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Apparently You Guys Were Right, It's All In My Head!


Renegade

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CR5442 Contributor

My glutening symptoms show up slowly over two days.  Firstly I feel tired and woozy after about an hour an a half, then insanely hungry for about a day, then very poorly with fever, flu symptoms for about 12 hours, then very poorly tummy and water retention, irritability, tiredness etc for about 3 weeks. Next time it might be different.  This was the first real glutening I've had in two years.  Clean home prepared food is by far the best for me!


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notme Experienced

My glutening symptoms show up slowly over two days.  Firstly I feel tired and woozy after about an hour an a half, then insanely hungry for about a day, then very poorly with fever, flu symptoms for about 12 hours, then very poorly tummy and water retention, irritability, tiredness etc for about 3 weeks. Next time it might be different.  This was the first real glutening I've had in two years.  Clean home prepared food is by far the best for me!

right - *completely* different than any other reaction i/we have to other foods - when you stay/eat clean enough and are well for a good while, a glutening will be very easy to identify, am i right?  not D for a day, say, like when i eat something that irritates my guts or dairy which is gassy and uncomfortable.  it starts with a headache, b%$@#iness, tired tired tired for me and i'm all like o sh!t here it comes.  left side ribcage pain is a dead giveaway for me.  go directly to bed, do not pass the bathroom, do not collect 200 dollars.  see ya in 2 weeks :(  

 

it'll make you smarten up in a hurry - eating out 'just anywhere' and most packaged foods are off limits for me.  mleh - it's cheaper and easier to just make your meals yourself from 'plain foods' anyway.  i am blessed to be home at this time in my life.  i don't know how i worked all those years - i must have been a zombie.  and we won awards in my office!  so, i was good at it!  (haha maybe because i was so cranky all the time and my profession is on the edge of 'cut-throat" hahahaa)  i was always late, though.  one time, for two months my boss had to pick me up and bring me to work because i had vertigo so bad i couldn't drive at all.  felt like i was falling off the road and i had panic attacks.  i'm saying extra prayers right now for y'all who are trying to work a job while dealing with this all.  God bless you!  

answerseeker Enthusiast

right - *completely* different than any other reaction i/we have to other foods - when you stay/eat clean enough and are well for a good while, a glutening will be very easy to identify, am i right?  not D for a day, say, like when i eat something that irritates my guts or dairy which is gassy and uncomfortable.  it starts with a headache, b%$@#iness, tired tired tired for me and i'm all like o sh!t here it comes.  left side ribcage pain is a dead giveaway for me.  go directly to bed, do not pass the bathroom, do not collect 200 dollars.  see ya in 2 weeks :(

 

it'll make you smarten up in a hurry - eating out 'just anywhere' and most packaged foods are off limits for me.  mleh - it's cheaper and easier to just make your meals yourself from 'plain foods' anyway.  i am blessed to be home at this time in my life.  i don't know how i worked all those years - i must have been a zombie.  and we won awards in my office!  so, i was good at it!  (haha maybe because i was so cranky all the time and my profession is on the edge of 'cut-throat" hahahaa)  i was always late, though.  one time, for two months my boss had to pick me up and bring me to work because i had vertigo so bad i couldn't drive at all.  felt like i was falling off the road and i had panic attacks.  i'm saying extra prayers right now for y'all who are trying to work a job while dealing with this all.  God bless you!  

 

 

yes I really feel for the people that have to work. I couldn't even imagine trying to hold down a job feeling the way I have. I do homeschool and last year was bad. I barely made it through the day.

Celiac Mindwarp Community Regular

I just make a few fork holes in a potato and throw it in the microwave for 5 mins at a squeeze. Or pop a few in the oven at a time, then keep them in the fridge to heat up.

