Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Little Sons Blood Test Results Question


wildlife-lover

Recommended Posts

wildlife-lover Newbie

Hi all,

If anyone could help me figure out if my little boys blood test results for celiac disease are positive I would be so grateful. I actually have celiac disease myself and was diagnosed 15 years ago thru a different blood test and then biopsy. My son has been having all sorts of health issues since he was basically 9 mos old. Delayed in every milestone, chronic diarrhea, constant infections/viruses , failure to thrive , a tic disorder, and major behavioral problems similar to ADHD and anxiety which the ADHD meds don't help but rather exacerbate his tics and make his stomach sick. We saw a gastro at children's hospital a couple weeks ago and he did several blood tests. He said he could tell me already that he is lactose intolerant and wants to do some breath test which we have to set the appointment for. But, I got copies of his be results yesterday when picking up sterile containers for stool samples and can't figure out if this test is positive or negative! It's driving me crazy. Im usually really good at blood results. I didn't know this was a celiac disease test because the first thing it showed was his SELENIUM is HIGH. Then I googled the actual test which is the tTg ab iga and saw it was for celiac. Here is how it reads and I'm confused by the exclamation point on both of the results. Does anyone know what this is saying? Thanks so much for any help.

(TTG) Ab IgA. < 1 !

Selenium 142 H ! (55-134) Mcg/L


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



powerofpositivethinking Community Regular

are there any reference ranges printed on the sheet for the ttg iga?  Does it say the who the tests were run by?  Find out that reference range  :)

 

The tests below are a comprehensive celiac panel.  So far your son has only had 1/6 tests.  I would push to get the complete panel done especially since there is family history of celiac.

 

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing

check out page 12 in this report for testing information:

Open Original Shared Link

 

the only test your son had run was the ttg iga.  The DGP tests seem to be better for younger children.  I'll see if I can find some links to articles for you.

 

 

 

Hi all,
If anyone could help me figure out if my little boys blood test results for celiac disease are positive I would be so grateful. I actually have celiac disease myself and was diagnosed 15 years ago thru a different blood test and then biopsy. My son has been having all sorts of health issues since he was basically 9 mos old. Delayed in every milestone, chronic diarrhea, constant infections/viruses , failure to thrive , a tic disorder, and major behavioral problems similar to ADHD and anxiety which the ADHD meds don't help but rather exacerbate his tics and make his stomach sick. We saw a gastro at children's hospital a couple weeks ago and he did several blood tests. He said he could tell me already that he is lactose intolerant and wants to do some breath test which we have to set the appointment for. But, I got copies of his be results yesterday when picking up sterile containers for stool samples and can't figure out if this test is positive or negative! It's driving me crazy. Im usually really good at blood results. I didn't know this was a celiac disease test because the first thing it showed was his SELENIUM is HIGH. Then I googled the actual test which is the tTg ab iga and saw it was for celiac. Here is how it reads and I'm confused by the exclamation point on both of the results. Does anyone know what this is saying? Thanks so much for any help.

(TTG) Ab IgA. < 1 !
Selenium 142 H ! (55-134) Mcg/L

powerofpositivethinking Community Regular

Open Original Shared Link

wildlife-lover Newbie

Hi, the reference range for the selenium is in the parenthesis normal being 55-134!and his selenium is 142 H ! The tTG AB IgA test has a <1 ! , the exclamation is whats confusing me. the test was done by quest but i cant find anything in regrds to why selenium would be high. Do u have any idea why selenium is tested with a celiac test? I'm kind of freaking out because we are on well water from the ground and what if his level is high because he is being poisoned? Besides celiac disease, I also have systemic lupus and Antiphospholipid disease and I don't feel well and have weird symptoms all the time. Maybe I have too much selenium also? He is having a lactalose test next month and I'm not sure if there are more test being run that just haven't come in yet. I pray that he doesn't need more blood drawn. It's so scarey for him and extremely difficult. Thanks for the info and I am going to check out wthe link u posted.

powerofpositivethinking Community Regular

I'm not sure why selenium is high.  Can anyone help me out with that please???  How old is your son?

 

ok here's what I came up with on Quest's website regarding their ref. range range for ttg iga: <4 no antibody detected, so according to that your son did not test positive on the ttg iga.  I'm not sure why there is an exclamation point by it, since it is negative as compared to their website.  Here's the link on Quest's website that I looked at:

Open Original Shared Link

 

the problem with testing is that your son could be Iga deficient which some with celiac are.  If that's the case then that invalidates the ttg iga.  A total iga really needs to be run.  Since you use Quest, here are the different celiac tests they provide:

Open Original Shared Link

 

 

Since multiple autoimmune diseases run in your family, push for additional testing besides the ttg iga.  I would really suggest calling the doctor to see if you can get the above panel from my previous post done or at the very least Total iga and DGP igg.

 

Has any nutrient testing been done?  I would suggest:

Vitamin/Minerals:

Complete Blood Count (CBC)

Complete Metabolic Profile (CMP)

Vitamin B-12

Folic Acid

Vitamin A, D, E, K

Ferritin

Iron

Magnesium

Zinc

Copper

Niacin

Riboflavin

C-Reactive Protein

Good info from University of Chicago Celiac Center:

Open Original Shared Link

 

 

don't mean to scare you off with all these lists, but keep pushing because as Mom, you know best  :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,051
    • Most Online (within 30 mins)
      7,748

    levizagepro
    Newest Member
    levizagepro
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems crazy to me that even when you call a manufacturer they can't, in this day and age, answer the simple question about what exactly is in their product!!
    • Stephanie Wakeman
      Thank you so much for your response! It's been a challenging journey with this condition! 
    • milana
      Thank you very much for your response. Since I got this advice I called Pepsid manufacturer and they could not give a definite answer. Basically,  there is no final testing and they do not guarantee anything. So I went and got farmotidine from Wagmans that was marked gluten-free and also our pediatrician gave us a prescription for farmotidine that was also gluten-free. So there are other options there thankfully. In case someone will come across of this dilemma.
    • Diana Swales
      A nutritionist typically focuses on general wellness, lifestyle guidance, and preventative health. A dietician allowed to provide medical nutrition therapy. When i was diagnosed there was zero support and few dieticians and Dr understood celiac disease.  I typically guide a newly diagnosed celiac to a whole food diet to easily transition to the gluten free lifestyle  
    • Scott Adams
      Your gluten-free journey sounds like a lot of trial and error—especially working in a deli where gluten exposure is constant! The eye-watering issue could be an airborne gluten sensitivity (like flour dust irritating your eyes) or even a mild wheat allergy, since you’re around it daily. A daily antihistamine (like Claritin or Zyrtec) might help if it’s allergy-related, but avoiding airborne gluten as much as possible (masking, washing hands/face often) is key. It’s great you’re tracking triggers—high-fiber foods and certain gluten-free substitutes (like those tortillas or PB pretzels) can sometimes cause similar symptoms due to additives or digestive adjustments. For travel, pack safe snacks (protein bars, nuts) and research gluten-free translation cards for Aruba. On flights, opt for packaged gluten-free meals or eat beforehand. Many gluten-free foods and baking mixes contain xanthan gum or other gums like guar gum. Although they are both gluten-free, they may cause IBS-type issues in some people with celiac disease or gluten sensitivity:   You’re doing all the right prep—trust your research and enjoy your trips! 
×
×
  • Create New...