Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain

w8in4dave

Recommended Posts

CandyP0268 Newbie
CandyP0268
Posted

Yea it was short lived! It came back. I dicided to stay away from Cheese. I havn't eaten anything eles in the way of cheeses milk dairy stuff. Mostly in my knees and elbows . pffttt! 

does cheese have glutten

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

i am newly diognosed and i have bone and joint pain but like i said i am new and just trying to figure out what has gluten and what does not  maybe you got some cross contamination any tips you could give me does glutten called something else when looking at ingreadience

The word "gluten" will not appear in ingredient lists. The words to look for are "wheat," "rye," "barley," "oats," and "malt." That's the word "malt," not words beginning with the letters m-a-l-t.

 

does cheese have glutten

Cheese is gluten-free. But many people with celiac disease also have issues with dairy products. In particular, if your villi were damaged and have not yet healed, you are likely to be intolerant to lactose (milk sugar).
w8in4dave Community Regular
w8in4dave
Posted
  • Author

The word "gluten" will not appear in ingredient lists. The words to look for are "wheat," "rye," "barley," "oats," and "malt." That's the word "malt," not words beginning with the letters m-a-l-t.

 

Cheese is gluten-free. But many people with celiac disease also have issues with dairy products. In particular, if your villi were damaged and have not yet healed, you are likely to be intolerant to lactose (milk sugar).

I found out the hard way about the cheese thing!! I was told that pre packaged cheese that is already shredded had Gluten in it. I have always been cheap and shred my own cheese. Once in a while I'd get the bagged. But never really found out if that shredded bagged cheese has Gluten or not. 

GF Lover Rising Star
GF Lover
Posted

FYI...

 

Open Original Shared Link

 

Colleen 

w8in4dave Community Regular
w8in4dave
Posted
  • Author

TY gluten-free Lover :) very interesting!! That was a yes and no answer :) Sargento's it is :) If I buy any pre shredded cheese it will be Sargentos :) 

scrcdawn Newbie
scrcdawn
Posted

I had joint pain, dx with fibromyalgia, then went gluten free and poof, all aches,joint  pain, muscle pain disappeared. Now dx gluten intolerant. Came back this weekend, opps seems I cannot eat oats either.  Back to feeling like I did in high school, but better!!!!

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Wonderful for you scrcdawn :) When I was DX'd I was ecstatic  that finally an answer to my problems!! I am sooooo much better than I was before I was in Gluten recovery !! :) I guess it is a learning thing here ...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

If anyone has a confirmed, verifiable case of gluten being in the anti-caking agent of a shredded cheese, please share the evidence here. I have never seen one.

GottaSki Mentor
GottaSki
Posted

If anyone has a confirmed, verifiable case of gluten being in the anti-caking agent of a shredded cheese, please share the evidence here. I have never seen one.

I researched this quite a bit and found that neither anti-caking or mold inhibitors in pre-shredded cheese contain gluten -- as Peter asked if you have found a recent source that any of these products contain gluten...please provide info.

If you are having a reaction to these products you may be sensitive to the additives....but that does not mean they contain gluten.

Try plain block cheese -- if that bothers you, the problem is likely dairy. If just the pre-shredded cheese bothers you -- it is likely the additives. Wait a few months and try cheese again.

w8in4dave Community Regular
w8in4dave
Posted
  • Author

OK so there is not Gluten in any pre shredded cheese :) Thanks everyone :) Gotta love this site! 

eers03 Explorer
eers03
Posted

I had flare-ups of joint pain for a decade or so prior to my diagnosis. It would start with feeling flu-ish and then the joints would get very weak and sore, most likely hurting for a few months but sometimes the pain in a joint would last a few years.  When I went gluten-free, at about the 3 month mark, I had a pretty severe flare-up. My joints would give out on me and little things like using scissors became difficult again. I was pretty convinced that it was caused by lupus, but I understood that I might just be one of the unlucky few who take months to years to heal... I just didn't accept it.

 

After three more months the pain went away and I eventually saw a rheumy about RA and lupus. The doctor agreed with some of our more senior board members that it probably was lingering celiac problems. I haven't had any more major joint problems in the last 8 month so I am cautiously optimistic that they are right.

 

Anyway, the point of my rambling was to say that in my experience, new joint pains can crop up in the recovering months after going gluten-free, and it can be many months afterwards too. By all means get it checked out (just in case) but keep celiac disease in consideration and maintain your patience.

 

I hope the pain goes sooner rather than later.   :)

I was having an ache in what I thought was my thigh, deep.  While sitting in my car I realized that its actually in my hip joint and is most likely referring into my thigh. Two nights ago I had pain in my left big toe--like a pin prick in the end of it.  On the same drive yesterday, while clutching with my left foot for a long drive home I realized the pain is in the joint of my toe and must have been referring.

 

I had some gluten-free beer on Tuesday and have been eating plenty of nightshades and some red meat.  Wondering about Uric acid?  If I drink plenty of water and maybe go for a bicycle ride with some inclines (to sweat out some toxins) do you all think this will help some?  I go back and forth with a.) being active and making it worse or, b.) adopting the theory of "that which is in motion stays in motion."

 

Thoughts?

GottaSki Mentor
GottaSki
Posted

I was having an ache in what I thought was my thigh, deep. While sitting in my car I realized that its actually in my hip joint and is most likely referring into my thigh. Two nights ago I had pain in my left big toe--like a pin prick in the end of it. On the same drive yesterday, while clutching with my left foot for a long drive home I realized the pain is in the joint of my toe and must have been referring.

I had some gluten-free beer on Tuesday and have been eating plenty of nightshades and some red meat. Wondering about Uric acid? If I drink plenty of water and maybe go for a bicycle ride with some inclines (to sweat out some toxins) do you all think this will help some? I go back and forth with a.) being active and making it worse or, b.) adopting the theory of "that which is in motion stays in motion."

Thoughts?

Motion is always good...but when in pain I wouldn't push the sweat factor. Consistent moderate exercise until you are feeling stronger with less pain.

w8in4dave Community Regular
w8in4dave
Posted
  • Author

If anyone has a confirmed, verifiable case of gluten being in the anti-caking agent of a shredded cheese, please share the evidence here. I have never seen one.

I have never had a problem with Pre shredded cheese, I was just told by someone eles it had Gluten in it.That was before I was Gluten free. I shred my own. I have always shredded my own for the most part. Once in a great while I buy pre shredded. But not very often. I am too cheap to buy pre shredded!! I have never had a problem with Pre shredded cheese :) 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Disease Beyond the Western World: Hidden Populations, Changing Diets, and Growing Awareness

    2. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    3. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    4. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    5. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748
    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.