Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soooo, I Don't Have Eosinophilic Esophagitis But......


MoMof2Boyz

Recommended Posts

MoMof2Boyz Enthusiast

I had an endoscopy and had a biopsy for eosinophilic esophagitis because I've had so much trouble swallowing food/pills and my GI doc said my esophagus wasn't very strictured.

 

I got a call from the nurse saying I didn't have EoE but it looks like I have a food allergy? So how can they tell?? Does anyone know??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

I had an endoscopy and had a biopsy for eosinophilic esophagitis because I've had so much trouble swallowing food/pills and my GI doc said my esophagus wasn't very strictured.

 

I got a call from the nurse saying I didn't have EoE but it looks like I have a food allergy? So how can they tell?? Does anyone know??

Thats a new one. A food allergy can cause your throat to swell, thus making that difficulty.

MoMof2Boyz Enthusiast

I understand that. :)  but wouldn't you think my GI doc would have been able to tell during the endoscopy  if my esophagus was swollen?..and nothing was said about that.

GottaSki Mentor

I'd do two things:

 

1) Request a written copy of both procedural and pathology reports from the endoscopy.

 

2) Request a call from the doctor or an appt to speak to the doctor to explain the information without the nurse as a go-between.

MoMof2Boyz Enthusiast

I"ll be getting a copy of the biopsy next week, so I will call when I get it. I"m just confused how they can say it's a food allergy

MoMof2Boyz Enthusiast

Well I got the biopsy back late today so I will call tomorrow and ask for it to be explained more. So anyway, this is what it says on the biopsy report:

 

Esophagus, Middle, biopsy

Reactive squamous mucosa with rare intraepithelial eosinophil(focally, one eosinophil per high powerfield)

 

The degree of eosinophilia does not favor eosinophilic esophagitis/allergic esophagitis. Howerve, EE may be patchy in nature. Correlation with clinical and endoscopic findings is recommended.

foam Apprentice

How high are the eosinophil levels in your blood?. You always need to add the biopsy together with other tests to get a diagnosis and even when you have a name, every case is different and every case will require different treatment


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MoMof2Boyz Enthusiast

Last blood test was done in Sept.(I am due for another one in Dec.) anyway, eosinophils weren't high but here's the results

 

4% (4-14%)

 

eosinophil count

0.1 ( 0.0-0.6)

 

I did have a biopsy in March to rule out EoE and the report only said squamous mucosa with features of gastroesophageal reflux and my GI doc told me I didn't have it.  So it look like I didn't have any eosinophils then, but now a few are showing up but not enough to meet the guidlines.hm. I wonder if there will be more the next time I have another endoscopy.

foam Apprentice

You see normally you would have a much higher blood count than that if you had an Eosinophilic condition. Where you have .1 in the .0 to .6 normal range. Mine is 2.3 or even 2.4 (For times over the reference limit) without any drugs. Like you say it could be cyclic so it's worth having the simple White Blood Cell count done a couple more times. Even mine has dropped down to 1.0 once a year or so(only double the reference :S), sometimes you just need to catch it at the right time. Better if you don't find them though because those suckers will burn holes anywhere they land. Mine seem to be for the most part absorbed by my excellent giant lymph node :0 which is good, saves the rest of me from taking the heat.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Francis M's topic in Gluten-Free Restaurants
      1

      The Happy Tart review

    2. - Francis M posted a topic in Gluten-Free Restaurants
      1

      The Happy Tart review

    3. - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

    4. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,848
    • Most Online (within 30 mins)
      7,748

    Francis M
    Newest Member
    Francis M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Was the card itself lost or just the record or both?
    • Francis M
      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
    • Colleen H
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.