Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unable To Cry


1desperateladysaved

Recommended Posts

kareng Grand Master

I am just thinking about my Mom.  I got at least 2 genes from Mom's side.  She is going down hill.  I think she has celiac, and did all I could to get her diagnosed, but It didn't work out.  Dad said they couldn't follow the diet anyway.  Dry eyes could be a similarity to my struggles, but I wouldn't say my eyes are dry yet.  They just don't abound when they should.

 

D

Do your eyes water when you cut an onion? Or when there is smoke from the BBQ or pollen in the air?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

Do your eyes water when you cut an onion? Or when there is smoke from the BBQ or pollen in the air?

They do a little.  They mostly burn.

1desperateladysaved Proficient

Nobody mentioned severe depression as a possibility.  I recently read if you are severely depressed you are sad, but do not cry.  However, I am functioning fairly normally even though I am passing through some tough times. 

1desperateladysaved Proficient

Oh, that reminds me that Mom was treated for dry eyes for years.

Thanks, I will check it out.

D

Quoted from above link:  "Sjögren’s is a chronic autoimmune disease in which people’s white blood cells attack their moisture-producing glands. Today, as many as four million Americans are living with this disease"

 

Hmm on the one hand I might have some more symptoms.  Yet, my dentist comments on my saliva pools.  It looked like the only treatment is for symptoms.  Mine are not severe.  I will ask for testing if I get curious.  Meanwhile, my vital organs have already been checked.  I am continuing a good recovery.  I am feeling quite energetic.  I am increasing my nutrient levels which has been proved by testing.  I am doing what I need to for now, but I will use some eyebright drops if my eyes get dry.

 

Okay?

Gemini Experienced

Gemini, I was thinking that jumping to a conclusion that sjogren's is a likely problem here may be a little hasty, especially considering that the original poster hasn't mentioned any complaints with dry eyes or dry mouth. By no means am I saying that sjogrens isn't serious or that using drops if you do have it isn't needed, just that there are many causes for not producing tears and doing one's research before going to a doctor can help.

But I still wish that science would get to the root of the problem. Western medicine is way too happy to treat symptoms without finding causes.

And I'd still say to start with the easy stuff that we know are common in those with celiac first like vitamin deficiencies and hormone imbalances that are linked to lack of tear production. But an additional note, eye doctors should also know more about tear production ... if you can find a good one.

I don't recall saying that Diana had Sjogren's but gave her the information she needed to decide what she should do.  If you don't have dry mouth, then it's highly unlikely that it's Sjogren's.  There is a known reason for the disease.....it's autoimmune and if you go long enough with undiagnosed Celiac, your autoimmune system never calms down and you start to develop other AI problems.  The root of all disease is inflammation and that's how the AI system runs out of control, along with certain genetic factors.

 

I don't know of any imbalances that cause reduced tear production.  Some medications cause dry eye but when you are being assessed for Sjogen's, they do not test for other issues as you mentioned. In all the research I have done for it, I never came across any issues that would cause it, other than autoimmune in nature. Sjogren's dry eye is much more severe than run of the mill dryness. You also will have dry mouth, which is just as severe.  I knew I had it before I was tested.  I just let the doctor do the blood work to humor her.  They like to have it on paper.   ^_^   With Sjogren's, you will also have dental problems...major dental problems.

1desperateladysaved Proficient

I don't recall saying that Diana had Sjogren's but gave her the information she needed to decide what she should do.  If you don't have dry mouth, then it's highly unlikely that it's Sjogren's.  There is a known reason for the disease.....it's autoimmune and if you go long enough with undiagnosed Celiac, your autoimmune system never calms down and you start to develop other AI problems.  The root of all disease is inflammation and that's how the AI system runs out of control, along with certain genetic factors.

 

I don't know of any imbalances that cause reduced tear production.  Some medications cause dry eye but when you are being assessed for Sjogen's, they do not test for other issues as you mentioned. In all the research I have done for it, I never came across any issues that would cause it, other than autoimmune in nature. Sjogren's dry eye is much more severe than run of the mill dryness. You also will have dry mouth, which is just as severe.  I knew I had it before I was tested.  I just let the doctor do the blood work to humor her.  They like to have it on paper.   ^_^   With Sjogren's, you will also have dental problems...major dental problems.

Dental problems, check.

LisaRae28 Newbie

LMFAO I feel like crap dunno if its just terrible allergies or if this is what its like to get gluttened but i had to miss out on fun and because I don't wanna make myself worse *which is so freakin hard when it's so much more fun to play than take care of yourself* and your replies made my day so far! Btw I might be onna those rare women who doesn't wanna be fixed and doesn't think it's sweet when someone tries to... id rather crawl in a corner alone n either die or get better (which just so happens to be what im doing now lol) but a good laugh when I don't expect it is truly priceless...

On topic though, I don't cry like most folk let alone women folk n y'all make me very uncomfortable when ya start doin all that cuz I don't know what to do with you or how to help you and at these times it seems apparent that y'all have no idea either... I cry at movies sometimes, like my eyes get watery and my nose gets stuffy/runny but I've only cried a few good times the past few years and its usually more than a slightly delayed reaction... I think I've gotten so used to dealing with "life" that I know when things are happening and i feel like breaking down that i still need to keep pushing thru it. I can see how I should have cried lotsa times and maybe should even cry recollecting it but it is what it is and I've done what I could do. It's not that I'm numb and don't have emotions n feelings n whatnot all that Im just not a crier unless I'm fighting the reality of something and finally hit a breaking point but I *try*not to fight my feelings... Or reality lol

Btw If I hit myself in the thumb with a hammer i don't end up crying I just end up hurting the rest of my hand hitting something I shouldn't (or whatever the hammer flies into)... Cursing but no crying...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    2. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    3. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    4. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    5. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,238
    • Most Online (within 30 mins)
      7,748

    tcpb
    Newest Member
    tcpb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.