Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Jaw Pain?


HumanDecency

Recommended Posts

HumanDecency Contributor

I developed a pain in the center of my chest today. Lots of burping and gas. Eventually this created a numbness in my jaw. The lower left hand corner. Of course all searches on this yield heart issues which is extremely scary. So I went to the doctor (urgent care) to get a formalized opinion because I couldn't reach my doctor and the urgent care was right now the road. 

 

I had a chest x-ray and a ekg. They both came back normal and they just told me to monitor and that it was probably trapped gas and acid reflux. Well maybe, but has anyone else experienced these problems?

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Yes, I used to get that a lot before I was diagnosed. I had cardiac testing (Holter Monitor and Stress Echo) which was normal.

Later, when I had my endoscopy, the doctor found a hiatal hernia. My gas/reflux is much better now, but from time to time will resurface.

GlutenStinks15 Explorer

I had jaw pain and pain in my gums and teeth pre-diagnosis. Good that you got it checked. I hope you feel better!

HumanDecency Contributor

Thanks.

 

I've been gluten free for 3 months. Checking for CC, but don't see anything obvious. Hopefully it'll go away one of these days. :) 

AlwaysLearning Collaborator

I definitely had jaw pain related to gluten. It would hurt mainly when chewing and start a few hours after eating something that contained large amounts of gluten. But it went away completely when I went gluten-free. I particularly noticed this in the last month before I went gluten-free, when I was starting to become suspicious of gluten.

But TMJ is also closely linked to jaw pain.

Makes me wonder if TMJ is related to gluten allergies. Seems as if everything else under the sun can be linked to gluten and mine seemed to go hand in hand with the phases of my life where gluten was more prevalent.

But I haven't had any problems with TMJ or jaw pain since going gluten free. 

HumanDecency Contributor

How long were you gluten free before the relief appeared?

I realize it's different, but I am beginning to wonder if I'm getting CC'd somewhere. I just can't pin it down. I don't buy anything food wise (read the labels) I check all my condiments, medicines, toiletries... etc 

 

The only thing I can think of might be the dog food and I try to be extra careful with that. I'm looking for alternatives which will not hurt my doggy.

shadowicewolf Proficient

How long were you gluten free before the relief appeared?

I realize it's different, but I am beginning to wonder if I'm getting CC'd somewhere. I just can't pin it down. I don't buy anything food wise (read the labels) I check all my condiments, medicines, toiletries... etc 

 

The only thing I can think of might be the dog food and I try to be extra careful with that. I'm looking for alternatives which will not hurt my doggy.

Dog food can contain it. If you want a good and healthy "dog" food, cook up a batch of chicken and rice with veggies. Boil the chicken, shred. Use the broth to cook the rice. Add some frozen veggies (such as peas and carrots, green beans are good too).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AlwaysLearning Collaborator

Relief from most of my gluten problems occurred in the first two days of going gluten free, but I probably wasn't completely successful at steering clear of it for the first month, getting hit from some of the hidden sources like spaghetti sauce and my toaster. But I still had/have plenty of problems related to vitamin deficiencies that I'm just now starting to track down and treat, and some of these problems are much more painful than those that cleared up after going gluten free. Have you had your levels checked? I've read that folate, B12, iron, and vitamin D are high on the list for likely deficiencies.

But I never had the type of jaw numbness or chest pain that you described.

Do you keep a food diary that you could check back to see what you were eating in the days before it happened?

Curious about the dog food, I googled. Here is a link to a thread on the forums about it.

https://www.celiac.com/forums/topic/89076-pet-food/

HumanDecency Contributor

Yeah. I've been trying to keep a diary but nothing consistent is standing out.

I do have slightly low iron and low iron saturation. I've read that the symptoms can be similar. Also slightly low in vitamin d. I think the chest pain is gas. I get a lot of gas and burp all the time. I've been worked up and they say my heart and lungs are fine.

What kind of problems did you have with deficiencies?

answerseeker Enthusiast

When I have really bad GERD I get that pain in my chest, it also spreads to the shoulder. Are you eating anything acidity? Even coffee can trigger it but I'm not about to give that up!

I'm experiencing the jaw pain the last couple days. Can't figure it out, feels like I've been punched in the jaw! It's the lower left but not in the corner where the joint is

HumanDecency Contributor

Yeah, I probably am. I try to avoid the major triggers... but I'm sure I still get a bit of onion and tomatoes, etc. I'm working towards a more alkaline diet. I'm just not a very good chef... so the learning process is difficult. The girlfriend cooks more but she is still learning also. She just decided to go gluten free with me to see how hard it is and I think she is realizing it is no picnic under the sun.

 

 

When I have really bad GERD I get that pain in my chest, it also spreads to the shoulder. Are you eating anything acidity? Even coffee can trigger it but I'm not about to give that up!

I'm experiencing the jaw pain the last couple days. Can't figure it out, feels like I've been punched in the jaw! It's the lower left but not in the corner where the joint is

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.