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Could Your Retainer Be Preventing Healing? Yes.


powerofpositivethinking

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weluvgators Explorer

I am not warning people off dental care! We can't avoid it, as we have dental complications due to early childhood gluten exposure. I just wanted to report that our family found the case study instrumental in managing our healthcare. Our orthodontist also found the case study meaningful and was relieved that the next scheduled retainers are made of a different material than that used in the case study.


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kareng Grand Master

The symptoms were a chronic cough and continuous postnatal drip that eventuated in severe facial swelling. I took her to the orthodontist concerned we were having infection issues, as it seemed her body was in overdrive fighting....something? He assured me that she was not presenting with infection (we were already on acute allergy management for the symptoms). He advised that she looked to be reacting to her plate. He removed it the next day to make an early transition to her braces, and she immediately improved. Her ability to digest dairy and function of her digestive and respiratory systems seem to have been compromised from the reaction process. She is recovering, just hard to have such a setback when we were doing so well.

 

 

Oh... well that is different!  Your kids have some allergy issues - who knows what part of the retainer she is allergic too.  I have heard of kids having allergic reactions to retainers.  When I was a kid - I think it was the metal used in the metal parts?  That was back in the Stone Ages - hopefully they are made of better stuff these days.  If she needs another, try another manufacturer?  

 

My son kept getting sore in his mouth we thought was because of the metal retainer or he wasn't cleaning well enough.  A friend in college had a"  natural" toothpaste he tried.   He changed toothpaste to Jason's and the sores & swollen lymph nodes went away.

IrishHeart Veteran

 I recognise that our daughter's allergic/celiac reaction could have been to any ingredient in that plastic.

 

Good. I am glad you recognize that fact because 

not everything that happens to us, our children and families is because of gluten.

 

Having OTHER allergies/intolerances  opens a door to so many other things that may have caused a "reaction".

 

I know, I have other food intolerances and mast cell issues. 

 

I am sorry your wee one is not feeling well, but the science speaks volumes. And Dilettantesteph would be the first to agree that the science is important. 

weluvgators Explorer

I think it is fair to note here that our daughters only known allergen is gluten.

kareng Grand Master

I think it is fair to note here that our daughters only known allergen is gluten.

 

Yea... it sounds like it can be hard to figure out what exactly someone is  allergic to.  Sounds like tests aren't reliable.... its just sort of an elimination/observation thing.

weluvgators Explorer

And 9 years of elimination/observation testing, amongst other medical monitoring, has produced a single allergen for her, gluten. Yes, one can develop new allergies at any time. But her reaction was consistent with her past responses to gluten exposure. We have never observed these reactions in response to anything else. Her doctor kept asking, are you sure it isn't gluten? And with our diligence, I kept insisting I couldn't think of a gluten source. It was her insistence...it looks like gluten....that kept my mind open to the possibility and produced relief and a road to recovery for my child. The full text article of this case study helped me shape my opinion and reaffirmed the doctors initial response to our troubles.

kareng Grand Master

And 9 years of elimination/observation testing, amongst other medical monitoring, has produced a single allergen for her, gluten. Yes, one can develop new allergies at any time. But her reaction was consistent with her past responses to gluten exposure. We have never observed these reactions in response to anything else. Her doctor kept asking, are you sure it isn't gluten? And with our diligence, I kept insisting I couldn't think of a gluten source. It was her insistence...it looks like gluten....that kept my mind open to the possibility and produced relief and a road to recovery for my child. The full text article of this case study helped me shape my opinion and reaffirmed the doctors initial response to our troubles.

 

 

And that points out the big difference between Celiac and wheat or other allergies, doesn't it?  Sometimes, contact is enough to give you the allergic reactions like stuffy nose and rashes.  And it isn't like, when you are trying to figure out what a kid is allergic to, you say "Here, Kiddo.  Suck on this piece of metal or plastic & let's see what happens"   :lol:   You just have to figure it out as it comes.


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      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
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      Those are driving distance from me--I will try to check them out, thanks for sharing!
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    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
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      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
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