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Scd

NateJ

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NateJ Contributor
NateJ
Posted

Just curious if anyone here has tried this and what if any results they got from it. I ran across it while reading from other blogs.

Looking for opinions. Does it sound like a scam?

THanks

 

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IrishHeart Veteran
IrishHeart
Posted

If you are asking if I think the promotional scare tactics on that site proclaiming  the "miracle of curing diarrhea" and that "celiacs are slowly dying"  because they do not follow the SCD diet...is a scam approach for you to buy something off the internet?  (well, yes)

 

Have people tried this diet and had success with it? So I hear.

 

You could just go Paleo (there, that was free advice :)) I hate when people "sell" dietary advice in ebooks when there is so much valid info out there that kind people post and share without looking for $$$.

 

I guess what matters is...what are looking for from this diet?

NateJ Contributor
NateJ
Posted
  • Author

I'm sure I'm looking for the same thing most people here are looking for. Help finding relief.

I've done Paleo, didn't help. I've done FODMAPS, didn't help.

So I continue to look for answers.

IrishHeart Veteran
IrishHeart
Posted

I'm sure I'm looking for the same thing most people here are looking for. Help finding relief.

I've done Paleo, didn't help. I've done FODMAPS, didn't help.

So I continue to look for answers.

 

 That's why I asked, Nate. I hate to see you trying stuff that may not work and waste your $$$

 

Many people do really well on the paleo diet (but I found it was too limited and I needed the complex carbs from brown rice, quinoa, etc) to feel better when I started to exercise again.

 

Hey, as I recall, you were going back to the doctor. Did they run any tests?

NateJ Contributor
NateJ
Posted
  • Author

i had another celiac panel ig thing done. all of it was really good, which means i'm not getting glutened.

I also had a CT of stomach and kidneys done. Nothing was seen in my gut from that, but my kidneys are full of stones.

I'm also supposed to have scopes done again, but i dont' like the GI doctor at all. trying to figure out when and how i'm going to do that as I have no one to take me to the procedure.

other than that, status quo of misery.

fatjacksonthecat Rookie
fatjacksonthecat
Posted

Sorry to hear your not feeling so well as I can def relate. About two months ago I had been taking nsaids for a while not knowing how bad they were for the stomache lining and I think it damaged my gut lining so bad I couldnt hardly eat anything for two weeks.It was either that or I was getting glutoned or reacting to something over and over again by an unknown source. Well, out of desperation I tried the closely related version of the SCD diet which is the GAPS diet.I believe that the SCD diet was taken from the GAPS diet. I will say that it did seem to calm my gut down quite a bit and the soup made with  broth and bones was really soothing.They also talk about eating fermented foods so I made some homemade kimchi and started drinking kefir as well.The kimchi has been amazing. Everytime I get a flare or acid feeling in my stomache I eat some kimchi and the pain goes away shortly afterwards. Its supposed to be really good for digestion and said to have trillions of probiotics.

 

Anyways, yea I could see it working IF you could stay on it. It was soooo restrictive and like Irish heart said it got to the point where I was like, just give me some kind of grains already!I also dont like how the SCD page has "why celiacs slowly dying" on it. It just didnt sit well with me and then how you have to order the info seemed a bit disingenuous. Im not saying the diet wont work though cause it did seem to help me for a while at least.I havnt tried FODMAPS yet. Is it as restrictive as SCD or GAPS?

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      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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