Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medical History Family Tree


cyclinglady

Recommended Posts

cyclinglady Grand Master

I just received a nice complement from my sister-in-law today!

 

My niece has been having tummy issues that echo my old gallbladder symptoms.  I typed up a family history medical tree and sent it off to her mom.  My niece's new gastro was amazed that a patient came in with a complete medical history.  Within seconds, he was willing to order a celiac panel and HIDA scan based on my diagnosis of celiac disease and our horrible family history of non-functioning gallbladders.  

 

When the doctor asked if they knew anything about gluten, my little niece pipped up saying, "My aunt and uncle are gluten free and they can't eat wheat!"

 

My sister-in-law was so happy that for the first time a doctor really listened to them and my niece was thrilled that maybe this doctor can help her!  

 

My suggestion is to take the time to create a medical history family chart and share it with your family.  Just use first names to protect privacy or just a title "Maternal Grandmother", etc.    It might just save a loved one from going through the same diagnostic hell most of us have been through!  No more, "Aunt Edna died of a wasting disease....not sure exactly what she had."

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SkyBlue4 Apprentice

I just received a nice complement from my sister-in-law today!

 

My niece has been having tummy issues that echo my old gallbladder symptoms.  I typed up a family history medical tree and sent it off to her mom.  My niece's new gastro was amazed that a patient came in with a complete medical history.  Within seconds, he was willing to order a celiac panel and HIDA scan based on my diagnosis of celiac disease and our horrible family history of non-functioning gallbladders.  

 

When the doctor asked if they knew anything about gluten, my little niece pipped up saying, "My aunt and uncle are gluten free and they can't eat wheat!"

 

My sister-in-law was so happy that for the first time a doctor really listened to them and my niece was thrilled that maybe this doctor can help her!  

 

My suggestion is to take the time to create a medical history family chart and share it with your family.  Just use first names to protect privacy or just a title "Maternal Grandmother", etc.    It might just save a loved one from going through the same diagnostic hell most of us have been through!  No more, "Aunt Edna died of a wasting disease....not sure exactly what she had."

 

I've done this. We have too many autoimmune issues in our family for me to remember them all when I see a new doctor. Besides, It's more efficient to bring my own printed history along than to take the time to try to squeeze the writing it into their tiny little family history box while I'm sitting in the waiting room.  :huh:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,438
    • Most Online (within 30 mins)
      7,748

    rednecksurfer
    Newest Member
    rednecksurfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.