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Joint Pain

w8in4dave

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CandyP0268 Newbie
CandyP0268
Posted

Yea it was short lived! It came back. I dicided to stay away from Cheese. I havn't eaten anything eles in the way of cheeses milk dairy stuff. Mostly in my knees and elbows . pffttt! 

does cheese have glutten

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psawyer Proficient
psawyer
Posted

i am newly diognosed and i have bone and joint pain but like i said i am new and just trying to figure out what has gluten and what does not  maybe you got some cross contamination any tips you could give me does glutten called something else when looking at ingreadience

The word "gluten" will not appear in ingredient lists. The words to look for are "wheat," "rye," "barley," "oats," and "malt." That's the word "malt," not words beginning with the letters m-a-l-t.

 

does cheese have glutten

Cheese is gluten-free. But many people with celiac disease also have issues with dairy products. In particular, if your villi were damaged and have not yet healed, you are likely to be intolerant to lactose (milk sugar).
w8in4dave Community Regular
w8in4dave
Posted
  • Author

The word "gluten" will not appear in ingredient lists. The words to look for are "wheat," "rye," "barley," "oats," and "malt." That's the word "malt," not words beginning with the letters m-a-l-t.

 

Cheese is gluten-free. But many people with celiac disease also have issues with dairy products. In particular, if your villi were damaged and have not yet healed, you are likely to be intolerant to lactose (milk sugar).

I found out the hard way about the cheese thing!! I was told that pre packaged cheese that is already shredded had Gluten in it. I have always been cheap and shred my own cheese. Once in a while I'd get the bagged. But never really found out if that shredded bagged cheese has Gluten or not. 

GF Lover Rising Star
GF Lover
Posted

FYI...

 

Open Original Shared Link

 

Colleen 

w8in4dave Community Regular
w8in4dave
Posted
  • Author

TY gluten-free Lover :) very interesting!! That was a yes and no answer :) Sargento's it is :) If I buy any pre shredded cheese it will be Sargentos :) 

scrcdawn Newbie
scrcdawn
Posted

I had joint pain, dx with fibromyalgia, then went gluten free and poof, all aches,joint  pain, muscle pain disappeared. Now dx gluten intolerant. Came back this weekend, opps seems I cannot eat oats either.  Back to feeling like I did in high school, but better!!!!

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Wonderful for you scrcdawn :) When I was DX'd I was ecstatic  that finally an answer to my problems!! I am sooooo much better than I was before I was in Gluten recovery !! :) I guess it is a learning thing here ...

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psawyer Proficient
psawyer
Posted

If anyone has a confirmed, verifiable case of gluten being in the anti-caking agent of a shredded cheese, please share the evidence here. I have never seen one.

GottaSki Mentor
GottaSki
Posted

If anyone has a confirmed, verifiable case of gluten being in the anti-caking agent of a shredded cheese, please share the evidence here. I have never seen one.

I researched this quite a bit and found that neither anti-caking or mold inhibitors in pre-shredded cheese contain gluten -- as Peter asked if you have found a recent source that any of these products contain gluten...please provide info.

If you are having a reaction to these products you may be sensitive to the additives....but that does not mean they contain gluten.

Try plain block cheese -- if that bothers you, the problem is likely dairy. If just the pre-shredded cheese bothers you -- it is likely the additives. Wait a few months and try cheese again.

w8in4dave Community Regular
w8in4dave
Posted
  • Author

OK so there is not Gluten in any pre shredded cheese :) Thanks everyone :) Gotta love this site! 

eers03 Explorer
eers03
Posted

I had flare-ups of joint pain for a decade or so prior to my diagnosis. It would start with feeling flu-ish and then the joints would get very weak and sore, most likely hurting for a few months but sometimes the pain in a joint would last a few years.  When I went gluten-free, at about the 3 month mark, I had a pretty severe flare-up. My joints would give out on me and little things like using scissors became difficult again. I was pretty convinced that it was caused by lupus, but I understood that I might just be one of the unlucky few who take months to years to heal... I just didn't accept it.

 

After three more months the pain went away and I eventually saw a rheumy about RA and lupus. The doctor agreed with some of our more senior board members that it probably was lingering celiac problems. I haven't had any more major joint problems in the last 8 month so I am cautiously optimistic that they are right.

 

Anyway, the point of my rambling was to say that in my experience, new joint pains can crop up in the recovering months after going gluten-free, and it can be many months afterwards too. By all means get it checked out (just in case) but keep celiac disease in consideration and maintain your patience.

 

I hope the pain goes sooner rather than later.   :)

I was having an ache in what I thought was my thigh, deep.  While sitting in my car I realized that its actually in my hip joint and is most likely referring into my thigh. Two nights ago I had pain in my left big toe--like a pin prick in the end of it.  On the same drive yesterday, while clutching with my left foot for a long drive home I realized the pain is in the joint of my toe and must have been referring.

 

I had some gluten-free beer on Tuesday and have been eating plenty of nightshades and some red meat.  Wondering about Uric acid?  If I drink plenty of water and maybe go for a bicycle ride with some inclines (to sweat out some toxins) do you all think this will help some?  I go back and forth with a.) being active and making it worse or, b.) adopting the theory of "that which is in motion stays in motion."

 

Thoughts?

GottaSki Mentor
GottaSki
Posted

I was having an ache in what I thought was my thigh, deep. While sitting in my car I realized that its actually in my hip joint and is most likely referring into my thigh. Two nights ago I had pain in my left big toe--like a pin prick in the end of it. On the same drive yesterday, while clutching with my left foot for a long drive home I realized the pain is in the joint of my toe and must have been referring.

I had some gluten-free beer on Tuesday and have been eating plenty of nightshades and some red meat. Wondering about Uric acid? If I drink plenty of water and maybe go for a bicycle ride with some inclines (to sweat out some toxins) do you all think this will help some? I go back and forth with a.) being active and making it worse or, b.) adopting the theory of "that which is in motion stays in motion."

Thoughts?

Motion is always good...but when in pain I wouldn't push the sweat factor. Consistent moderate exercise until you are feeling stronger with less pain.

w8in4dave Community Regular
w8in4dave
Posted
  • Author

If anyone has a confirmed, verifiable case of gluten being in the anti-caking agent of a shredded cheese, please share the evidence here. I have never seen one.

I have never had a problem with Pre shredded cheese, I was just told by someone eles it had Gluten in it.That was before I was Gluten free. I shred my own. I have always shredded my own for the most part. Once in a great while I buy pre shredded. But not very often. I am too cheap to buy pre shredded!! I have never had a problem with Pre shredded cheese :) 

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    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
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      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
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