmckurtz
    Newest Member
    cmckurtz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.