Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Boy Scouts / Girl Scouts Camping


Rosiesallergies

Recommended Posts

Rosiesallergies Rookie

Does anyone have Celiac kids in Boy Scouts or Girl Scouts? How do you handle camping and big events? What do you bring with you to make food prep easier and safe? Do you try to have the whole troop have safe gluten-free food? How much detail do you give when you explain you child's food issues with the kids and parents?

My child is a Celiac and is careful about being gluten-free. However, she doesn't want to explain the details of Celiac disease with everyone especially kids/parents who will just be rude or insensitive.

Thanks for your help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Christine0125 Contributor

My daughter is a girl scout.  For S'mores, I send her own graham crackers.  For burgers & dogs, I send a bun and usually there are chips/fruits/veggies she can eat but I usually have an extra stash just in case.  We had a planned overnight this past summer at her summer day camp and although it got cancelled due to a widespread stomach virus, I contacted the staff ahead of time to find out what was on the dinner menu.  I had planned to send her with a similar meal.  We were lucky that this camp had a kitchen in the main shelter so it could be refrigerated and microwaved.  I so want her to do a full week sleep-away camp one of these years because I have such fond memories of it as a kid but that SCARES me food wise. 

 

BTW... our troop doesn't sell cookies until the winter but my friend's daughter is selling now and they have a gluten-free chocolate chip cookie as a pilot program.  YAY!  I'm hoping we have the same. 

Mizzo Enthusiast

Ahhh Girl scouts :  the parent volunteer run program 

 

I have had mixed responses with this. Our passed troop leader did little to nothing to accommodate a  gluten-free or mostly gluten-free environment for the troop mtgs or day events. New leaders this year so we will see.

 

On the camping events and overnighters we have had really exceptional  help in insuring a safe food environment. We got lucky the day camp had a nurse with a Ceiiac child  and the overnighter food events was run by a woman with gluten intolerance who actually brought her own pots pans etc.. in for herself and the kids.

 

It really is how the leaders receive and react. You have no control over it. On one daycamp BBQ event  I sent  everything except drink and bagged chips. It included Hot dogs wrapped in foil , bun ,sides , a smores baggie with her own toasting stick  etc...      on another overnighter event i sent a smore's pack and a backup snack bag.       Situation's vary depending on the volunteers.

 

Call and speak to whoever is in charge in advance.

cyclinglady Grand Master

Great suggestions.  I agree, it's all about the volunteers.  We have a scout who is allergic to peanuts/nuts/milk and some vegetarians.  We have accommodated them all since they were Brownies (Cadettes now).  My daughter does not have celiac disease but  I do.  I attended campouts/jamborees and I would worry about the dish cleaning procedure too.  Your daughter should always be first in line to use the dunk bag system.  She should always be served first if she is sharing any safe food and you should go over food prep procedures with your leader.  

 

If I were you, I'd attend the camping trips for a while.  Talk to your leader about taking a Volunteer Essentials class and become a scout.  You may or may not need to take a camping class (at least one of the adults in the class should take this).  

 

It's fun and our troop loves to camp.  I used to go all the time, but have backed away (the girls can do so much more at the Cadette level).  I have not camped with the troop since my dx, but prior to that I had to bring my own food due to my food allergies.   We do bring snacks to meetings always it's peanut/nut/meat and dairy free.  And when it's our turn, we make it gluten-free too!   

 

Like the others have said, it's up to the volunteers.  Hopefully, they really believe in the Girl Scout Promise and Law!  If push comes to shove, start your own troop or find another.  It's a great way to meet different girls from different schools.  

  • 2 weeks later...
Fourmonkeysjumping Rookie

We have a fantastic leader who does everything she can to make things safe. It helped so much when another boy in our scout den was diagnosed. They have each other and just knowing another kid who has it is so great for both of them. His mother and I make gluten-free snacks and work to keep them safe. We have a sleepover at a museum next month and I just called and talked to them and they are allowing us to bring our own dinner and giving us access to their kitchen to put it in the fridge and heat it in the microwave. My son went to scout can't (day camp) this summer and whenever they had food relatd things, they called me and we came up with substitutes. They also bought gluten-free snacks for him if they bought snacks for the campers.

In all honesty, we have been so so so lucky in our lives with the people we have come into contact with.

:)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.