Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Long Island Medium Episode Tonight: She And Her Daughter's Pediatrician Are Ignorant!

Kimbalou

By Kimbalou
in Coping with Celiac Disease

Recommended Posts

Kimbalou Enthusiast
Kimbalou
Posted

Tonight Theresa Capudo (Long Island Medium) was taking her daughter to the pediatrician because, in her words, "She has this crazy idea that she's allergic to gluten!" The Dr  asked her daughter about her poop, and she said she only went once a day and it was normal. So, from her description of her poop and her other issues, it didn't sound like she had a gluten problem. BUT THEN after telling her she probably doesn't have gluten issues or Celiac disease, he tells her "Celiac disease is a fad these days...and everyone is going gluten free even if they don't have to." I am fuming now. His words kind of ran together quickly, but I know he said Celiac disease AND being gluten free is a fad these days.

I want to write to that woman and tell her she has a rude and ignorant doctor. But what good will it do?? WHY do people not think a disease related to food is REAL?? WHY??

 

Also, there's a teacher at my daughter's school who has Celiac. We've talked about it. I watched her eat pieces of a muffin yesterday and asked her about it. She told me she doesn't have it severely...ie: doesn't get a severe reaction to it, so she eats it in moderation. She has a sister who gets violently ill from gluten and she also has Celiac...so I guess she thinks since she doesn't react right away, it's ok to eat it! I do not understand people. I guess she doesn't care that gluten will ruin her body even if she doesn't "feel" anything. We were at an amusement park when she said this, and I was so happy to find gluten free ice cream cones at an ice cream place. And, I will add that the teacher did have gluten-free bars in her purse, but she said since we were at this park, she was going to eat whatever she wanted. Ugh. I managed to find chicken tacos, popcorn and ice cream...all gluten free. Just had to vent. I want to scream to the world: "Celiac is REAL and I am feeling so much better NOT EATING GLUTEN!!"

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Maybe he meant that people thinking they have celiac is a fad. especially as the kid didn't even have any symptoms but thought she had Celiac?

shadowicewolf Proficient
shadowicewolf
Posted

:blink:

 

I don't know what to say to that.

Kimbalou Enthusiast
Kimbalou
Posted
  • Author

Maybe he meant that people thinking they have celiac is a fad. especially as the kid didn't even have any symptoms but thought she had Celiac?

I don't know for sure, but it didn't sound right. The Dr and her mother both thought the whole idea was silly. The daughter said she had stomach pain sometimes. Celiac is so difficult to diagnose. What about people who don't have many symptoms at all but have Celiac? I am just repeating what he said. Who knows what he was thinking? I don't like it when people think this disease is a joke. 

thleensd Enthusiast
thleensd
Posted

This made me SO irritated!! The doctor asked her how often she poops (1/day), how much it hurts (3/10) and palated her belly. Then he said celiac disease is currently a fad and told her she was fine.

Seriously?!?! Wtf?! No blood test, no referral... Not even "try it and see..."

I hope they get flooded with complaints.

Kimbalou Enthusiast
Kimbalou
Posted
  • Author

This made me SO irritated!! The doctor asked her how often she poops (1/day), how much it hurts (3/10) and palated her belly. Then he said celiac disease is currently a fad and told her she was fine.

Seriously?!?! Wtf?! No blood test, no referral... Not even "try it and see..."

I hope they get flooded with complaints.

I am so glad you saw it too!!! I agree. They thought it was FUNNY!! What if she did have it? You never know. Maybe her mom has it because she talks to 'spirit". Maybe the spirit is  gluten fogging her big-haired head!!!

Kimbalou Enthusiast
Kimbalou
Posted
  • Author

I just posted a complaint to her facebook page. I hope others will do the same. A few have already. 

Look up Theresa Caputo.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


surviormom Rookie
surviormom
Posted

I had heard of her, never watched it, but it makes me angry. 

Pegleg84 Collaborator
Pegleg84
Posted

*face plant*

If someone thinks they might have an issue with gluten, the right thing to do first is to ask your doctor about it and get tested. !!!! Oh man...

 

As a TV related side note, this reminds me of a episode of House where one of the patients ended up having Celiac. I think I guessed it from the symptoms 10 minutes in. And they took it seriously. (I miss that show so much)

 

I wonder how many comments this woman/show will get about it? For all they know, her daughter (don't know how old she is) could be in the early stages of developing it. In any case, very irresponsible/ignorant of the doctor.

HappyHippy Newbie
HappyHippy
Posted

Seriously, how did that doctor get his medical license?  Celiac Disease does NOT always have "poop problems" as a symptom.  I have Celiac Disease and never had a bathroom issue before diagnosis.  I had horrible stomach pains when I ate and severe malnutrition.  I was 30 pounds under the healthy weight range for my height.  

 

It's a shame that TLC (the learning channel) would not learn anything about the topic of their episode.  Poor girl probably DOES have celiac disease.  She's gaining weight rapidly and has pains when she eats wheat. It's not a "fad" but more people are being diagnosed now that wheat is modified to have such high gluten content.  We have modified our food so much that people are getting sick from it.  And I am so over hearing people doubt my gluten intolerance.  People don't do the same for peanut allergy or lactose intolerance.  Why is gluten the target?? Because the public is uneducated - get your act together TLC!!!

 

 

mommy2krj Explorer
mommy2krj
Posted

*face plant*

If someone thinks they might have an issue with gluten, the right thing to do first is to ask your doctor about it and get tested. !!!! Oh man...

 

As a TV related side note, this reminds me of a episode of House where one of the patients ended up having Celiac. I think I guessed it from the symptoms 10 minutes in. And they took it seriously. (I miss that show so much)

 

I wonder how many comments this woman/show will get about it? For all they know, her daughter (don't know how old she is) could be in the early stages of developing it. In any case, very irresponsible/ignorant of the doctor.

 

I miss House too!

I don't know if it's the same episode but I've seen it twice...once long before our diagnosis and then once right after our diagnosis. Pretty sure the second time I saw it, I cried. :( The person on that episode was so sick. It scared me and made me happy that they were showing just how severe it can get (my little guy has never been as sick as some of the people here post about and reading and seeing how sick one can get terrifies me to no end!) and getting it out in the public eye a little more definitely helps.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    3. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    4. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
    5. Scott Adams
      0

      Häagen-Dazs Chocolate Dark Chocolate Mini Bars Recall Due to Undeclared Wheat and Gluten

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,077
    • Most Online (within 30 mins)
      7,748
    Deb baker
    Newest Member
    Deb baker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.