I have been at home with the kids a while, but a year gluten-free and I am volunteering 2 to 3 days a week and planning to retrain and work full time. Miracles can happen :)

w8in4dave Community Regular

Yea I cannot imagine working and not knowing you have Celiac!! Unless you have a private bathroom!! Maby bring in your laptop and phone so you can work from the Toidy :) lol 

Seriously tho I feel eating a nice healthy meal is very important if you are Celiac. You are not absorbing your vitamins and minerals!! You really need to eat healthier. Take vitamins and Minerals Eat fresh healthy foods!! It is important!! Your body cannot function properly if it doesn't get what it needs. I am almost 4 months into it!! I feel better for sure!! But I know I am still not up to par!! Makes me wonder how I was dealing with it all be for ... Just eat healthy!! 

  • 3 weeks later...
LisaRae28 Newbie

The lactose intolerance is usually from prolonged periods of time not digesting foods with lactose in it. Your body stops producing the enzyme. The lactose intolerance from celiacs is from the tips of the villi breaking off when the intestine is damaged. So you're both right but it is an indication of celiac if removing lactose doesn't fix the problem. I've read a little on it but I *try* to limit my "crazy time" on google n even sites like these to a reasonable window of time nowadays cuz if I already feel like crap confusing myself with too much information is just gonna make it worse so I may be wrong (or most likely only have part of the picture lol)

1desperateladysaved Proficient

I feel you need to pick at least 1 protein food and preferably more.  If you use meats you have not generally eaten before you shouldn't have built up intolerances to them.  I would add well cooked vegetables.  If you haven't tried Fennel bulb, there is one you don't have antibodies too.  If mango is new it would be a nice addition.  Don't forget some good varieties of fat such as olive oil, coconut oil, and butter if tolerated.  I would encourage you to consider rotational diet rather than limiting your diet so much.  Your body needs more than enough nutrients in order to heal.  Many of them won't be absorbed.  Are you on supplements?  Are you taking Digestive enzymes?

 

I recall some that were on a very limited diet that we haven't heard from in months.  Please try to keep as many foods as possible.

 

D


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    • Scott Adams
      I would pressure the lab to do the IgA control test for free so that you won't write a poor review about their testing services. You could get this done at any time, whether or not you are gluten-free, however, the celiac disease Tissue Transglutaminase tTG-IgA test must be done after you've been eating lots of gluten for around 6 weeks. This way you could salvage the results of your tTG-IgA test, as long as you were eating lots of gluten beforehand.
    • Scott Adams
      Given your strong reactions it would be wise not to eat things offered to you without reading the ingredient labels. It's possible there was indeed gluten or some allergen in the chocolates--barley malt is a common ingredient in some chocolates.
    • trents
      Yes, an IgG panel is the logical next step. However, you would still need to be consuming normal amounts of gluten to ensure valid IgG testing. Since it has only been a week that you have been off gluten, there is still likely time to restore antibodies to detectable levels before the blood draw. IgG antibody tests are not quite as specific for celiac disease as are the IGA tests but they are certainly valuable in the case of IGA deficiency. They also seem to have a little more "staying power" in the sense of detecting celiac disease in the case of those who may have already started a gluten-free diet as long as they haven't been on it for an extended period of time. But don't rely on that. Get back on gluten if you can possibly endure it if you intend to go forward with IgG testing. This might be helpful:   
    • SEQ
      Thanks @trents. I have exchanged some messages with the clinic today, and they are saying that the reason there is no result for the total IgA levels is because I don't have any. Apparently a negative result means that it does not appear as a line on the results at all. I am not sure I buy this, but it is what they are telling me. I am leaning more towards the theory that they didn't test it in the first place. But, working on the basis that the test result was zero, I asked what the next steps would be, given that I apparently have no IgA antibodies. They have asked if I now want to have a tTG-IgG and a DGP-IgG test. Is this really the next step if I have no total IgA?
    • trents
      IGA deficiency is a lot more common than we used to think but I can't give you a number. Doctors used to believe it only happened in children but we know better now. Every doctor should order, at the very minimum, total IGA and tTG-IGA. It may be true that you don't have to worry as much about cross contamination if you have NCGS but that is not a given. By the way, welcome to the forum, @SEQ!
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