Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When You Don't Get Glutened


Pegleg84

Recommended Posts

Pegleg84 Collaborator

Oh, Chicago, how I love thee!

 

This weekend I went to Chicago, again. For the 2nd time, it was one of the best gluten-free culinary experiences of any city I've been in. It's everywhere! and they seem to be much more conscious of cc and such because, for the 2nd time, I've been home for a couple days and NO GLUTENING! Yay!! I was even brave (or stupid) and ate the burrito stuff (in a bowl) they were using to make burritos at the BBQ, which could have been a CC disaster, but seems to be agreeing with me quite well. I had a few bathroom troubles, but they were more nerves/alcohol/forgot to take my enzymes related, and nothing to worry about.

 

Coming back from vacation without one bad incident feels like a victory! Gluten free happy dance!
As my boyfriend said, I should have all my meals flown in from Chicago. n

 

So, does anyone else have "victory" stories, times when you've done everything right AND it all turned out ok. Gluten-free happy dance moments?

 

Also, if you're ever in Chicago, go to Prasino's for the best gluten-free sandwich, Bountiful Eatery for entirely gluten-free fast food, and Big Star for the best tacos you will ever have (they only use corn tortillas).

And beer. Lots and lots of beer.

 

Cheers!

Peg


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aeraen Apprentice

I travel frequently, and must admit the only time I've had no issues is when I brought and ate my own food.  However, I don't live too far from Chicago, and my husband and I like to visit at least once a year.  I'll be taking your restaurant list with me the next time I go. 

HumanDecency Contributor

Thanks for making me smile! I'll be adding Chicago to the vacation list.

I'm still working on eating at home... but hopefully someday restaurants will be back in the itinerary "other than water"

Tbolt47 Newbie

Oh, Chicago, how I love thee!

 

This weekend I went to Chicago, again. For the 2nd time, it was one of the best gluten-free culinary experiences of any city I've been in. It's everywhere! and they seem to be much more conscious of cc and such because, for the 2nd time, I've been home for a couple days and NO GLUTENING! Yay!! I was even brave (or stupid) and ate the burrito stuff (in a bowl) they were using to make burritos at the BBQ, which could have been a CC disaster, but seems to be agreeing with me quite well. I had a few bathroom troubles, but they were more nerves/alcohol/forgot to take my enzymes related, and nothing to worry about.

 

Coming back from vacation without one bad incident feels like a victory! Gluten free happy dance!

As my boyfriend said, I should have all my meals flown in from Chicago. n

 

So, does anyone else have "victory" stories, times when you've done everything right AND it all turned out ok. Gluten-free happy dance moments?

 

Also, if you're ever in Chicago, go to Prasino's for the best gluten-free sandwich, Bountiful Eatery for entirely gluten-free fast food, and Big Star for the best tacos you will ever have (they only use corn tortillas).

And beer. Lots and lots of beer.

 

Cheers!

Peg

Hello Pegleg84,

 

Born and raised in Chicago and prior to being diagnosed with Celiacs it is without a doubt one of the best cities anywhere if you enjoy food, and who doesn't. One of the foods I miss most is Deep dish Pizza . There are fair number of places to get very good thin crust gluten-free pizza but not Deep Dish. Very encouraging you had such great success with your diet on vacation. I am curious, so alcohol does not bother your Celiac's ? I have not found a Gluten Free Beer I like and really all forms of alcohol ( wine, gluten-free Beer, gluten-free Vodka etc.) gives me the same symptoms as though I have consumed gluten. I have been gluten-free for aprox. 6 months.

GottaSki Mentor

I'm headed to Chicago in the Fall -- thanks Peg for a great starting list!

 

Glad to hear you had such a wonderful trip :)

Pegleg84 Collaborator

I guess I put a little too much emphasis on the Chicago part of this post. I'm wondering about people's good experiences with... whatever. Maybe it's a family dinner that went well, or discovering that your local gluten-free bakery now makes doughnuts, or just going more than a month without any issues. "Yay! No glutening!" *happy dance* moments.

Gemini Experienced

I've been doing this for 8 years now and can honestly say it's a rare day when I am glutened.  You become more confident and educated as time goes by and that helps greatly.  I go to the UK or Ireland every other year and usually have great success with that.  I am extremely sensitive also and get sick from crumbs....really sick.  But I also bounce back much quicker because I am healed and well now....no deficiencies to slow that down. 

 

It is very possible to travel successfully while gluten-free.  I usually eat breakfast in and the only meal I eat out at is dinner.  It really is a good feeling when you accomplish this and further boosts your confidence.  No one should put off travel because they are afraid to eat meals outside of the home.  Unless you have multiple intolerances, even the most sensitive of us can travel and not spend the entire time sick. I am going to the UK in September/ October and I don't even take that much food with me. I buy it there as their supermarkets carry many gluten-free items.

Taking a suitcase of food, when you have other suitcases to lug around, is a royal pain in the arse.  I guess it all depends on where you go.

 

NYC is extremely gluten-free friendly also and a great city to visit...ditto for Boston!  I have a nephew in Chicago so will visit there sometime and take this list with me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,816
    • Most Online (within 30 mins)
      7,748

    KTH
    Newest Member
    KTH
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.