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Unable To Cry


1desperateladysaved

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kareng Grand Master

I am just thinking about my Mom.  I got at least 2 genes from Mom's side.  She is going down hill.  I think she has celiac, and did all I could to get her diagnosed, but It didn't work out.  Dad said they couldn't follow the diet anyway.  Dry eyes could be a similarity to my struggles, but I wouldn't say my eyes are dry yet.  They just don't abound when they should.

 

D

Do your eyes water when you cut an onion? Or when there is smoke from the BBQ or pollen in the air?


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1desperateladysaved Proficient

Do your eyes water when you cut an onion? Or when there is smoke from the BBQ or pollen in the air?

They do a little.  They mostly burn.

1desperateladysaved Proficient

Nobody mentioned severe depression as a possibility.  I recently read if you are severely depressed you are sad, but do not cry.  However, I am functioning fairly normally even though I am passing through some tough times. 

1desperateladysaved Proficient

Oh, that reminds me that Mom was treated for dry eyes for years.

Thanks, I will check it out.

D

Quoted from above link:  "Sjögren’s is a chronic autoimmune disease in which people’s white blood cells attack their moisture-producing glands. Today, as many as four million Americans are living with this disease"

 

Hmm on the one hand I might have some more symptoms.  Yet, my dentist comments on my saliva pools.  It looked like the only treatment is for symptoms.  Mine are not severe.  I will ask for testing if I get curious.  Meanwhile, my vital organs have already been checked.  I am continuing a good recovery.  I am feeling quite energetic.  I am increasing my nutrient levels which has been proved by testing.  I am doing what I need to for now, but I will use some eyebright drops if my eyes get dry.

 

Okay?

Gemini Experienced

Gemini, I was thinking that jumping to a conclusion that sjogren's is a likely problem here may be a little hasty, especially considering that the original poster hasn't mentioned any complaints with dry eyes or dry mouth. By no means am I saying that sjogrens isn't serious or that using drops if you do have it isn't needed, just that there are many causes for not producing tears and doing one's research before going to a doctor can help.

But I still wish that science would get to the root of the problem. Western medicine is way too happy to treat symptoms without finding causes.

And I'd still say to start with the easy stuff that we know are common in those with celiac first like vitamin deficiencies and hormone imbalances that are linked to lack of tear production. But an additional note, eye doctors should also know more about tear production ... if you can find a good one.

I don't recall saying that Diana had Sjogren's but gave her the information she needed to decide what she should do.  If you don't have dry mouth, then it's highly unlikely that it's Sjogren's.  There is a known reason for the disease.....it's autoimmune and if you go long enough with undiagnosed Celiac, your autoimmune system never calms down and you start to develop other AI problems.  The root of all disease is inflammation and that's how the AI system runs out of control, along with certain genetic factors.

 

I don't know of any imbalances that cause reduced tear production.  Some medications cause dry eye but when you are being assessed for Sjogen's, they do not test for other issues as you mentioned. In all the research I have done for it, I never came across any issues that would cause it, other than autoimmune in nature. Sjogren's dry eye is much more severe than run of the mill dryness. You also will have dry mouth, which is just as severe.  I knew I had it before I was tested.  I just let the doctor do the blood work to humor her.  They like to have it on paper.   ^_^   With Sjogren's, you will also have dental problems...major dental problems.

1desperateladysaved Proficient

I don't recall saying that Diana had Sjogren's but gave her the information she needed to decide what she should do.  If you don't have dry mouth, then it's highly unlikely that it's Sjogren's.  There is a known reason for the disease.....it's autoimmune and if you go long enough with undiagnosed Celiac, your autoimmune system never calms down and you start to develop other AI problems.  The root of all disease is inflammation and that's how the AI system runs out of control, along with certain genetic factors.

 

I don't know of any imbalances that cause reduced tear production.  Some medications cause dry eye but when you are being assessed for Sjogen's, they do not test for other issues as you mentioned. In all the research I have done for it, I never came across any issues that would cause it, other than autoimmune in nature. Sjogren's dry eye is much more severe than run of the mill dryness. You also will have dry mouth, which is just as severe.  I knew I had it before I was tested.  I just let the doctor do the blood work to humor her.  They like to have it on paper.   ^_^   With Sjogren's, you will also have dental problems...major dental problems.

Dental problems, check.

LisaRae28 Newbie

LMFAO I feel like crap dunno if its just terrible allergies or if this is what its like to get gluttened but i had to miss out on fun and because I don't wanna make myself worse *which is so freakin hard when it's so much more fun to play than take care of yourself* and your replies made my day so far! Btw I might be onna those rare women who doesn't wanna be fixed and doesn't think it's sweet when someone tries to... id rather crawl in a corner alone n either die or get better (which just so happens to be what im doing now lol) but a good laugh when I don't expect it is truly priceless...

On topic though, I don't cry like most folk let alone women folk n y'all make me very uncomfortable when ya start doin all that cuz I don't know what to do with you or how to help you and at these times it seems apparent that y'all have no idea either... I cry at movies sometimes, like my eyes get watery and my nose gets stuffy/runny but I've only cried a few good times the past few years and its usually more than a slightly delayed reaction... I think I've gotten so used to dealing with "life" that I know when things are happening and i feel like breaking down that i still need to keep pushing thru it. I can see how I should have cried lotsa times and maybe should even cry recollecting it but it is what it is and I've done what I could do. It's not that I'm numb and don't have emotions n feelings n whatnot all that Im just not a crier unless I'm fighting the reality of something and finally hit a breaking point but I *try*not to fight my feelings... Or reality lol

Btw If I hit myself in the thumb with a hammer i don't end up crying I just end up hurting the rest of my hand hitting something I shouldn't (or whatever the hammer flies into)... Cursing but no crying...


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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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