Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain

w8in4dave

Recommended Posts

CandyP0268 Newbie
CandyP0268
Posted

Yea it was short lived! It came back. I dicided to stay away from Cheese. I havn't eaten anything eles in the way of cheeses milk dairy stuff. Mostly in my knees and elbows . pffttt! 

does cheese have glutten

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

i am newly diognosed and i have bone and joint pain but like i said i am new and just trying to figure out what has gluten and what does not  maybe you got some cross contamination any tips you could give me does glutten called something else when looking at ingreadience

The word "gluten" will not appear in ingredient lists. The words to look for are "wheat," "rye," "barley," "oats," and "malt." That's the word "malt," not words beginning with the letters m-a-l-t.

 

does cheese have glutten

Cheese is gluten-free. But many people with celiac disease also have issues with dairy products. In particular, if your villi were damaged and have not yet healed, you are likely to be intolerant to lactose (milk sugar).
w8in4dave Community Regular
w8in4dave
Posted
  • Author

The word "gluten" will not appear in ingredient lists. The words to look for are "wheat," "rye," "barley," "oats," and "malt." That's the word "malt," not words beginning with the letters m-a-l-t.

 

Cheese is gluten-free. But many people with celiac disease also have issues with dairy products. In particular, if your villi were damaged and have not yet healed, you are likely to be intolerant to lactose (milk sugar).

I found out the hard way about the cheese thing!! I was told that pre packaged cheese that is already shredded had Gluten in it. I have always been cheap and shred my own cheese. Once in a while I'd get the bagged. But never really found out if that shredded bagged cheese has Gluten or not. 

GF Lover Rising Star
GF Lover
Posted

FYI...

 

Open Original Shared Link

 

Colleen 

w8in4dave Community Regular
w8in4dave
Posted
  • Author

TY gluten-free Lover :) very interesting!! That was a yes and no answer :) Sargento's it is :) If I buy any pre shredded cheese it will be Sargentos :) 

scrcdawn Newbie
scrcdawn
Posted

I had joint pain, dx with fibromyalgia, then went gluten free and poof, all aches,joint  pain, muscle pain disappeared. Now dx gluten intolerant. Came back this weekend, opps seems I cannot eat oats either.  Back to feeling like I did in high school, but better!!!!

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Wonderful for you scrcdawn :) When I was DX'd I was ecstatic  that finally an answer to my problems!! I am sooooo much better than I was before I was in Gluten recovery !! :) I guess it is a learning thing here ...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

If anyone has a confirmed, verifiable case of gluten being in the anti-caking agent of a shredded cheese, please share the evidence here. I have never seen one.

GottaSki Mentor
GottaSki
Posted

If anyone has a confirmed, verifiable case of gluten being in the anti-caking agent of a shredded cheese, please share the evidence here. I have never seen one.

I researched this quite a bit and found that neither anti-caking or mold inhibitors in pre-shredded cheese contain gluten -- as Peter asked if you have found a recent source that any of these products contain gluten...please provide info.

If you are having a reaction to these products you may be sensitive to the additives....but that does not mean they contain gluten.

Try plain block cheese -- if that bothers you, the problem is likely dairy. If just the pre-shredded cheese bothers you -- it is likely the additives. Wait a few months and try cheese again.

w8in4dave Community Regular
w8in4dave
Posted
  • Author

OK so there is not Gluten in any pre shredded cheese :) Thanks everyone :) Gotta love this site! 

eers03 Explorer
eers03
Posted

I had flare-ups of joint pain for a decade or so prior to my diagnosis. It would start with feeling flu-ish and then the joints would get very weak and sore, most likely hurting for a few months but sometimes the pain in a joint would last a few years.  When I went gluten-free, at about the 3 month mark, I had a pretty severe flare-up. My joints would give out on me and little things like using scissors became difficult again. I was pretty convinced that it was caused by lupus, but I understood that I might just be one of the unlucky few who take months to years to heal... I just didn't accept it.

 

After three more months the pain went away and I eventually saw a rheumy about RA and lupus. The doctor agreed with some of our more senior board members that it probably was lingering celiac problems. I haven't had any more major joint problems in the last 8 month so I am cautiously optimistic that they are right.

 

Anyway, the point of my rambling was to say that in my experience, new joint pains can crop up in the recovering months after going gluten-free, and it can be many months afterwards too. By all means get it checked out (just in case) but keep celiac disease in consideration and maintain your patience.

 

I hope the pain goes sooner rather than later.   :)

I was having an ache in what I thought was my thigh, deep.  While sitting in my car I realized that its actually in my hip joint and is most likely referring into my thigh. Two nights ago I had pain in my left big toe--like a pin prick in the end of it.  On the same drive yesterday, while clutching with my left foot for a long drive home I realized the pain is in the joint of my toe and must have been referring.

 

I had some gluten-free beer on Tuesday and have been eating plenty of nightshades and some red meat.  Wondering about Uric acid?  If I drink plenty of water and maybe go for a bicycle ride with some inclines (to sweat out some toxins) do you all think this will help some?  I go back and forth with a.) being active and making it worse or, b.) adopting the theory of "that which is in motion stays in motion."

 

Thoughts?

GottaSki Mentor
GottaSki
Posted

I was having an ache in what I thought was my thigh, deep. While sitting in my car I realized that its actually in my hip joint and is most likely referring into my thigh. Two nights ago I had pain in my left big toe--like a pin prick in the end of it. On the same drive yesterday, while clutching with my left foot for a long drive home I realized the pain is in the joint of my toe and must have been referring.

I had some gluten-free beer on Tuesday and have been eating plenty of nightshades and some red meat. Wondering about Uric acid? If I drink plenty of water and maybe go for a bicycle ride with some inclines (to sweat out some toxins) do you all think this will help some? I go back and forth with a.) being active and making it worse or, b.) adopting the theory of "that which is in motion stays in motion."

Thoughts?

Motion is always good...but when in pain I wouldn't push the sweat factor. Consistent moderate exercise until you are feeling stronger with less pain.

w8in4dave Community Regular
w8in4dave
Posted
  • Author

If anyone has a confirmed, verifiable case of gluten being in the anti-caking agent of a shredded cheese, please share the evidence here. I have never seen one.

I have never had a problem with Pre shredded cheese, I was just told by someone eles it had Gluten in it.That was before I was Gluten free. I shred my own. I have always shredded my own for the most part. Once in a great while I buy pre shredded. But not very often. I am too cheap to buy pre shredded!! I have never had a problem with Pre shredded cheese :) 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    2. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    3. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    4. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
    5. Kirita
      - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748
    Dorfor
    Newest Member
    Dorfor
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
    • Kirita
      Recovery from gluten challenge

      By Kirita · Posted

      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.