Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free For A Week, All Symptoms Gone! Possible?

animmunetarget

Recommended Posts

animmunetarget Newbie
animmunetarget
Posted

My story: Last Fall I went through several tests with my Gastro Doc trying to find the cause for my Stomach Issues. (Diarrhea within minutes of eating things, sometimes alternating with constipation...etc, stomach cramps, previous dx of IBS (Go figure) other autoimmune conditions and so forth. I had Genetic Testing done a couple months back in an effort to find the root cause of my symptoms. which included things like the above as well as Migraines very frequent and elevated Liver Enzymes for which no known cause has ever been found. The testing revealed that I have the HLA DQ 2.5 Gene and am high risk for celiac disease. That nipped it in the bud for me. I knew that every time I ate Pizza or Tacos I would be in the BR within 5-10 mins and having it run right through me. I am anemic as well. So, I thought maybe I was lactose intolerant. Still noticing symptoms even with cutting out cheese and dairy, so went back on those, thought maybe it was the sauce being too spicy..etc. As a last ditch effort I decided to put myself on this gluten-free diet along with Low Carb as I need to lose weight too. Can I say that I noticed a positive response within 2 days of having began eliminating gluten from my diet? It has been 7 days today. Just to test the waters I did eat a taco salad this past week, minus the shell. Guess what? No running to the BR at all. My BM`s are normal for the first time in years! None of this going from one spectrum to the other either the big D or Constipation, which is my usual run. I feel great! I am almost certain I have a gluten intolerance. Not sure whether it is celiac or not, but I can say that I will eat this way for the rest of my life! Its a small price to pay for having eliminated my stomach issues! 

 

Question is, Is it even possible to respond to a gluten-free diet that quick? Any thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I'm not sure I got this straight, but your doctor tested your genes for Celiac, but did not run a full Celiac Blood panel -- especially with anemia (what kind) and liver issues?

animmunetarget Newbie
animmunetarget
Posted
  • Author

I'm not sure I got this straight, but your doctor tested your genes for Celiac, but did not run a full Celiac Blood panel -- especially with anemia (what kind) and liver issues?

No, I have not had any blood work to test for celiac at all. I have had an abdominal Ultrasound, Hida Scan and Upper Endoscopy. My results indicated there was minimal inflammation in my colon. As far as the Liver issues, my Liver Enzymes rollercoaster, up and then down and then up and then down..etc. My doc said the only conclusion he could come up with was likely a mild case of Autoimmune Hepatitis not bad enough for treatment. I am taking Iron Supplements for the Anemia. The Anemia was the reason I had the Gastro testing done in the first place. They thought it was my gallbladder but the Hida scan showed a High Ejection Fraction which was normal they said. They also stated I had some cysts in my gallbladder, but they were small and they just needed to monitor them for growth. Endoscopy also showed a Hiatal Hernia and some Biliary Reflux. 

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

There have certainly been folks here who have had very quick results, great you have had such a good response.

If you want to be tested for celiac, you need to be eating gluten, so it would be worth getting tested ASAP, a blood test at least. It can be very hard to reintroduce once you have been off. You would also need to be eating it for a biopsy, which some doctors want for diagnosis, and to check the extent of any damage.

Some people want a diagnosis, others are happy without. Have a read around and see what you think.

Lots of us have no tests or negative test, or Non Celiac Gluten Intolerance and live gluten-free.

Check out newbie 101 in the coping section for advice when you do decide to go gluten-free.

Welcome to the board :)

1desperateladysaved Proficient
1desperateladysaved
Posted

 

Question is, Is it even possible to respond to a gluten-free diet that quick? Any thoughts?

 

My MD doctor claimed that I should feel better from the very first day.  Well, I felt pretty good the first 4 days.  I had withdrawal/cross contamination issues after that.  I hope you will be able to skip that.  I have damage that is taking longer to go away, but I am feeling much better now.  I hope all the same to you.

 

D

bartfull Rising Star
bartfull
Posted

Somewhere on this forum is an early post I made stating that after a couple of weeks I felt better than I had since I was a kid. I hope this continues for you but I want to warn you that you may start feeling lousy again in a little while. Many of us do. For some of us, other intolerances rasie their ugly heads. For some, other AI conditions that were being masked by celiac raise their ugly heads. It's almost like that week or two of feeling wonderful is a sign that it IS possible, but it might take a while to get back there.

 

That being said, not all of us have these further problems. I sincerely hope you are one of those who feel great again permanently. But if not, don't give up hope. It might take a little longer to get back to the point you're at now, but you WILL. For now, try to stick to whole foods and skip the gluten-free replacements for a while. Take a good probiotic and some vitamins. It MIGHT not hurt to start a food diary so if you DO go downhill again for a while, you'll be able to single out which food is getting you. Dairy, soy, corn, and nightshades are problematic for some of us. BUT!!! Not ALL of us! You might be one of the lucky ones.

 

Also, read the Newbie 101 thread. It'll help you to ferret out the places gluten can hide and prevent you from getting cross-contaminated.

1desperateladysaved Proficient
1desperateladysaved
Posted

How is it going now?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


animmunetarget Newbie
animmunetarget
Posted
  • Author

This has been Day 9 with me being Low Carb and Gluten Free, keeping my carbs under 20 per day and I feel fantastic! More energy, no headaches, no stomach issues, period. Someone mentioned being allergic to corn, I already know that I am. It was always one of my problems. I take a good Multivitamin now and Magnesium Supplements. As far as getting the proper Dx, I am fine without it. This way of eating has answered any questions that I might have had. I firmly believe I am allergic to Gluten, whether its full blown celiac or not, remains to be seen. But at any rate, I know that going Gluten Free was the best thing I could have done. No more trips to the Bathroom and that is a big relief! The difference has been like Night and Day for me!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.