Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Started With Stomach Spasms & Internal 'throbbing' Again!

flowerqueen

By flowerqueen
in Coping with Celiac Disease

Recommended Posts

flowerqueen Community Regular
flowerqueen
Posted

I was diagnosed almost 2 years ago, after being ill for some time and recently received a report saying my gut is healing well after further biopsies.

 

However, recently I have started with stomach cramps again, and 'throbbing' in stomach & lower down - the 'usual' trips to the bathroom etc.   I have started keeping a food journal again, but I'm mystified.  I have IBS as well, and can't tolerate dairy, I also have diabetes.  So I am going between blaming gluten, accidental dairy, not enough fibre and intolerance to sugar.  I have had problems with Metformin and have reduced it down to one a day, but my doctor will blow a gasket if she finds I've stopped taking it altogether plus my glucose will go through the roof.

 

Has anyone else had a similar problem, and has it sorted itself out?  I remember before I was diagnosed with Coeliac disease having a problem with something contaminated with milk, but didn't realise what it was that was making me ill until a supermarket store wrote to us to inform us of some accidental contamination they had found with dairy.  Fortunately for me at the time, I had a store loyalty card and that is how they knew we had purchased the product.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


surviormom Rookie
surviormom
Posted

Spasms, throbbing, and gurgling are common these days with me, I bloated up over something.  My guess in this instance is too much sugar and an over run of bacteria, but I take my probiotics every day, so I am not sure.  I could have had an accidental CC.  As I type this my intestines are talking, so yeah, it happens.  

flowerqueen Community Regular
flowerqueen
Posted
  • Author

Spasms, throbbing, and gurgling are common these days with me, I bloated up over something. My guess in this instance is too much sugar and an over run of bacteria, but I take my probiotics every day, so I am not sure. I could have had an accidental CC. As I type this my intestines are talking, so yeah, it happens.

Thank you, you have just reminded me that I used to take probiotics, but in recent months have stopped. For some reason, it hadn't occurred to me - this can happen when you have lots of health issues. I shall recommence to see what happens.
answerseeker Enthusiast
answerseeker
Posted

Your certain your not getting cc'd? My gurgling has completely stopped as well as the spasms since going gluten free but if I get cc'd or have dairy it comes right back!

flowerqueen Community Regular
flowerqueen
Posted
  • Author

Your certain your not getting cc'd? My gurgling has completely stopped as well as the spasms since going gluten free but if I get cc'd or have dairy it comes right back!

I'm being open minded about everything at the moment. I am keeping a food journal to see if anything shows up on that.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748
    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.