Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Tomorrow... How Long For Results?


appletree729

Recommended Posts

appletree729 Apprentice

I'm so happy to report that I'm finally getting my endoscopy done tomorrow!  I don't know what it will show - if I'm true celiac or not - but I'm giving up gluten regardless.  I've had a nice several weeks of chowing on all the best gluten-laden foods I could find and now I'm ready ;)

 

Anyway - how long until you get the biopsy results?  Is it just a few days to a week, or is it longer?  Will the doctor be able to tell me anything immediately after the procedure about how things looked?  Like are there any clues that are visible with the scope or is it all from the lab afterwards?

 

I'm actually having a colonoscopy done at the same time and am quite nervous :P  I'm nervous because of the logistics with taking care of my 4 kids and making sure everybody is where they need to be tomorrow and safe while I'm not available, how my milk supply will handle the 24+ hours without food (I'm nursing a baby), and nervous about how I'm actually going to handle going that long without food without fainting :P  I've got plenty of juices and things that I'm allowed to have though, at least until tomorrow morning.

 

anyway - I'm doing this mostly for my kids anyway - we have so many weird GI issues going on with them, we have the double DQ2 genes and low IgA in the kids.  I figured that it might help explain some things if I do end up having celiac - there might not be so much mystery behind their conditions...

 

I'm a rambling worry-wart right now!  Sorry!  am anxious to get this done and get the test results!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

It depends on the doctor.

 

Most damage is microscopic. So unless the damage is really bad, visible damage probably won't be seen.

GF Lover Rising Star

I'm so happy to report that I'm finally getting my endoscopy done tomorrow!  I don't know what it will show - if I'm true celiac or not - but I'm giving up gluten regardless.  I've had a nice several weeks of chowing on all the best gluten-laden foods I could find and now I'm ready ;)

 

Anyway - how long until you get the biopsy results?  Is it just a few days to a week, or is it longer?  Will the doctor be able to tell me anything immediately after the procedure about how things looked?  Like are there any clues that are visible with the scope or is it all from the lab afterwards?

 

I'm actually having a colonoscopy done at the same time and am quite nervous :P  I'm nervous because of the logistics with taking care of my 4 kids and making sure everybody is where they need to be tomorrow and safe while I'm not available, how my milk supply will handle the 24+ hours without food (I'm nursing a baby), and nervous about how I'm actually going to handle going that long without food without fainting :P  I've got plenty of juices and things that I'm allowed to have though, at least until tomorrow morning.

 

anyway - I'm doing this mostly for my kids anyway - we have so many weird GI issues going on with them, we have the double DQ2 genes and low IgA in the kids.  I figured that it might help explain some things if I do end up having celiac - there might not be so much mystery behind their conditions...

 

I'm a rambling worry-wart right now!  Sorry!  am anxious to get this done and get the test results!

Just settle down :lol:  Everything will be right with the world when you finish your procedures.  Just think, after tomorrow you can start feeling better regardless of the results.  The Doctor may or may not say anything after the procedure.  Biopsies usually take around 1 - 2 weeks for results.  Let us know how it all goes. :)

 

Colleen

Renaye Contributor

I am having an upper and lower gi procedure on Wednesday.  Eating bland stuff today.   I am also having gi trouble but have already had a negative biopsy before.  Good luck!

 

Renaye

appletree729 Apprentice

Thanks for the responses everyone :)

 

Just got home - things went really well and my doctor said that everything looked great, and that he doubts I have celiac, but of course we need to wait for the test results, so we shall see!

 

He took 7-8 biopsies so I feel like if there is damage there, it's likely to be found with so many!  Happy that I don't have to do this again, at least for a long while.  

 

Going gluten free now even if the results come back negative...  he said 1-2 weeks for results...

shadowicewolf Proficient

Thanks for the responses everyone :)

 

Just got home - things went really well and my doctor said that everything looked great, and that he doubts I have celiac, but of course we need to wait for the test results, so we shall see!

 

He took 7-8 biopsies so I feel like if there is damage there, it's likely to be found with so many!  Happy that I don't have to do this again, at least for a long while.  

 

Going gluten free now even if the results come back negative...  he said 1-2 weeks for results...

 

The small intestine is about 15 to 32 feet in length. It is very possible to miss damage.

GF Lover Rising Star

Glad everything went well.  :D

 

Colleen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



appletree729 Apprentice

"The small intestine is about 15 to 32 feet in length. It is very possible to miss damage."

 

lol - I know.  I just meant that I was happy that he took so many biopsies because I know that is important.  Not sure if there are many doctors out there that take more than 8 biopsies...

 

In any case, if there is damage, I hope it's picked up on the biopsies that were done!  

appletree729 Apprentice

Well, got the results today and everything came back normal..  so no celiac disease.  I should be happy, right?!  But oddly, I'm actually disappointed.  This would have been a manageable, not so serious diagnosis with an easy solution that didn't require medication.

 

Oh well.  Mystery still remains as to the cause of my abdominal pain, brain fog and all the other complaints. Or maybe this is just the way I'm supposed to feel and it's 'normal'.  That would suck!

moosemalibu Collaborator

It depends on the doctor.

 

Most damage is microscopic. So unless the damage is really bad, visible damage probably won't be seen.

 

I haven't gotten my biopsy results back but just wanted to add that my endoscopy showed gross abnormality of mucosal atrophy. So sometimes there is visible damage. But I am assuming my biopsy will be consistent with my serology test results and be positive for celiacs.

love2travel Mentor

"The small intestine is about 15 to 32 feet in length. It is very possible to miss damage."

 

lol - I know.  I just meant that I was happy that he took so many biopsies because I know that is important.  Not sure if there are many doctors out there that take more than 8 biopsies...

 

In any case, if there is damage, I hope it's picked up on the biopsies that were done!

Actually, a celiac doctor in Canada said at a lecture I attended to request 11+ biopsies and even at this seemingly high number it could still be missed. She looks at biopsy reports completed by other physicians herself and said a low percentage are done and/or read correctly. But at least yours took 8, rather than a paltry 2 or 3.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    2. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    4. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - Scott Adams replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,263
    • Most Online (within 30 mins)
      7,748

    Fruitypebbles
    Newest Member
    Fruitypebbles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.